Wait for it…
Wait for it…
Today, January 7th, 2021 I celebrate my 29th year on this beautiful planet and considering the current shit storm of world events and quarantine I would normally be sad, BUT connecting with my diapeeps every Thursday during the Real Life Diabetes Happy Hour has literally saved my life. I would love for you to join me tonight or any Thursday you are free to pop in between 5 – 6:15pm CST. Please be sure to register – CLICK HERE.
This birthday pic was taken three weeks before I was diagnosed with T1D and celebrating with other people who “get it” is a reminder – I am not alone and you don’t have to be either.
Manny Hernandez is a published author, recognized diabetes advocate, and speaker on the power of community for social impact who reminds us, while we are not on this journey by choice, it’s not a path we need to take alone. What better way to wrap up 2020 than with a brave soul who transformed his professional career to connect with others who understand similar challenges.
Dr. Allyson Hughes is a self-proclaimed animal lover, methodology geek and research scientist who collaborates with various industries to develop research projects from beginning to end, and advocates for health policy with the data she collects. Having been diagnosed with T1D herself, she knows all too well the struggles we face. This is what prompted her career path as a health psychologist dedicated to improving the lives of people living with diabetes.
I’m a sucker for witty banter and was thrilled to connect with Jutta Haaramo, co-founder of the Happy Bob app, who has brought a bit of lightheartedness to managing her son’s life with T1D. Her mission is to share the latest diabetes data, without overloading people with information by making it a fun, and rewarding experience. This is just the beginning of an exciting partnership with Jutta and the Happy Bob app team.
Thankfully, many of us living with Type 1 diabetes have a supportive parent(s), but have we really taken time to think about how our diagnosis affected our loved ones. When Janet’s media kit fell on my desk, I knew I wanted to connect. Their story of strength and partnership as they navigated through this disease, both highs and lows, is a reminder – we are not alone. Continue reading
I’m new to San Antonio, Texas and have thoroughly enjoyed soaking up the culture. On November 1st and 2nd they celebrate Día de los Muertos (Day of the Dead) which also kicks off Diabetes Awareness Month. As I researched and witnessed firsthand this beautiful ceremony a few emotions surfaced. My Type 1 diabetes diagnosis almost 38 years ago was literally a death sentence. For most of my life I’ve worn this weight alone, but my mindset has shifted with the current pandemic and political state of affairs/nightmares. Continue reading
I don’t know about you, but in kindergarten I wasn’t considering space exploration as a career path, but April stuck to her guns and achieved this goal even after a T1D diagnosis. Her calm demeanor, passion and journey to become an aerospace engineer is inspiring to say the least. She deserves to be the first person living with diabetes in space and absolutely shares my personal mantra to dream big – diabetes or not.
With a little friendly stalking I had the pleasure of chatting with two incredibly inspirational industry leaders, and self proclaimed friendemies, Sean Saint and John Sjolund. Their drive to succeed and multiple success stories mirror my mission to help improve quality of life for all people living with diabetes. They are entertaining to say the least and had me laughing throughout the interview while giving me hope for the future of diabetes management. Continue reading
The Real Life Diabetes Virtual Happy Hour takes place every Thursday from 5 – 6:15pm CST. The theme or activity has attendance growing because we have a TON of fun with folks who “get it”. This event is a great place to meet new people, connect with old friends and hopefully lift your spirits as you roll into the weekend.
Checkout a few fun pics below and be sure to click on the Happy Hour logo to register. Continue reading
Can you imagine being diagnosed with T1D and five years later stating you’re in the best health of your life? In this episode, we’ll be learning more about my new friend from the land down unda’, Astra-Lia ‘Ozzy’ England. Several years ago, Ozzy would receive news from the doctor that would shake her world; a T1D diagnosis. In a matter of weeks, she went from living a relatively normal life (albeit with Celiac disease) to being put on insulin therapy. Her fiery personality and unapologetic curiosity about life with diabetes made her the perfect guest.
You don’t have to hide, let’s have the tough talks. In this episode you’ll learn why this is so important with guests Matt Tarro & Brandon Denson the Founders of Bolus Maximus. Matt and Brandon have created this community with a focus on filling a major void in the male community, the need for vulnerable connections for men dealing with diabetes. Both diagnosed at later ages, they know first hand how diabetes can get in the way of your goals and plans. Now they are on a passionate mission to help those grinding through this disease. Let’s jump right into their stories and start talking about some hard truths and good advice.
