Last December, Anne came to the rescue, offering help during my insulin crisis while in San Antonio, Texas. She, like many people in the DOC (diabetes online community) stayed in contact with me while I resolved the problem. She is a leader in the diabetes community and her wealth of knowledge has helped so many T1Ds and their families.
Traveling through multiple time zones with diabetes while being sedentary on the plane can be a lot to handle, but it didn’t keep Drew from his 12 month adventure across the globe. In this episode, he shares his mis-diagnosis, transitioning into life with T1D as a young adult, his love of circus acrobatics and lessons learned while traveling abroad. He is truly an inspiration to all people living with this disease and his laid back personality is warm and welcoming.
Recently, Mayor David Holt declared a pride week in my home town of Oklahoma City. It made me think – do I know any LGBTQ T1Ds? Yep, and not only is she my friend, she is one of the only people I know that has had diabetes as long as I have – hence the title – T1D dinosaurs. We are a rare breed and it was thrilling to sit with Bonnie and share what life was like 35+ years ago growing up with this disease. Bonnie and Jennifer did a fabulous job sharing how managing diabetes is sometimes a group effort.
I’ve been preparing this heartfelt episode for quite some time, and after months of research and polling friends & family, I am thrilled to announce Patreon, a phenomenal and trusted membership platform. All of the Real Life Diabetes podcast episodes will remain free, but members will receive perks. There are five tiers – all of which are affordable so I hope you will take a moment to check it out.
I’m packing up the Subaru and heading to Joplin, Missouri to attend the Stick It To Diabetes fundraiser hosted my the Mercy Foundation. What better way to bring PWD together than a happy hour? Continue reading →
I take pride in being a friendly stalker and scored an impromptu interview with American Idol super star and fellow Type 1, Crystal Bowersox while she was traveling through Oklahoma City. Her show was killer and I shared the evening with dear friends (Erik & Teneka). We sang together, enjoyed pizza and clinked glasses while sharing diabetes hacks. Crystal’s scrappy, no bullshit attitude made her the perfect guest.
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
I’ve been holding onto this post for awhile, but while geeking out on Netflix documentaries, I stumbled upon Brené Brown’s – A Call to Courage. Damn her! I’ve been a huge fan of Brené and find she pops into my life exactly when I need her. It is time for me to be vulnerable… Continue reading →
I’m hitting the road and heading to Arkansas! It has been ages since I’ve hosted a Real Life Diabetes Happy Hour, but after being contacted by a fellow T1D – I’m packing up the Subaru and heading North. This event brings ALL people living with diabetes and their families together to be surrounded by folks who “get it“. Please join me Thursday, April 11th from 5-7:30pm at The Holler located at 801 SE 8th Street in Bentonville, Arkansas.
This fearless forty something T1D does an incredible job of sharing her story. Cynthia is a T1D veteran who has challenged and/or been fired by an endo. or two, faced diabulimia head on, fearlessly experimented with the newest medications on the market and laughed at the thought of being a high risk, geriatric pregnancy. Continue reading →
While on the road with the Real Life Diabetes podcast in Scottsdale, I had the pleasure of having dinner with Paloma Kemak (aka Glitter Glucose). Her story is very different from mine, but her diagnosis and overall mindset is entertaining and up-lifting. Paloma’s energy and ability to laugh while sharing her story is contagious and inspiring to PWDs from across the globe.
The Diabetes Daily Grind and Real Life Diabetes podcast is growing and in order to do so, we need help. We’re pursuing every avenue possible and hope you will take time each day to vote until April 1, 2019. CLICK on the link below to vote and please share with the world!
