So I don’t have diabetes anymore, I think. Or at least for now I am on a diabetes vacation. After twenty two years living with type one diabetes, I am having somewhat of an identity crisis.
As people with diabetes, we are thinking constantly about our health. We are so in tune with how we feel throughout the day. From symptoms of high and low blood sugars, to fatigue, to nausea, to blurry vision, to cloudy thinking, we feel it all on most days of our lives. Continue reading →
In 2010, I joined 29 other folks to take part in Leadership Norman, a nine month training for business professionals. We met every other week and participated in a variety of sessions focused on community history, current community issues, leadership, and self-discovery. One of the sessions involved a physical, trust building experience of sorts – a ropes course. At this point, no one really knew I had Type 1 diabetes unless they happen to notice my tattoo, but this particular session brought attention to the disease. Continue reading →
In my opinion, having a good rapport with your endocrinologist is vital to living a fulfilled and happy life with diabetes. Over the past 33 years, I’ve had three, maybe four folks who guided me on my T1D journey. As a creature of habit, change is hard so when I was contacted by my current endocrinologist’s office and informed he was ill and no longer seeing patients, I braced myself. I was sad he was not doing well and a bit trepidatious about having to cultivate a new relationship from scratch. Continue reading →
Flashback to my diagnosis date which centered on the doom and gloom of my new life with Type 1 diabetes. I recall a lofty list of what I “should or should not” do in order to live a healthy life without complications. I listened and followed the rules for the most part, but rotating my injection sites didn’t seem to stick. It was just easier to give my injections in my thighs because I was usually sitting on the toilet. No brainer, right? Continue reading →
What started as a mini pod quickly blossomed into a full blown podcast once Amber began diving into the nitty gritty as to how Tara Layman (T1D Exposed co-founder) scored a new pancreas and kidney. The question of the hour – Will two pancreases and three kidneys reverse her Type 1 diabetes diagnosis? Well, in this episode they chat openly about the pre surgery process, switching from insulin shots to a handful of pills, how important it is to have a support team and what the future holds for someone who no longer “technically” has Type 1 diabetes. Continue reading →
The DDG set out for their very FIRST diabetes camp adventure (despite only being 24 hours in duration, it still felt like an adventure). Really, with over 50 years of diabetes experience under their belts, what more was left to learn at camp? As Advisory Board Members for Camp Blue Hawk in Oklahoma City, Amber and Ryan went to school… well, summer school for a few more diabetes enlightenments.
Last week my favorite bartender overheard my conversation with a dear friend. We were laughing about how our bodies are changing since turning the big 4-0. The bar was packed with attractive men so when she announced, “Amber – there’s no way you’re 40!”, I almost fell from my bar stool. Instead of freaking out, I announced with pride that I turned 40 a few months back. The girl talk continued and I proclaimed how happy I am to still be alive. This declaration fueled my desire to begin a new series of posts – diabetes over the decades, yes decade(s). Continue reading →
Last February I was sucker punched by my worst fear – retinopathy. This dark cloud has hovered over me for 30 years and I knew it would inevitably make it’s way to the surface. Ryan was actually with me at the appointment and I think we were both a little shocked when Dr. Smith of Classic Vision noticed numerous hemorrhages in my right eye. After having time to process the bad news, I gathered the courage to write about it in, Diabetic Retinopathy Is Finally On The Radar. When it was clear three months later my eyes were not getting better, he referred me to a specialist. After a series of additional tests at the Dean McGee Eye Institute, I was given the green light to live life and return in 12 months for a follow-up. Hemorrhages had been detected, but they could have been caused by other factors like stress, blood pressure in addition to diabetes.
The day had come and it was time to schedule my follow-up exam. Was retinopathy still on the radar? Continue reading →
Oftentimes, in the wake of shock from a surprising blood sugar, I have no answers for why the number isn’t where I desire it. Maybe I’ll spend 30 seconds playing detective, sifting for causes over the last few hours or days (or minutes). My detective work, on occasion, will yield an answer, like Oh yeah, I forgot to bolus for lunch today (somehow, yes, this still happens). But, for the most part, either from subconscious repression or the nature of the diabetes beast, no clear answer shows up. Just take insulin or eat a snack, then move on. Continue reading →
When I was ten years old, my doctor told my mom I would never have children. I didn’t hear these words; I was laying in a diabetic coma that lasted for 4 days. When I woke up, I woke up to a new life, a diagnosed life that included injections, meal planning, and glucometers. When my mom finally broke the news to me a few months later, the last thing on my mind was having kids someday.
