#124: Nupur Lalvani | We’re All Sailing in the Same Boat

Real Life Diabetes Podcast 124

Can you imagine black ants being attracted to sugar as part of your diagnosis story? Well, today’s guest, Nupur Lalvani shares her Type 1 diabetes diagnosis and everything she has going on in her very active advocacy life. She is the founder of the Blue Circle Diabetes Foundation, India’s largest patient-led support group for people living with all types of diabetes. Continue reading

#123: Patricia Daiker | What Are You Willing to Do Today?

Seeing diabetes every day can develop denial and avoidance of the disease. In this episode, Patricia shares her journey to compassion for herself and other people living with this disease. She explains – diabetes should not define our purpose as she reflects on how denial, anger, bargaining, and depression are all connected to unresolved grief. Continue reading

#122: Qiana Drew | You’re Really Only as Strong as Your Foundation

Real Life Diabetes Podcast #122

If you can name it, you can tame it! In this episode, Qiana Drew clears up some misconceptions and shares how, when it came to her diabetes, she would often do things to try and keep up with her thin peers. Eventually, she realized this mindset was not a healthy way to live and decided to share her journey with Type 1 diabetes and diabulimia to help others live their best life.

#121: Ermo Egberts | Taking Radical Ownership of Your Health

Real Life Diabetes Podcast

I knew Ermo Egberts would be the perfect guest after reading his post about attending an ecstatic dance party where he connected with others on a spiritual level. Ermo’s story is a testament to the power of self-awareness and self-care, and he encourages others who are living with diabetes to stay positive and hopeful while living life to the fullest.

#120: Azure Wolfe | Loving the Skin We’re In

Real Life Diabetes Podcast - Azure Wolfe

Every change that our body experiences as we age is connected to hormones, and should not be neglected. In this episode we discuss the changes our T1D bodies are experiencing in our forties. Azure also speaks passionately about the importance of connecting with others who are living with diabetes to support one another and recommends a community approach to diabetes management.

Join in to hear how Azure loves her ever-changing body.

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All of the Healthcare Disparity Red Flags Were Waving

Hold on to your hats for this diabetes discovery while attending my first American Diabetes Association 82nd Scientific Sessions conference in New Orleans, LA. 

Day three of the sweaty journey involved a room refresh and I had the pleasure of meeting Javon, who was recently diagnosed with Type 2 diabetes – we think.  Continue reading

#118: Noah Averbach-Katz | Searching for a Cache of Insulin Before It’s Too Late

Noah Averbach-Katz blew the doors off a recent Kickstarter campaign for a film that just began production. I believe his experience with live theater AND as a professional actor gave him the upper hand on creating TYPE 1, a short film chosen as one of Kickstarter “projects we love” after it was fully funded in under 8 hours. Stay tuned for more information on the release date and screening opportunities. 

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#117: Kalex Williams | You Look Fine, Come Back on Monday

Real Life Diabetes Podcast #117

Isn’t it time to start injecting some much-needed diabetes humor to cut through the doom and gloom we face? Kalex Williams is a master at extracting positivity and he has to be one of the coolest people I’ve met! In this episode, you will get a taste of Kalex’s resilience in the face of his diagnosis and how he didn’t sit on his pity party, but makes light of it and connects to attendees from across the globe. 

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#116: Sean Kramer | That’s the Million Dollar Question

Real Life Diabetes Podcast

People living with diabetes are tired of waiting for a cure, but it’s not time to throw in the towel. Sean Kramer knows about this all too well. Sean is the fourth generation in his family to be living with diabetes. Today, he serves as the Chief Executive Officer of the Diabetes Research Institute Foundation in Florida, the only national organization solely dedicated to finding a cure for diabetes with expert sources and human interest stories. In this episode, we learn more about Sean and confront the notion of hope-fatigue; it’s not time to give up!

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#115: Esi Akyere Mali Arthur Snodgrass | 33 Years in the Making

Demanding better care and not being afraid to ask for it, Esi Akyere Mali Arthur Snodgrass is helping others find their voice and live life knowing they are complete and whole. You got to get to know this dynamic woman! Dive into this action-packed episode and find out Esi’s story, diabetes management, and advocacy for those who aren’t getting the diabetes care they deserve!

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#114: Insulin Pump Therapy Leaders | Defining Progress in Daily Diabetes Management, Part #2

Imagine a future where diabetes is the last thing on the mind of people living with it – that is progress! In part #1 we got an inside look at how the insulin industry is spurring each other on to make advancements in diabetes management. In part #2 we continue the conversation with the leaders in the insulin pump industry, alongside my well-versed cohost, Mark Carter. As a little refresher, we had the pleasure of hearing from Michael Hill, VP of Global Portfolio Marketing at Medtronic, Dr. Trang Ly, Senior Vice President and Medical Director at Insulet, and Dr. Steph Habif, a behavioral scientist at Tandem.