I’ve taken the Real Life Diabetes podcast on the road and spent a fabulous, BUT way too short amount of time in Scottsdale, Arizona. What better way to kickoff this epic adventure than attending a Beyond Type 1 meet up? I am thrilled to publish Podcast 60 with one of the Beyond Type 1 hostesses, Lauren Bongiorno; virtual Diabetic Health Coach, Entrepreneur, and Author of the Diabetic Health Journal. Continue reading →
After a tip from my sister and a little friendly stalking, I scored a killer interview with CNN Heroes award recipient, Maria Rose Belding. Above and beyond her work providing food for people in need, she is surpassing her goals while juggling life with Type 1 diabetes. In this episode she shares her passion to serve others while not letting T1D slow her down. Continue reading →
It has been over a year since I last shared a post, but with two snow days I had plenty of time to reflect on what the past year has taught me. 2018 was full of new challenges, many of which were diabetes related. After 35+ years of living with T1D, you would think I’ve dealt with it all, but that is not the case. Below are a few highlights, lessons learned and things to ponder.
I became a Dexcom Warrior and had the privilege of trying the new G6 before it was released to the public.
I shared my T1D story, per the request of the Oklahoma Diabetes Legislative Caucus, to insurance providers in an effort to change future coverage for people living with the disease. It worked. Report to follow in a future post with my testimony.
Kate Hall, is like many of us in the diabetes community – unstoppable and she decided early on that Type 1 diabetes won’t keep her from pursuing her dreams. She is an inspiration to us all and does a phenomenal job sharing her story on the road to becoming a 2020 Olympian.
After a long hiatus, I’m back and doing my best to use new technology… I chose to kickoff this new wave of podcasts with a “hot topic“, insulin affordability and accessibility. The DOC (diabetes online community) has been harping on this for ages, but as the topic is now international news after a recent wave of “published” deaths due to insulin rationing, it was time to chat with the author of Insulin’s High Cost Leads To Lethal Rationing, Bram Sables-Smith.
Rolling into the second half of my 34th year of living with Type 1 diabetes, I can’t help but reflect on what has led me to my current state of T1D affairs. It wasn’t until meeting fellow Diabetes Daily Grind co-founder, Ryan, that I began talking about my life with the disease. This journey has brought on an incredible number of “ah-ha” moments, recognition of suppressed anger and “moving on” milestones. Continue reading →
Over the past three years of binge reading other PWD’s posts and interviewing people who live with diabetes, the common theme has been our ability to recognize low BGs changes over time. In my adolescent years, my nose would feel numb and I would get shaky. At that point in my life I was checking my BG every once in awhile so my body took the reigns and made sure I knew something wasn’t right. It was all about trial and error – I feel woozy and am shaking so I would down a packet of honey or four and start to feel better. Continue reading →
I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me… Continue reading →
If you’ve followed the DDG since it’s inception, you know I’m not one for change, so when I finally took a leap of faith – it was much needed and WAY overdue. I’ve feared tapping into the T1D technology for a number or reasons, and want to come clean as to what led to this fear and my jaw-dropping, eye-opening discoveries once I took the leap.