Situations arise (and will continue), where I can’t troubleshoot a reason for being high. This is our life. I like to think of the body as your local philharmonic. When everyone shows up to play the show, you’ve got great harmony. When all of the violins forget to show up (consider this our pancreas deficiency), various other members of the orchestra (consider this cortisol, growth hormone, epinephrine) will come across a little louder, and distort the quality of the show (the random high blood sugar). For historical purposes, it’s important to point out those last few sentences will serve as the first and last philharmonic-related analogies on the website. Continue reading →
Over the time we’ve been dating, I’ve started to recognize when Liam gets low. He gets giggly and can’t speak and if he’s asleep, he doesn’t wake up. It’s becoming easier to catch the lows and they’re easy to deal with if we have sugar that is easily accessible. Liam always carries dextrose tablets with him so finding fast acting sugar is never a challenge. One of the scariest lows I’ve had to deal with was during our first year’s round of final exams. Continue reading →
Novo Nordisk was kind enough to invite me to join them in cheering on T1D and Indy race car driver, Charlie Kimball in the Phoenix Grand Prix. Upon receiving my itinerary, it was clear to be a whirlwind of a weekend. After three full days of lively, diabetes themed discussions, I prepared to head home. For 48+ hours, I had been fueled by adrenaline, insulin and red wine. My diabetes game plan going into the weekend – adjust Lantus injection to the different time zone, do my best to pursue healthy food options and have fun no matter what the circumstances. Continue reading →
The DDG team is honored to be advisory board members for OU Harold Hamm Diabetes Center’s Camp Blue Hawk, a 5-day residential camp for children with type 1 diabetes that focuses on improving camper’s quality of life. In this podcast we chatted with high school student, twin, cello/bass playing and volleyball champion, Paul and his mother. He shares his honest reflection on what camp was like with stories of clean latrines, good food and forgetting he had diabetes. Continue reading →
A recent series of events has me looking at life a bit differently. Nothing dramatic, but when considering a few big decisions I began to weigh the options. Fear crept in and so did a need for uncharted territories. As I’m still pondering my final decision, it made me think – there are two types of people on this earth in which I’ve broken into different categories:
Balls Out – The person who doesn’t think twice or look back before jumping off a cliff.
Fear Factor – The person who must calculate a few things = test the water, nearest exit point, wind speed and BG level before even considering the jump.
This discovery forced me to dive into my psyche to determine which category I fell in to. Continue reading →
As a freshman in high school, if someone had asked me what type 1 diabetes was about two months ago, I would have been clueless. I kind of knew about Type 2 and I might’ve had a sense that there was a second type of diabetes, but… that was about it.
A few weeks before my diagnosis, I hadn’t been feeling like myself and was thirsty all of the time. My mom and I decided that should it persist throughout the next week or so, I would go to the doctor. On Thursday morning I felt fine, except for this new usual thirstiness. About mid-morning my stomach started hurting a little. It wasn’t that bad, so I figured it was just something I ate. I had biology class right before lunch, and we were doing a lab on yeast fermentation. While my teacher was explaining part of the procedure, I started feeling dizzy. It got worse and worse, and by the time I realized something was actually wrong, I couldn’t really do anything. Out.Continue reading →
I had been mentally preparing myself for a memorial service for the spouse of a woman I absolutely adore. The dreaded day arrives and my goal prior to attending the service included a brisk walk and meditation before jumping in the shower. Everything was going according to plan until I returned home to find I was locked out of the house! I had 1 hour and 32 minutes before picking up an honorary guest of the widow!