Let’s jump back into this topic and learn more about how you can define progress in daily diabetes management and what’s on the horizon for insulin pump therapy. 

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#113: Brett Ryan Stewart | What Comes First, the Chicken or the Egg – Diabetes & OCD?

I’ve joked, and/or compared my diabetes management to OCD (obsessive compulsive disorder), but hadn’t met anyone living with both conditions until interviewing Brett Ryan Stewart. Brett is a Nashville based producer who shared – “ultimately what OCD kind of comes down to is this inability to accept what you can’t control and then obsessing about a way to control the uncontrollable.” I’m sure many of you living with T1D can relate to this mentality and Brett’s ability to give us a look into his daily life was eye opening to say the least.

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#112: Insulin Pump Therapy Leaders | Defining Progress in Daily Diabetes Management, Part #1

Real Life Diabetes Podcast 112

The world of diabetes management is growing at an expeditious rate, so how do we define progress in this space? Great question, and one I couldn’t resolve myself so I brought in past podcast guest and fellow T1D, Mark Carter, who has worked within the industry. We had the pleasure of sitting with three insulin pump therapy leaders: Michael Hill, VP of Global Portfolio Marketing at Medtronic; Dr. Trang Ly, Senior Vice President and Medical Director at Insulet; and Dr. Steph Habif, a behavioral scientist at Tandem

Our conversation is packed with insights on how to define progress in daily diabetes management while addressing some of the community’s most burning questions. Stay tuned for part #2.

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#111: Madison Thorn | “Sacrifice the Weak, Re-open Tennessee”

It’s time to get rid of the word ‘weak’ when talking about people navigating chronic illnesses. In reality, we are some of the strong, unique and resilient people in the world, and Madison Thorn is spreading that very message. She was fueled by a nasty protest sign and turned that energy into a thought provoking project highlighting other high risk humans like ourselves, a story that needs to be told.

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#110: Ginger Vieira | Avoiding the Self Pity Track

Real Life Diabetes Podcast

Ginger Vieira learned quickly that it turns out there is a whole lot you can still do even while dealing with diabetes when you approach yourself kindly rather than getting stuck in self pity. She is a passionate writer and editor with a mission to turn complex health information into easy-to-read content. Ginger herself navigates not only through T1D, but other autoimmune diseases as well, but not for a moment does she let herself get caught up in self pity. Instead she works tirelessly to bring out content that impacts others going through similar struggles.

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#109: Charles Mattocks | Slow Down the Forward Progress

When Charles Mattocks was diagnosed with Type 2 diabetes, he was given little to no education on how to manage this disease so he took matters into his own hands. After getting his own health back on track, Charles is sharing his journey into advocacy, and how he is effectively trying to reverse the forward progress of unmanaged diabetes.

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#108: Kayla Mattingly | We Don’t Need a New PlayStation, We Need a Solution

Real Life Diabetes Podcast
People living with diabetes don’t just need the latest and greatest tech, they need real solutions to unique problems! Kayla Mattingly always knew she wanted 3-4 kids from the start, but never imagined two of her four sons would be diagnosed with Type 1 diabetes. She rolled with the autoimmune punches, but an insulin allergy has her family and medical team scrambling for solutions. Type IV Hypersensitivity to insulin is rare, but she has found a handful of other parents who are looking for answers. 

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#107: Kristina Loskarjova | Sometimes You Just Have to Step Back

To all those who need to hear this – yes you can! This is the lifelong motto of Kristina Loskarjova, a woman who sets her mind to something and makes it happen while living her best life with T1D. She shares how taking a step back from the pressures of management could be exactly what you need to get back out and start living a fulfilled life. Kristina is an accomplished designer, entrepreneur and author who is sharing her story and those of other people living extraordinary lives with this disease. 