As many of us do as the holidays approach, we reflect on what we were forced to learn, or turned a blind eye to. I’m not just focusing on everyday stuff, but on my diabetes management or lack there of. I ask myself – Did I diligently count carbs? Did I do my best to stay on top of my numbers? Was I honest at the doctor’s office? At the end of the day it doesn’t matter, the past is behind me and it’s time to focus on the future and how I can hopefully stay off of Santa’s diabetes naughty list for next year. Continue reading →
It was about this time last year when I wrote, Battle To The Death.. My Death That Is, about the countless hours/days/weeks I spent dealing with insurance companies. I want to start by saying that I’m incredibly grateful to finally have medical insurance as someone who has been self-employed most of my adult life, but this recent round(s) of phone calls has me questioning a few things. Continue reading →
As a person with Type 1 diabetes, I’ve been frustrated in years past with the lack of advancement for the treatment of this disease. It wasn’t until about five years ago that I decided to stop complaining and seek action. I asked myself the question – why aren’t things chaining and what can I do to help? I did a bit of research and with the help of my regular physician, I signed up to participate in diabetes related trials. I had no idea what I was in for, but knew it was something I had to do. Continue reading →
Happy National Diabetes Awareness Month! What better topic to write about than the impact the diabetes online community (#DOC) has had on my life. In previous posts, it was made clear time and time again how I did not fully appreciate the value of this random group of souls until I tapped in – I mean jumped into everyone’s lives. It was SO weird to be welcomed with open arms from folks I’d never met. Continue reading →
I believe I’ve made it quite clear that I’m creature of habit, especially when it comes to my diabetes regimen. If I had to be brutally honest, I can’t fathom changing things because my numbers are good. At the same time, I look at my T1D peers and feel as if I’ve been left behind. What’s holding me back? This thought process led me to a recent decision to shake things up. Continue reading →
In 2010, I joined 29 other folks to take part in Leadership Norman, a nine month training for business professionals. We met every other week and participated in a variety of sessions focused on community history, current community issues, leadership, and self-discovery. One of the sessions involved a physical, trust building experience of sorts – a ropes course. At this point, no one really knew I had Type 1 diabetes unless they happen to notice my tattoo, but this particular session brought attention to the disease. Continue reading →
In my opinion, having a good rapport with your endocrinologist is vital to living a fulfilled and happy life with diabetes. Over the past 33 years, I’ve had three, maybe four folks who guided me on my T1D journey. As a creature of habit, change is hard so when I was contacted by my current endocrinologist’s office and informed he was ill and no longer seeing patients, I braced myself. I was sad he was not doing well and a bit trepidatious about having to cultivate a new relationship from scratch. Continue reading →
Flashback to my diagnosis date which centered on the doom and gloom of my new life with Type 1 diabetes. I recall a lofty list of what I “should or should not” do in order to live a healthy life without complications. I listened and followed the rules for the most part, but rotating my injection sites didn’t seem to stick. It was just easier to give my injections in my thighs because I was usually sitting on the toilet. No brainer, right? Continue reading →
I’m a creature of habit with my diabetes regimen and most definitely when it comes to my 5:41am Lantus injection, but last week things did not go according to plan. It was just like any other night, I headed to bed and by the time my head hit the pillow, I was dreaming of hosting my own reality TV series. I usually get up around 3am to pee and feel pretty awake as I navigate my way to the restroom. This particular morning, my “Give Your Shot” alarm went off, but when I stumbled into the restroom – I knew something was off. Continue reading →
The DDG culinary partners in crime came together, but this time, we didn’t have a recipe or theme for that matter. The only plan of action – clean out the fridge. We’re rule breakers or makers so there’s no right or wrong way to whip things together to create a KILLER brunch. Below is a recap of how we made it happen.
Step 1: Clean out your fridge – that means EVERYTHING. We gathered fruit, various cheeses, carrots, onions, garlic (lots of it), tomatillos, tomatoes, shallots, squash and shrooms. Continue reading →
Ryan trying to figure out how that whole lancet changing thing works.
I just returned home from the largest diabetes gathering I’ve attended to date, the Friends For Life conference. I had no idea what to expect and felt overwhelmed at times because I was surrounded by SO many PWDs. I laughed and cried during my interactions with folks who understand the path I’m on. While in such great company, I gathered data (sipping wine and sharing stories) on commonalities and lifestyle hacks to make life with T1D easier. I’ll share a few of them in a future post – BUT there was one thing that was very clear – NO ONE changes their lancet. Why is this? Are we stubborn, lazy or just gluttons for punishment? Well, I’ve developed a plan I hope you will participate in… Continue reading →
Last week my favorite bartender overheard my conversation with a dear friend. We were laughing about how our bodies are changing since turning the big 4-0. The bar was packed with attractive men so when she announced, “Amber – there’s no way you’re 40!”, I almost fell from my bar stool. Instead of freaking out, I announced with pride that I turned 40 a few months back. The girl talk continued and I proclaimed how happy I am to still be alive. This declaration fueled my desire to begin a new series of posts – diabetes over the decades, yes decade(s). Continue reading →
One of the biggest challenges I face as a T1D is tackling foreign foods. Don’t get me wrong, I rarely shy away from an unfamiliar dish, but guessitmating the carbs can be difficult. One dish in particular I’m drawn to is curry so what better way to update my carb calculating skills than by preparing this heavenly dish myself. I rallied my culinary partners in crime and whipped up a recipe with a few diabetes friendlier options.