At any moment, we have the chance to join the current – that magnetic force of connectedness to something. Trying to describe the exact feeling it tough. I’m coming up short, but perhaps the force stems, simply, from mindfulness. In the moments where we feel that easy flow—whether it is on a hike by ourselves, during a night out with friends, or in conversation with the pharmacist—things just flow naturally out of awareness.
When in the current, I feel most like myself. This is not a continual existence, even with perfect blood sugar. More rare than constant, but something I look to join when the opportunity presents. Continue reading →
Alright, I’m holding myself to our mission–real support for the diabeteslife. Really, why is it so hard to share an a1c that isn’t up to snuff? Maybe it was the branding of the number 7 on our being upon diagnosis, or years of anxious waiting in the doctor’s office for an a1c that doesn’t out our crafted out of thin-air glucose log, but more likely in my case (and I suspect for many others), it’s an admission that after 17 years I still have work to do. It’s vulnerability.
So, it came back at 7.9 last week.The mantra–judge yourself by your effort not the results–has underscored 2016 for me. That said, the number wasn’t all that surprising. The holidays did their holiday thing (or I allowed the holidays to do their holiday thing). For the last few months of 2015, I went CGMless due to losing the battery charger (which I located a month ago and have been wearing the CGM since). School was a roller coaster ride. At the end of the day (with a pile of excuses), my effort over the past 3 months didn’t reflect an a1c under 7. Continue reading →
In the midst of a VIP cocktail hour LIVE from the Connect+Cure Gala in Oklahoma City, leaders on the diabetes research and treatment frontier were kind enough to converse with us. We didn’t focus on run of the mill research questions. We got to the heart of their individual diabetes motivations. We covered the importance of a physician’s own A1C, the equal importance of cowboy boots, favorite Toby Keith (he played a full concert that night) songs, and why both Amber and Ryan haven’t been dropped as patients for non-compliance… yet. As the night’s feature ceremony, the Hamm Prize–$250,000 for research advances toward a cure–was awarded to Dr. Ronald Kahn, and he joined us to share his enlightening perspectives (that’s not hyperbole, it’s truth).
After we wrapped up our interviews, we were honored to join 900+ people who support the Harold Hamm Oklahoma Diabetes Center’s (HHODC) future and groundbreaking strides toward eradicating diabetes. As Oklahomans, where 1 out of every 3 people is affected by diabetes, it was a meaningful night filled with promise. We are so grateful for the opportunity provided by the Harold Hamm Diabetes Center and appreciative of our guests to supply insights for all of us with diabetes. Thank you everyone! Continue reading →
I forgot my lunch in the car. By itself, not all that significant. In the midst of any day with diabetes, it has ramifications.
By the time this truth was realized, it was 11:55AM and morning classes were a wrap. On an aside, things like this have happened to me for most of my life. Due to the customary nature of the event, I’d already convinced myself that it was good for me to forget lunch in the car. It’s a chance to get in a few more steps. Maybe even get some vitamin D. So, I embarked on the 10 minute walk back out to the car.
As I left the school building, my strides meeting a classic Oklahoma gust head on, I stole a glance at the Medtronic CGM (continuous glucose monitor). I didn’t freak out when it read 87. Continue reading →
Nearly 15 years ago in September, my 10 year-old brain and body was forced to comprehend an absurd and sudden diagnosis that has subsequently shaped my life as an adult. Type 1 diabetes (T1D) in my eyes then, was something I had never heard of, and surely I’d end up blind like my aunt, taking several shots a day for the rest of my life.