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#106: Tim White | Diabetes Might Have Put Us on the Defensive

While getting the diabetes diagnosis tends to put us on the back foot, we can choose to deal with it and refuse to let it define us. Tim White is a diabetes veteran who has been managing his diabetes for longer than I have. He is a well spring of wisdom and shares his story along with his experience on living his best life with diabetes for decades. Tim is a prime example that diabetes is not a death sentence, and its management is getting better every day.
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#105: Jermaine Hargrove | Type 1 Diabetes is a Family Affair

What does someone who was thrust into the world of diabetes with no preparation do? They make animations of course! Jermaine Hargrove is the co-founder of Small Town Animation Studios, where he and his wife are impacting the diabetes space with the arts, specifically in the 3D animated films arena. His creative expertise and entrepreneurial spirit will help inspire people to better manage their diabetes. Let’s dive into Jermaine’s story and learn more about not all Superheroes wear capes, but some do wear CGMs.
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#104: Bridget McNulty | The Advocacy Sweet Life

I’m fascinated with diabetes care and advocacy efforts in other countries so I was thrilled to connect with Bridget, a fellow T1D making waves in South African healthcare. She goes above and beyond to ensure people living with diabetes have the information and tools they need to live their best life. South Africa has a long way to go and I feel confident Bridget will be leading the movement.
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#103: Red Maxwell & Dr. Jim Malone | MDI Therapy That’s Got Your Back

As someone who uses MDI therapy to manage my Type 1 diabetes, it was a no brainer to jump on this episode. On May 10th, 2021, the FDA gave clearance for the first-of-its-kind smart pen caps for insulin pens used to treat Type 1 and Type 2 diabetes. Good things are happening in the diabetes community and this is just the beginning.
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#102: Kyle Jacques Rose | Raising the Voice of People Living with Diabetes

Kyle is a seasoned traveler and person living with T1D whose career path has been shaped by the bumps and bruises of living with this disease. He currently serves as the Chief Strategy Officer for DiabetesWise who has launched the DiabetesWise Device Finder, a tool created at Stanford University School of Medicine to help PWD easily identify the best technology for their personal diabetes management.
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#101: Mike Hoskins & OK State Senator, Carri Hicks | Understanding the Executive Order Freeze Concerning Insulin

This impromptu episode was a no brainer when President Biden took office and put a freeze on past executive orders. The diabetes community flipped out so I contacted two friends who can help me and the DOC better understand what this really means. In this episode we discuss the EO freeze on insulin and grassroots advocacy efforts. 

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#100: Scott Johnson & Kerri Sparling | Everything is Worth Giving a Shot

In gearing up for this epic unicorn episode I sincerely reflected on the impact becoming a diabetes advocate has had on my life. Two of the first people I discovered were Kerri Sparling and Scott Johnson. I had found my people! Reading their stories and watching them present at various conferences gave me the courage to “really” find my voice. The podcast and blog posts have lifted a huge weight, one I didn’t realize was there. I am truly blessed. 

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Happy Birthday to Me – Real Life Diabetes Virtual Happy Hour

Today, January 7th, 2021 I celebrate my 29th year on this beautiful planet and considering the current shit storm of world events and quarantine I would normally be sad, BUT connecting with my diapeeps every Thursday during the Real Life Diabetes Happy Hour has literally saved my life. I would love for you to join me tonight or any Thursday you are free to pop in between 5 – 6:15pm CST. Please be sure to register – CLICK HERE.

This birthday pic was taken three weeks before I was diagnosed with T1D and celebrating with other people who “get it” is a reminder – I am not alone and you don’t have to be either.

#99: Manny Hernandez | Changing Paths = Code For You Have To Start Giving Shots

Manny Hernandez is a published author, recognized diabetes advocate, and speaker on the power of community for social impact who reminds us, while we are not on this journey by choice, it’s not a path we need to take alone. What better way to wrap up 2020 than with a brave soul who transformed his professional career to connect with others who understand similar challenges. 

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#98: Dr. Allyson Hughes | Research Is Me Search

Dr. Allyson Hughes is a self-proclaimed animal lover, methodology geek and research scientist who collaborates with various industries to develop research projects from beginning to end, and advocates for health policy with the data she collects. Having been diagnosed with T1D herself, she knows all too well the struggles we face. This is what prompted her career path as a health psychologist dedicated to improving the lives of people living with diabetes.

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#97: Jutta Haaramo | A Snarky Comment Helps Lessen the T1D Burden

Real Life Diabetes Podcast 97

I’m a sucker for witty banter and was thrilled to connect with Jutta Haaramo, co-founder of the Happy Bob app, who has brought a bit of lightheartedness to managing her son’s life with T1D. Her mission is to share the latest diabetes data, without overloading people with information by making it a fun, and rewarding experience. This is just the beginning of an exciting partnership with Jutta and the Happy Bob app team.
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#96: Janet Hatch & Zandra Soanes | I’m Not a China Doll

Thankfully, many of us living with Type 1 diabetes have a supportive parent(s), but have we really taken time to think about how our diagnosis affected our loved ones. When Janet’s media kit fell on my desk, I knew I wanted to connect. Their story of strength and partnership as they navigated through this disease, both highs and lows, is a reminder – we are not alone.  Continue reading

#94: Sean Saint & John Sjolund | Who Forgets if They’ve Given an Insulin Shot?