This recipe might seem intimidating, but don’t let the number of ingredients freak you out. I’m breaking it down into three easy steps. Continue reading →
Last February I was sucker punched by my worst fear – retinopathy. This dark cloud has hovered over me for 30 years and I knew it would inevitably make it’s way to the surface. Ryan was actually with me at the appointment and I think we were both a little shocked when Dr. Smith of Classic Vision noticed numerous hemorrhages in my right eye. After having time to process the bad news, I gathered the courage to write about it in, Diabetic Retinopathy Is Finally On The Radar. When it was clear three months later my eyes were not getting better, he referred me to a specialist. After a series of additional tests at the Dean McGee Eye Institute, I was given the green light to live life and return in 12 months for a follow-up. Hemorrhages had been detected, but they could have been caused by other factors like stress, blood pressure in addition to diabetes.
The day had come and it was time to schedule my follow-up exam. Was retinopathy still on the radar? Continue reading →
Just another day in the single life… blind date #1 only made it to date four. Fortunately, the dating gods were in my favor and blind date #2 was just around the corner. In our initial meeting at a concert (not a good idea), the getting to know you chit chat led to what I do for a living. I gave him the cliff notes version of the Diabetes Daily Grind and it only took a matter of seconds before he said, “my uncle died from diabetes complications“. Strike 1, right? Continue reading →
I’m admittedly hypersensitive to all things diabetes related considering my glutenous amount of reading on the subject. Every over the counter medication, prescription drug commercial and doctor’s office poster has something about the disease. When I came across this article, Mold Illness Is Everywhere: What it is and 11 Signs You Have It, by David Wolfe, it made me consider how the signs of a mold illness paralleled symptoms of Type 1 diabetes. Interesting… Continue reading →
Moving is stressful, but having diabetes adds a whole new layer to the chaos. When the “official” moving day arrived, I felt confident I was prepared for the uncertainty of what laid ahead. I knew the next 48+ hours were going to be challenging both mentally and physically, but more so on my diabetes. Since co-founding the DDG, it has opened my eyes to how diabetes plays a role in every part of my life. There is no escaping. Continue reading →
Annually, I attend a Symposium filled with brilliant people who share a common theme of wanting the best for Oklahoma. A few days before setting off for this intellectual journey, they presented the question I would discuss with fellow panelists – Objects in Mirror are Closer than they Appear: Disruptions that are Fast Approaching. My initial thought – what in the hell am I going to speak about? 48 hours before presenting it dawned on me – PRE-DIABETES. I recalled a report presented at the Novo Nordisk Summit, forecasting staggering numbers of folks with pre-diabetes. I started my speech with – Look around, one in three of you sitting in this room has pre-diabetes…
Spring has sprung and my mother’s little batch of asparagus is producing a few stalks a day. With the abundance of asparagus, I got creative and found a new recipe to keep life exciting. I hope you enjoy this recipe I stumbled across in the Travel Issue of Food & Wine magazine,
Actual image of my mom’s asparagus. FYI – it took 20+ minutes to instruct her on how to take and send me this photo. : ) Continue reading →
Novo Nordisk was kind enough to invite me to join them in cheering on T1D and Indy race car driver, Charlie Kimball in the Phoenix Grand Prix. Upon receiving my itinerary, it was clear to be a whirlwind of a weekend. After three full days of lively, diabetes themed discussions, I prepared to head home. For 48+ hours, I had been fueled by adrenaline, insulin and red wine. My diabetes game plan going into the weekend – adjust Lantus injection to the different time zone, do my best to pursue healthy food options and have fun no matter what the circumstances. Continue reading →
I’ve never been a dater so the recent wave of blind dates catapulted me out of my comfort zone. Like most people, I had the first date jitters. What am I going to wear? Hair up or down? Can I curse? Normal thoughts, right? Then it dawned on me – at some point diabetes will be a topic of discussion and what did I really want to share on a first date?