Looking back now at the initial diagnosis, T1D has ultimately shaped my goals and dreams. Although, I will say it took me a time or six to get that through my head, especially during college, and to stop putting my diabetes on the back burner, ignoring the fact I had to deal with this disease on a daily basis. That was the toughest issue I’ve had to face and overcome with T1D to date. Ignoring my diabetes and trying to live the life all of my friends were living during college did nothing but land me in the hospital on several occasions and leave me with hospital bills to pay at 22 years old. Continue reading →
January 28th, 1984 I checked into Children’s Hospital after my pediatrician cried expressing her worst fear – I had type 1 diabetes. I shared my diagnosis day in this POST I wrote in the first few months of DiabetesDailyGrind. I wept as I recalled the days events that changed my life. SO many emotions surfaced – sadness, anger, fear and all things doom and gloom. 32 years later I choose to celebrate. Diabetes has been a large contributor to building my character and I have a magnificent life. There’s NO room for doom and gloom (wow – that kind of rhymed)! Continue reading →
“Just remember – life is like a sine graph”, my mother always touted, long before I was diagnosed with type 1 diabetes (at the “adult” age of 18). Growing up with a dad who was a math professor ensured that I knew from a very early age what the sine function was. It goes up, and then down. And then back up. She always said it to make me feel better – after losing a tennis match, getting a lousy grade on an exam or fighting with my high school boyfriend. “Head up Maria – remember – life is like a sine graph.” Continue reading →
IT’S 9:45PM, fine, closer to 11PM (friends will point out that 11 is still an early bedtime, but I don’t care because I love mornings more than everything, including Netflix) and I start jotting down thoughts. Whatever comes up. Sometimes insightful, sometimes forgettable, but nonetheless I enjoy the ritual.
Periodically, an entry will start off with, “Man, today was pretty smooth until…”, “Things ended up turning out alright today after…”, or “What would today have been like if…” Each of those sentences usually end in one of the varying manifestations of a low blood sugar: strange conversations, funky moods, bad workouts, or disrupted flows. When a low BG introduces turbulence to my day, it receives deference in the writing. Why? Probably because low blood sugars tend to trigger strong emotions–hypos aren’t known for producing stable mood states. Continue reading →
I’m always down for a road trip so when I was invited to Austin to share Thanksgiving with new friends, I starting packing my bags. I met Lisa and her family in Hawaii and spent a number of evenings with the Thomas family. I even attended her daughter’s wedding, so driving a few hours for Thanksgiving was a no-brainer.
As the departure date approached, I felt the anxiety creep in. I was excited to see everyone, but nervous to spend 72 hours in someone’s home I barely knew. We had discussed my diabetes so they were familiar with me testing my BG and shooting up, but a wave of insecurity came over me.
In the next month full of holiday occasions, the focus is on family, friends, and in reality, FOOD! When turning down pumpkin pie, fudge, and or a hottie tottie, we can sacrifice long-standing family relations. What’s the pancreas-deficient to do? We got your back, dishing out the best advice we’ve got built on the back of a few hangovers, highs, lows, and good times. Kelly McKeever Registered Nurse, making his 2nd appearance today, dropped by to lend some professional and personal advice as a guy with a type 1 diagnosis.
Take a listen to the full DDG theme song by Mike Hosty, HERE. or check out the live version on this Youtube link
This is not an advice column. It is the opposite. If you, like the DiabetesDailyGrind, want to make the most of your Thanksgiving with friends and family, avoid the following seven diabetes-related behaviors:
1) Be the high school hero during the annual family football game.
After scoring every touchdown, making every tackle, and breaking your niece’s collarbone, your family will most likely say “See you next year” and you’ll be low.
2) Join spirited conversations over the Middle East or Donald Trump.
3) Flip a family member the bird, storm out of the house, and peel out of the driveway, after losing a third game of Uno in a row. Two hours later, your blood sugar has spiked because of the stressful exit.
Mark it in the books – November 14th I celebrated my first World Diabetes Day. This foreign concept was brought to my attention shortly after co-founding the DDG. Why had I never heard of this glorious day? As the day approached, I pondered – How am I going to celebrate? The bar is high as I’m lucky to share this day with millions of fellow T1Ds internationally.
I started the day with my normal breakfast smoothie, followed by coffee while surfing T1D blogs. The message was universally clear… Continue reading →
This is a different subject matter than the aforementioned methods, with it probably standing on loftier moral ground. Brittany got the dating ball rolling earlier in the week, and lately I’ve been pondering this very concept as I traverse the first few weeks of getting to know someone I really like, while not really knowing how much they’re into me, knowing that I’m into them, guessing she’s kinda into me because we definitely wouldn’t be spending this much time together if not, but all the while just ‘playing it cool’. As unnecessarily complex as that last sentence sounds, the diabetes intro is simpler… or it should be. Continue reading →
The low mind is a desperate mind: consumed by negativity much like myself after a Dallas Cowboys’ loss and uncompromising like an addict. In such a state, our mind can be taken by our deepest fears. If uncertainty finds itself anywhere near you life, you’ll find out when you’re low. A little worried about your job performance lately? You’re getting fired. Got a test in the morning? Bombing it. Things been off with your girlfriend lately? She’s cheating on you.