With a little friendly stalking I had the pleasure of chatting with two incredibly inspirational industry leaders, and self proclaimed friendemies, Sean Saint and John Sjolund. Their drive to succeed and multiple success stories mirror my mission to help improve quality of life for all people living with diabetes. They are entertaining to say the least and had me laughing throughout the interview while giving me hope for the future of diabetes management.  Continue reading

The Real Life Diabetes Virtual Happy Hour is Growing!

The Real Life Diabetes Virtual Happy Hour takes place every Thursday from 5 – 6:15pm CST. The theme or activity has attendance growing because we have a TON of fun with folks who “get it”.  This event is a great place to meet new people, connect with old friends and hopefully lift your spirits as you roll into the weekend.
Checkout a few fun pics below and be sure to click on the Happy Hour logo to register. Continue reading

#93: Ozzy England | Let’s Be Honest – We’re 21st Century Vampires

Can you imagine being diagnosed with T1D and five years later stating you’re in the best health of your life? In this episode, we’ll be learning more about my new friend from the land down unda’, Astra-Lia ‘Ozzy’ England.  Several years ago, Ozzy would receive news from the doctor that would shake her world; a T1D diagnosis. In a matter of weeks, she went from living a relatively normal life (albeit with Celiac disease) to being put on insulin therapy. Her fiery personality and unapologetic curiosity about life with diabetes made her the perfect guest.

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#92: Matt Tarro & Brandon Denson | The Truth Will Set You Free

You don’t have to hide, let’s have the tough talks. In this episode you’ll learn why this is so important with guests Matt Tarro & Brandon Denson the Founders of Bolus Maximus. Matt and Brandon have created this community with a focus on filling a major void in the male community, the need for vulnerable connections for men dealing with diabetes. Both diagnosed at later ages, they know first hand how diabetes can get in the way of your goals and plans. Now they are on a passionate mission to help those grinding through this disease. Let’s jump right into their stories and start talking about some hard truths and good advice.

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To Love A Diabetic by Poet Nichole Acosta

The Real Life Diabetes Virtual Happy Hour has brought SO many interesting PWD together. We thoroughly enjoy basic pub talk, poking fun, cracking jokes, live music, embarrassing some of us crappy trivia lovers, etc. Recently I connected with a woman who wowed me with her written word skills.
* I feel confident you will enjoy this reading as much as we did.
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#91: Diabuddies App Founders | The Importance of Connectivity

The battle against diabetes doesn’t have to be done alone, we need community. That is the mindset of today’s guests (yes plural!) the Diabuddies App Founders, Amy, Sarah and Charlene. As we dive in, you’ll learn how these ladies’ experience with diabetes led them to create something ALL people living with diabetes can support. Continue reading

#90: Mark Carter | Back to the T1D Basics

Who says an old dog can’t learn new tricks?! Repeat guest and dear friend, Mark Carter joins the show and shares how and why he has created a T1D backup plan. He has re-assessed and found better strategies that have left him feeling freer and refreshed. Let’s dive into Mark’s story and learn how finding the right physician and going back to the basics (MDI) got his diabetes back on track. Continue reading

#89: Allison Herschede | Diabetes Against the Grain

After decades of frustrating results and fed up with the type 1 diabetes roller coaster, Allison completely changed her life and diabetes management by switching to a low carb lifestyle. She took her new way of eating seriously and lost 55+ pounds and was able to get off all medications with the exception of insulin. This journey fueled her desire to learn more about how her own T1D body worked and to then share her message with others. Allison jumped head first into a series of nursing degrees and coaching certifications including pregnancy and pre-diabetes coaching. She is the real deal exemplifying how to both live well and support others in their journey with diabetes and achieving normalized blood sugars!
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#88: Reverend Andy Bales | T1D Drives Me to Serve the Underdog

Reverend Bales story was one I could not pass up. While many of us living Type 1 diabetes quarantined, he hit the front line to serve the homeless community on Skid Row. He has lived with T1D for 48 years and hasn’t let this disease keep him from achieving his goals both physically and professionally. He is truly a hero!
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#86: Sarah MacLeod | The Highs & Lows of Diabetes and Cannabis

Sarah is a breath of fresh air. Her ability to be honest, vulnerable and willing to discuss all aspects of her T1D journey is the perfect combination to connect the diabetes online masses. In this first ever episode for the DDG, we discuss medicinal cannabis and what it has done for Sarah in addition to daily practices of yoga, meditation and online connectivity.
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#85: Dr. Todd Hobbs & Ken Inchausti | An Open Conversation about Insulin with Novo Nordisk

After a recent announcement from Novo Nordisk I cleared my schedule to record this episode with Dr. Todd Hobbs, Chief Medical Officer for North America and Ken Inchausti, Senior Director of Corporate Communications. In this open discussion they share resources and cost saving programs, details about insulin production, insulin trials and what’s on the horizon for insulin therapies. I learned SO much about a drug I’ve been taking for decades!