The Real Life Diabetes Virtual Happy Hour has brought SO many interesting PWD together. We thoroughly enjoy basic pub talk, poking fun, cracking jokes, live music, embarrassing some of us crappy trivia lovers, etc. Recently I connected with a woman who wowed me with her written word skills.
* I feel confident you will enjoy this reading as much as we did.
Please visit the show notes for more information about peripheral arterial disease and possible treatments.
The battle against diabetes doesn’t have to be done alone, we need community. That is the mindset of today’s guests (yes plural!) the Diabuddies App Founders, Amy, Sarah and Charlene. As we dive in, you’ll learn how these ladies’ experience with diabetes led them to create something ALL people living with diabetes can support. Continue reading
Who says an old dog can’t learn new tricks?! Repeat guest and dear friend, Mark Carter joins the show and shares how and why he has created a T1D backup plan. He has re-assessed and found better strategies that have left him feeling freer and refreshed. Let’s dive into Mark’s story and learn how finding the right physician and going back to the basics (MDI) got his diabetes back on track. Continue reading
I’ve hardcore quarantined since March and recently started to feel the impact it has on me mentally. I miss my friends, I miss strolling the aisles of Target, I miss spending too much time looking at fresh produce, I miss brunch and definitely miss happy hour at a local watering hole. As I shed tears writing this post, I thought – why not do something about it. Continue reading
After decades of frustrating results and fed up with the type 1 diabetes roller coaster, Allison completely changed her life and diabetes management by switching to a low carb lifestyle. She took her new way of eating seriously and lost 55+ pounds and was able to get off all medications with the exception of insulin. This journey fueled her desire to learn more about how her own T1D body worked and to then share her message with others. Allison jumped head first into a series of nursing degrees and coaching certifications including pregnancy and pre-diabetes coaching. She is the real deal exemplifying how to both live well and support others in their journey with diabetes and achieving normalized blood sugars!
Reverend Bales story was one I could not pass up. While many of us living Type 1 diabetes quarantined, he hit the front line to serve the homeless community on Skid Row. He has lived with T1D for 48 years and hasn’t let this disease keep him from achieving his goals both physically and professionally. He is truly a hero!
Throughout his epic adventure, Mike went from couch potato to dropping around 100 lbs. in order to fulfill his dream of hiking the Appalachian Trail all while adjusting his diabetes management. It takes a lot of courage to completely overhaul your habits! His ability to plan all things hiking for 5+ months AND throwing in all the diabetes supplies traveling cross country blows my mind. This is only the beginning as he soon off to his next adventure. Continue reading
Sarah is a breath of fresh air. Her ability to be honest, vulnerable and willing to discuss all aspects of her T1D journey is the perfect combination to connect the diabetes online masses. In this first ever episode for the DDG, we discuss medicinal cannabis and what it has done for Sarah in addition to daily practices of yoga, meditation and online connectivity.
After a recent announcement from Novo Nordisk I cleared my schedule to record this episode with Dr. Todd Hobbs, Chief Medical Officer for North America and Ken Inchausti, Senior Director of Corporate Communications. In this open discussion they share resources and cost saving programs, details about insulin production, insulin trials and what’s on the horizon for insulin therapies. I learned SO much about a drug I’ve been taking for decades!
After being rejected to join an insulin therapy clinical trial, I was determined to find someone who was able to participate. DDG’s newest team member, Cynthia Celt, connected the dots and hooked me up with Craig who shared his recent experience as a participant in a rather intense trial. Thank you Craig for temporarily donating your body to science to help fellow insulin dependent dia-peeps. Keep on trucking… jeeping you brave soul.
With all of us spending more time in kitchen it was time to get cracking on a new recipe, but considering what I’ve been whipping together is ridiculous, I reached out to my friend, Brent Wilson, RD, CDE and Director of Nutrition & Wellness at i2U Culinary Solutions. I had the pleasure of interviewing Brent and co-owner, chef Jonathon Stranger on Mini-podcast #1: Food Is Medicine a few months ago. They know what they’re talking about – I hope you enjoy. Continue reading
For newly diagnosed T2D, it might be overwhelming and many fall into diabetes denial. In an effort to change this mentality, Tracey shares an authentic story of how a question from her daughter was the “aha” moment to take things seriously. In this episode, Tracey unapologetically shares her story because there is no shame in the game! Diabetes is a family affair and her energy, lifestyle choices and overall mentality is hopefully contagious – in a good way.