It’s one thing to have those thoughts; it’s another to carry them back into your presence as a sane, otherwise normal person, at a normal blood sugar. But this does happen. All the time. Think about it like a dream where your boss walks in and lets you go from a job you love. You wake up, go to work, and it takes until lunch to really trust your boss again. It takes awhile for the root of the thought to be dug out. Continue reading →
I would rather swim in a shallow pool with a hungry great white shark than have my blood drawn, so signing up for my annual blood panel takes a lot of guts. I stab myself 4+ times a day, making me an expert in my own pain management. I’ll be damned if I feel comfortable allowing someone else to stab me with a needle.
As much as I would like to talk myself out of this test – I MUST have the blood work done. The lab gave detailed instructions – Nothing but water past 10pm. WTF? I’m a T1D and shit can hit the fan in the middle of the night! Would that forfeit my appointment? I’ll arrive anxious, hungry and most definitely cranky. Continue reading →
This image sums it up. There are days when I have NO control and feel compelled to tell the world to f**k off! There was nothing different about my routine. I gave 12 units of Lantus at 5:41am and headed back to bed. A series of weird dreams and the need to pee woke me from my slumber. I recognized this feeling and forced myself to get up and test.
While sitting on the toilet, the number confirmed my gut instinct – BG was 38. No time to pee, in fact, my body wouldn’t let me. I stumbled into the kitchen and downed a Gatorade. Continue reading →
Ever had one of those frozen taquitos? Okay, so you’ve been to college. Ever had one of those frozen taquitos, without thawing it? Alright, you might have been low. Do you remember it? Then you weren’t that low.
Given my level of consciousness teetered between an anesthesia-like blackout and that first 10 minutes of falling asleep, we are relying mostly on the story-telling accuracy of my father to describe some of the events; needed that established.
The story’s genesis involves the the high cost of test strips (Sorry, every chance I get to hammer them for this fact is seized). Even back in 2001, the era of this story, test strips were, as they always are, at a premium. If you had ample supply, you hoarded those things like Harry Potter fans collect sticks that happen to look like wands. My family enjoyed a few extra boxes due to the recent Pfizer inhaled insulin study we’d joined when I was 10, the year prior. Continue reading →
Last week was the 10th anniversary of Hurricane Katrina. As I drove into Burlington, Vermont I tuned into NPR and heard horrible stories from folks impacted by the tragedy. Dead bodies floating, elderly folks dying in their wheel chairs while waiting for help and no food or water to be found. This tragedy didn’t effect me directly as I was safe at home in Norman, Oklahoma, but it surfaced a new T1D fear – I would be one of the first to kick the bucket.
I recall sitting with the man I was dating listening to the news and became overwhelmed with emotion. I watched people in their pajamas on rooftops begging to be picked up as helicopters circled above. Continue reading →
We devote much attention to the downside of situations in our life first, even when the positives are notably greater. This is no secret.
How often do you sit around and ponder your strengths driven by diabetes? Me, I’ll give it some thought; going as far to mention it in a job interview, scholarship essay, or speech. Do I think about it daily? Not usually, with the bulk of my thinking consumed with highs, lows, and the in-between.
Today I argue that our strongest character trait, something we have to acknowledge, has developed naturally, over many years, over many days, over the smallest of moments–that being professionalism.Continue reading →
Going back to school can be a bummer for everyone, but adding a “disability” to the mix throws in an additional layer of stress and anxiety. Today, I recap different stages in my life where diabetes reared it’s head and how I dealt with the highs and lows during this treacherous time of insecurity and adolescence. I’m breaking it down and sharing a few coping mechanisms I only realized as an adult.
