I used to think it was untouchable–beyond reach. Out of my control and me at its will. But, as time often allows, things soften. A small sliver of space has opened; the space to be me inside of a low or high blood sugar.
A conversation sparked last weekend at the JDRF One Walk in Oklahoma City, surrounding just this concept. I was catching up with an old friend (who also has T1D) and we discussed the subtle impacts that diabetes has on a day, by changing the course of a single moment; his feeling that blood sugars alter the flow of conversations. Citing specifically how it impacts his engagement in meetings, and I chimed in with how it sometimes impacts empathy with patients. And, in an accumulation of altered moments, he mentioned a friend of his had recently attributed a divorce to type 1. It’s there, the invisible (sometimes visible to others) blood sugar force. Continue reading
In 2010, I joined 29 other folks to take part in Leadership Norman, a nine month training for business professionals. We met every other week and participated in a variety of sessions focused on community history, current community issues, leadership, and self-discovery. One of the sessions involved a physical, trust building experience of sorts – a ropes course. At this point, no one really knew I had Type 1 diabetes unless they happen to notice my tattoo, but this particular session brought attention to the disease. Continue reading
When I received my invitation to serve as a Peace Corps volunteer in Ukraine, it included a primer on life in Ukraine, with general information on history, geography, transportation, culture and a small section on food. It should come as no surprise to other PWD, but I have a sometimes wonderful and sometimes dangerous relationship with food. The information shared they’re heavy on meat and vegetables, with seasonal access to produce, and the majority of grocery shopping is done in open air bazaars and small shops. This was helpful, but didn’t minimize my anxiety when it came to carbohydrate counting or questions about glucose tab availability. Continue reading
Never fails. The thought enters, I love my pump, never had better control, and so thankful for it. Then, subtly the morning sugars are a little off. Then, I find myself chasing blood sugars. Then, I start doubting the pump and begin thinking about insulin resistance in pump site locations. Then, I switch back to the ol’ long-term/short-term game. Every couple of years this sneaky process plays its way out. Continue reading
One can only talk oneself for so long, right? Wrong, Amber and Ryan dedicated an entire show to each other (we thought they talked plenty already about themselves in ordinary episodes). In conversation a week prior, they realized much of life had passed by since they had a good sit-down chat. It was time t0 “catch-up” on life, diabetes, and pick-up strategies (Ryan heads to the trail and Amber heads to Whole Foods). Amber elaborates on a DDG post about her recent extraordinarily ignorant endocrinologist visit, while Ryan updates on his new, old-school approach to diabetes management.
In my opinion, having a good rapport with your endocrinologist is vital to living a fulfilled and happy life with diabetes. Over the past 33 years, I’ve had three, maybe four folks who guided me on my T1D journey. As a creature of habit, change is hard so when I was contacted by my current endocrinologist’s office and informed he was ill and no longer seeing patients, I braced myself. I was sad he was not doing well and a bit trepidatious about having to cultivate a new relationship from scratch. Continue reading
Imagine putting your child with type one diabetes (T1D) to bed with less fear of a dangerously low blood sugar. If you have T1D, imagine doing a triathlon or a belly dancing class your friend keeps bugging you about with confidence your blood sugar will remain stable along with your energy levels. The process I used to achieve near normal blood sugar took some time, commitment, experimentation, and sacrifice. All people with T1D have unique physiologies and my experience may not extrapolate to anyone else. However, the process I used is inexpensive and has no side effects, but the benefits could be priceless. Continue reading