Cooking adventures with friends fuel my fire to pursue healthier options when meal planning for the week. While discussing our next culinary adventure, my friend mentioned Shakshuka. I know what you’re thinking – I can’t even pronounce this so how in the hell am I going to prepare it? Shakshuka is an Israeli dish of eggs poached in a sauce of tomatoes, peppers, and onions, spiced with cumin. – are you salivating yet? After binge reading recipes, we gathered with tons of ingredients and the desire to create our own spin on this traditional dish. Hope you enjoy this recipe as much as we did.
A recent series of events has me looking at life a bit differently. Nothing dramatic, but when considering a few big decisions I began to weigh the options. Fear crept in and so did a need for uncharted territories. As I’m still pondering my final decision, it made me think – there are two types of people on this earth in which I’ve broken into different categories:
Balls Out – The person who doesn’t think twice or look back before jumping off a cliff.
Fear Factor – The person who must calculate a few things = test the water, nearest exit point, wind speed and BG level before even considering the jump.
This discovery forced me to dive into my psyche to determine which category I fell in to. Continue reading →
A year ago I joined the Bourbonettes, a wonderful group of educated, savvy women who come together to enjoy this delightful libation. A pairing of Girl Scout cookies and various labels of bourbon kicked off my inaugural Bourbonette adventure. Even though I was excited to attend, I didn’t partake. My T1D fears took over. I was nervous, didn’t really know anyone and had no desire to attempt carb counting with the fear of miscalculating and being a shitshow. Lame!
Last week the gracious hostess presented a fruit adorned Fancy Free. My immediate thought – do I take the leap of carb counting/alcohol consumption faith and join in? Continue reading →
I came across an article about famous folks who are fellow passengers on the T1D train. The story focused on their diagnosis and raising $$$ for ? charity. Kudos for using fame to increase funding and awareness! As I wrapped up the article, my mind wandered… If given the chance to sit across from a T1D celeb, what would I want to know about their “real life”?
Halle Berry – Actress
Do you pick up your own prescriptions? Does your make-up artist cover up bruises from shots? Any suggestions on the best cover-up for this?
I had been mentally preparing myself for a memorial service for the spouse of a woman I absolutely adore. The dreaded day arrives and my goal prior to attending the service included a brisk walk and meditation before jumping in the shower. Everything was going according to plan until I returned home to find I was locked out of the house! I had 1 hour and 32 minutes before picking up an honorary guest of the widow!
I love to get creative in the kitchen so when I heard a fellow T1D complain about the carbs in pizza – I had to take action. I make it a point to insist on a thin crust with healthy toppings, but felt confident there had to be a healthier option. A recipe rumor had been circulating about this mystery, low carb pizza crust made from cauliflower. I was skeptical, but my previous culinary creations with cauliflower were pleasantly surprising – so what the hell, let’s do this. Continue reading →
Valentine’s Day, Halloween and Easter are all the same to me – a candy driven holiday. You can’t go into a store or even the pharmacy for that matter without being bombarded with isles and isles of candy. Growing up with T1D, this isle was torture! I didn’t really care about the candy, but I “had” to refrain which made me feel isolated from my peers. Well, I’ve changed my tune and created a list of ideas and tips PWDs can appreciate… and it includes chocolate.
Unique Gift Ideas:
Purchase a T1Dexposed Calendar – The Nude Diabetes Advocacy Project was created to promote awareness, connect people living with T1D, and fundraise for both local and global diabetes organizations.