I connected with Kyle on social media and like many of my past guests, he shoots it to you straight about diet, exercise and his diabetes hacks. He isn’t shy and shares his opinion on lifestyle and offers HIS take on things without offering up medical advice. I was a little squeamish when Kyle shared details about a current trial he’s participating in, but eager to learn more about the advancements in CGM technology from someone who is walking the walk. Continue reading
This impromptu episode was created to hopefully set your mind at ease. As PWDs are flooded with stories on social media concerning the fear of an insulin shortage or the disruption of diabetes supplies, I felt compelled to act. Even though most companies have issued statements reassuring people living with diabetes that everything would be okay, I wanted to hear it for myself from the company leaders. Continue reading
I felt compelled to write this post after reading a NY Times article about pandemic mortality rates over the decades. In 1999, I gave myself a graduation present to visit a friend in Paris, France to celebrate the millennium. My family warned against the trip because of the uncertainty of Y2K, but that didn’t stop me. My friend was a nanny for the US Ambassador and I knew my time in France would not be the typical tourist adventure. I headed out with a HUGE backpack and cannot recall what diabetes supplies were on board. Continue reading
I stumbled upon a YouTube channel, Between Two Lines, that was informative and hilarious at the same time. In each episode, Levi shares his down to earth thoughts on a particular Type 1 diabetes related subject using a real talk, no sugar coating, approach. His dry wit and ability to make light of what living with this disease is like had me laughing and saying – man this guy gets it. Continue reading
DreaMed Diabetes, a leader in AI solutions for personalized diabetes management and the company behind the first artificial pancreas technology recently launched Advisor Pro software. This software can analyze glucose and insulin data in seconds and advise on an optimal treatment plan including basal rate, carb ratio, insulin sensitivity factor, and personal management tips. The Advisor Pro also allows remote clinic visits and frequent titration changes.
The dust has settled and the Real Life Diabetes Consulting team is back at home and taken a moment to reflect on our visit to the JDRF TypeOneNation summit in St. Louis. I love chatting with this crew and thought it was time to recap our roller coaster of events in Missouri. We aren’t shy and touch on personal take aways, connecting with new diapeeps of all ages, and how we battled our own diabetes debacles on this trip. Real life! Continue reading
Steady Health is the first full-service digital diabetes clinic in the US. Their services combine the power of continuous glucose monitors and the convenience of telemedicine to deliver a new type of care to patients. You can see an endocrinologist from home and get ongoing care and support from a team of diabetes specialists.
Dr. Clayton McCook is back and shares what’s new in his diabetes advocacy game. He’s not pointing fingers, but using his voice and grassroots efforts to make a difference. Everyone has a voice and he uses his kind demeanor to help others find theirs. Not only does he share tech advancements and grassroots efforts, he entertains my ridiculous questions about diabetes management for pets.
As my Diaversary soon approaches, I take time to sit in silence and reflect on what I’ve learned, more specifically, in my diabetes world. New technology & pump therapies, apps, partnerships, #insulin4all campaigns, etc. have me a bit exhausted, but hopeful for the future. Below are a few 2019 highlights I would like to share.
The i2U Culinary Solutions motto is “Food is Medicine” and is comprised of a team of registered dietitians, certified personal trainers, and award-winning chefs all dedicated to bridging the gap between food and medicine. Use promo code, DIABETESGRIND, at checkout to receive a 10% discount on your first order.