Elementary School – My homies and fellow Girl Scouts knew what was going on. That didn’t make it any easier per say, but at least the cat was out of the bag.
I allowed adults to help out. I busted my first bottle of insulin during this particular Girl Scout camp. I was mortified, but everyone rallied and we scored another bottle so I could be a part of the camping on a concrete platform experience.
I kept snacks in my desk and have shared how to handle bullying in Cheez-It Trauma.
I took my lunch… I was even “particular” at an early age. This allowed me to have healthier options while not feeling weird about not consuming the hamburger, fries, fruit cup and milk option. (What were they thinking???)
You know that place–the simple longing for normalcy after a long bout with high and low blood sugars. All you want is to feel like yourself again; balanced, centered, in control. In the midst of the roller coaster ride, it’s difficult to remember that you will eventually make it back. You always do.
Before making it back to that normal zone of self-awareness, we’re different–not ourselves but not entirely not ourselves. I think that was a triple negative but you get the point, ultimately the one understanding to sane with diabetes: Continue reading →
I’m no stranger to the words “I apologize…” as my temperament in my younger years and Capricorn spirit have fueled some heated discussions. As I continue to morph into adhering to adult like practices I wanted to share my newest journey with the diabetes community. The recent realization that diabetes plays a major factor in my mood has allowed me to reflect and better process what lead to my apology. You need the background of my days events to better understand the beginnings to the epic blow-up with my mom.
I didn’t get a good nights rest because my home was uncomfortably warm due to an ancient AC unit and the Hawaii vs. Oklahoma time difference.
This short & sweet post is 100% dedicated to Liam as he and his family celebrate his FIRST T1D, diagnosis day anniversary. I’m aware that not every T1D chooses to embrace this special day, but about 7 years ago I chose to change my tune and truly hope you will consider doing the same.
Please shoot some +++ thoughts, prayers, messages, etc. for Liam and his family in the comment box below or on the DDG Facebook page. Every message helps, so don’t be shy!
(Note: This was written prior to the CrossFit/Coke/Diabetes dialogue, but given the context we have decided to run the article now. My take on the before mentioned incident is found at the bottom.)
Today, I’m calling us out. Alright, I’ll spare you. I’ll exclusively call myself out—with an analysis of my intentions and perspective. Time to dismount off my high horse. Time to drop my defenses. Time to stop making sure everyone knows that my diabetes is type 1 diabetes.
There was an incident that brought about this specific reckoning; that’s not to say it was in your typical enlightenment fashion. Summer beckoned us to the beach for beers and a bonfire. This kind of party is a bit of an institution here on Maui: every Sunday, lots of people, much hacky sack, recreational drugs, optional clothing, drums, and fire of all varieties. It was my first experience at such a party—sensory overload no doubt—and I crowded around the growing group of local drummers and fire dancers.
May 18th, 2015 I stepped into the ring without signing up for the bout. 29 days later – a new meter, numerous panicked phone calls to my endocrinologist & pharmacy, an assload of money paid out of pocket, tears shed, curse words spoken – the battle is over. As the tears, sweat and blood are wiped up from the boxing ring, I wish I could write about a victorious moment that wrapped up this ridiculous situation, but that is NOT the case. My diligence and Capricorn spirit forced me to continue swinging when I was SO close to being down for the count.
I would put money on the fact that every T1D has been threw the ringer when it comes to the insurance runaround, so I felt my recent battle was one worth documenting. DING, DING, DING!
This man has a story to tell and we jumped right into it. Mike Hosty is a musician by trade, playing 2-3 shows a week across the Southwest. His weekly Sunday institution at The Deli has entertained a couple of decades of students, leading to more than a few skipped Monday morning classes. We brought him on the podcast to hear about his health journey.
With a family history of a bicuspid heart valve where there should be a tricuspid aortic valve, Mike found out four years ago that he was at risk for some major complications–a cardiologist at a show he was playing diagnosed him with an echocardiogram right before a show. After an open-heart surgery resulting in a new cadaver valve, Mike has traveled the tough road back to playing gigs and being an active Dad. For anyone on the chronic disease path littered with adversity, Mike has plenty of words of wisdom to apply to the journey.