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#84: Craig Le Fevre | Temporarily Donating My Body To Science

After being rejected to join an insulin therapy clinical trial, I was determined to find someone who was able to participate. DDG’s newest team member, Cynthia Celt, connected the dots and hooked me up with Craig who shared his recent experience as a participant in a rather intense trial. Thank you Craig for temporarily donating your body to science to help fellow insulin dependent dia-peeps. Keep on trucking… jeeping you brave soul.

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#83: Tracey D. Brown | A Positive Poster Child for the Type 2 Diabetes Community

For newly diagnosed T2D, it might be overwhelming and many fall into diabetes denial. In an effort to change this mentality, Tracey shares an authentic story of how a question from her daughter was the “aha” moment to take things seriously. In this episode, Tracey unapologetically shares her story because there is no shame in the game! Diabetes is a family affair and her energy, lifestyle choices and overall mentality is hopefully contagious – in a good way.

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#82: Kyle Kondoff | I’ve Found What Works Best For Me

I connected with Kyle on social media and like many of my past guests, he shoots it to you straight about diet, exercise and his diabetes hacks. He isn’t shy and shares his opinion on lifestyle and offers HIS take on things without offering up medical advice. I was a little squeamish when Kyle shared details about a current trial he’s participating in, but eager to learn more about the advancements in CGM technology from someone who is walking the walk. Continue reading

#81: Big Pharma | Pandemic or Not – Emergency Insulin Resources

This impromptu episode was created to hopefully set your mind at ease. As PWDs are flooded with stories on social media concerning the fear of an insulin shortage or the disruption of diabetes supplies, I felt compelled to act. Even though most companies have issued statements reassuring people living with diabetes that everything would be okay, I wanted to hear it for myself from the company leaders. Continue reading

#80: Levi Davenport | I Don’t Need You to Build Me a Watch, I Just Need to Know What Time it is

I stumbled upon a YouTube channel, Between Two Lines, that was informative and hilarious at the same time. In each episode, Levi shares his down to earth thoughts on a particular Type 1 diabetes related subject using a real talk, no sugar coating, approach. His dry wit and ability to make light of what living with this disease is like had me laughing and saying – man this guy gets it. Continue reading

Mini-Podcast 2: Steady Health – “You Deserve More Than a Quarterly Check-Up”

Steady Health is the first full-service digital diabetes clinic in the US. Their services combine the power of continuous glucose monitors and the convenience of telemedicine to deliver a new type of care to patients. You can see an endocrinologist from home and get ongoing care and support from a team of diabetes specialists.

#54: Trish Winters, T1D Parent & Advocate | Times Are A Changing

 


As promised, the Diabetes Daily Grind is happy to share what’s on the horizon for the blog and the Real Life Diabetes podcast while catching up with one of our favorite guests. Over a few glasses of wine, Amber has a heartfelt discussion with Trish, T1D parenting badass to two sons with T1D whose fighting the good fight on Capitol Hill as a diabetes advocate.  Continue reading

#47: Scott Johnson | Strive For Progress, Not Perfection

 

Finally,  the most welcoming force in all of the Diabetes Online Community joined the show: Scott Johnson. If you’ve ever composed an article about diabetes, odds are, Scott has given you praise. As one of the founding members of the diabetes blogging world, Scott has watched the DOC bloom into a world that hosts 1000s of posts per year, and he couldn’t be more proud. He’s honest, approachable, and has done a lot of diabetes introspection over the years. Amber labeled him the “most huggable” person of the DOC. You’ll soon understand after listening. Continue reading

#36: Clayton McCook | Sure, I’ll Close the Loop Too

In less than a week from our last podcast conversation with Clayton McCook, he managed to “close the loop”, by himself, with the help of many (including the NightScout Community). His focus is singular: restore as many childhood moments to his daughter’s life as possible, without diabetes hovering in the background. He walks us through the “closing the loop” steps and his bigger motivations. As a parent of a person with diabetes, if you’ve ever thought about tinkering with your gear to allow the CGM and pump talk, Clayton stands as proof that it’s possible to pull it off with determination, love, and a small desk somewhere. Continue reading