I am wrapping up this decade with one last long episode, but I promise, it is worth listening to the very end and entertaining if nothing else. The theme of this episode is knowing the difference between being a constant, and being a pest. Monica backs this motto by providing actionable items and tips to help us relinquish fear and get involved. Her demeanor is calm and her voice is soft, but her words are powerful and changing lives for all people living with diabetes. Continue reading
Yesterday, in a bit of a panic, I reached out to friends and family because I was scared, really scared. The ugly cry kept me from sharing my real fears – was it just a gallbladder episode or something worse? Within an hour, I was headed to the ER, but not before packing a bag – insulin, needles, pen needles, extra sensor, skin tac, tester, test strips, healthy snacks, low BG snacks, journal, phone charger and head phones. Continue reading
Chris and his wife Candace are honest, vulnerable and a little sappy at times, but are the perfect reminder there are still good ones out there. You know, the ones who support you and your diabetes through the good, the bad and a serious hypo while educating their three kiddos along the way. Together, they resonate love, compassion and a supportive partnership and are role models for us all – diabetes or not. Continue reading
After reading the Cali’flour Kitchen cookbook from cover to cover, I knew Amy Lacey would be the perfect guest to wrap up diabetes awareness month. Her desire to bring back dietary normalcy, especially her family’s pizza nights, after her auto immune diagnosis was the driving force behind Cali’flour Foods – the first cauliflower pizza crust. Her brand will bring pizza back into the lives of people like me, who live with Type 1 diabetes. Continue reading
I was honored to be chosen as one of ten Patient Voice Contest winners for the DiabetesMine Innovation Summit. During the two day event, I was surrounded by industry leaders, tech gurus, genius creators of diabetes apps, and many fellow advocates. This Summit coalesced the mother lode of advancements in diabetes management, and a few of the brave souls in attendance took time to chat with me. Though our interviews were brief, each guest radiated an optimism and passion for helping to better the lives of those of us living with diabetes, and I hope their energy inspires you as well.
A few months ago, I received a heartfelt video message from a person I’d never met, and it had me and my friends and family in tears. It was exactly the boost I needed to keep going. Dr. Fox is one of the good guys – the doctor who truly cares about his patients and their sense of wellbeing after leaving his office. His holistic mind, body, spirit approach is one you rarely, if ever, see in the endocrine world. He has taken a chance by stepping out of the traditional medical community box and intends to make a much larger impact on the diabetes community with his programming and overall approach to treatment. Continue reading
This globetrotting T1D just embarked on a 12-month remote year journey with a focus to reach one million people living with diabetes. Her candid approach, charismatic attitude, and ability to touch on hot topics will transform lives and prevent diabetes burnout. With 39 1/2 years of experience and a handful of degrees, Dr. Jody is an expert in all things diabetes making her the perfect guest.
It is always a pleasure to connect with fellow diabetes advocates, Rev Run and Justine Simmons. They radiate positive energy and had me laughing with their ability to call each out when it comes to healthy lifestyle choices. There is no doubt, their passion to rewrite their family history with Type 2 diabetes is contagious and the Simmons kids are teaching them a thing or two.
It was just by chance our paths would cross at a T1D kiddo and parent support group. I rarely attend and Rebecca and her husband James were guests that evening. When we split off into another room, Rebecca shared her heartfelt story to the parents and there was not a dry eye in the room. For many of us who have lived with T1D for decades, sharing the impact this disease has on our state of mind can be difficult to recollect, much less share. Rebecca found the courage and is turning a life altering experience into a philanthropic dream.
Last December, Anne came to the rescue, offering help during my insulin crisis while in San Antonio, Texas. She, like many people in the DOC (diabetes online community) stayed in contact with me while I resolved the problem. She is a leader in the diabetes community and her wealth of knowledge has helped so many T1Ds and their families.
Traveling through multiple time zones with diabetes while being sedentary on the plane can be a lot to handle, but it didn’t keep Drew from his 12 month adventure across the globe. In this episode, he shares his mis-diagnosis, transitioning into life with T1D as a young adult, his love of circus acrobatics and lessons learned while traveling abroad. He is truly an inspiration to all people living with this disease and his laid back personality is warm and welcoming.
I was pleasantly surprised by the result and contacted the founder of the machine… Continue reading
Recently, Mayor David Holt declared a pride week in my home town of Oklahoma City. It made me think – do I know any LGBTQ T1Ds? Yep, and not only is she my friend, she is one of the only people I know that has had diabetes as long as I have – hence the title – T1D dinosaurs. We are a rare breed and it was thrilling to sit with Bonnie and share what life was like 35+ years ago growing up with this disease. Bonnie and Jennifer did a fabulous job sharing how managing diabetes is sometimes a group effort.
I’ve been preparing this heartfelt episode for quite some time, and after months of research and polling friends & family, I am thrilled to announce Patreon, a phenomenal and trusted membership platform. All of the Real Life Diabetes podcast episodes will remain free, but members will receive perks. There are five tiers – all of which are affordable so I hope you will take a moment to check it out.