I feel like a broken record because I’ve written numerous posts on the effects stress has on my blood sugar, but a few events last week reinforced how diabetes can take over your life. My life/work scenario forced me to take a seat on an insanely large BG roller coaster and I’m still waiting for the downhill plunge.
I believe a timeline is in order to help you understand.
Thursday – BG 214.
Odd because it’s usually around 120 – 150, my preferred roll out of bed BG. Maybe I have an infection??? Continue reading →
It’s one thing to be the person receiving a type 1 diabetes diagnosis. It’s yours. It’s pretty straight forward for you. Take shots, count carbs, and survive. To be on the other side of the glass, as the parents, is another challenge in itself. Parenting can set the foundation for a successful life of type 1 diabetes management. The Fightmasters have an endless collection of diabetes experience, including crazy low blood sugars, insulin mix-ups, little league sports, and sending a kid to college. Their perspective is one of autonomy, flexibility, forgiveness, and empowerment. We joked, debated, and even came close to shedding a tear, although it was right in the middle of Oklahoma’s allergy season. Continue reading →
When Amber and I started up the DDG, our goal was to be real in a way that inspired folks to live their best lives. Be open and honest, keeping nothing to ourselves. We felt compelled to do it. We definitely thought we were doing it for others. That mission’s held true, partly, but only by our own ability to open and release. So, when today’s prompt for the 6th Annual DBlog Week asked what I kept to myself in regards to diabetes, my first thought was “I don’t keep anything to myself”. Then, as the soul often does, it allowed a few things surface.
By starting up a website–sharing lessons learned and Instagramming everything–it’s led me to an understanding of what my life with missing before. I didn’t openly share about the daily grind. Sure, I told friends and family that I needed some carbs. Sure, I never shied away from testing in front of them. Sure, I apologized for saying something I didn’t mean because I was high. Combined, when painting a picture of what each day is like, those moments were inadequate. Standing alone, those moments failed to do justice to the weight we bear. Continue reading →
Today is my birthday. I will eat cake–perhaps even some coconut milk ice cream. Special occasions deserve special levels of insulin.
Today, in the first year medical school curriculum, also marks the Introduction To Type 1 Diabetes lecture. Quite the comical coincidence.
On the day of my birth, I get to hear about the chronic disease I know most intimately. The disease that permeates my thoughts by the minute. I know about insulin. I’ve read the convoluted hypotheses on the cause, linked with autoimmunity. I can recognize the signs of hypoglycemia and hyperglycemia. I definitely know how to treat them. I’ve felt the link between epinephrine and cortisol, causing that random high blood sugar. If there were one lecture this year, that I probably won’t have to look at again, it’s this one–a real savings in time! That is a cool gift, but there’s more to it. Continue reading →
Today, I introduce a handbook. This is by no means an official guide, just a few realizations found through experience. Being high–when said like this in mixed company, expect perplexed looks and possibly explain our meaning of the “high” word–is an emotional and physical battleground. Confusion, anger, disappointment, and fatigue top my list of expected symptoms.
In a world with a pancreas who cares, we wouldn’t have to worry about being high. Since we don’t know anything about that, I figure it’s a good idea to have a handbook–a guide that presents a plan for how to react next time you’re high. Without a plan, we react on those emotions mentioned earlier. This handbook helps us respond. With that said, let’s get to Rule #1. Continue reading →
I was reasonably calm–eating dinner in the garage inside my car, the dish wasn’t getting a signal in the storm–trying to figure out if a tornado could drop close to my house. As I tune in, I hear what I’m conditioned to hear, “This is crazy. Stuff is flying everywhere. You won’t believe this, another tornado is on the ground in Moore.”
That’s where I grew up. We’ve been through May 3rd, May 20th, and countless other “get in the shelter” moments. I currently live about 20 miles north of Moore in Oklahoma City, a place that missed the twisters last night. Moore was not so lucky, again. Voodoo. Yet, as a family member of mine put it, “I wasn’t freaking out this time. I knew it was only an F1, so we were calm. The fence is down and I think we lost a few shingles but I’m heading to bunko.” Continue reading →