It was just by chance our paths would cross at a T1D kiddo and parent support group. I rarely attend and Rebecca and her husband James were guests that evening. When we split off into another room, Rebecca shared her heartfelt story to the parents and there was not a dry eye in the room. For many of us who have lived with T1D for decades, sharing the impact this disease has on our state of mind can be difficult to recollect, much less share. Rebecca found the courage and is turning a life altering experience into a philanthropic dream.
Traveling through multiple time zones with diabetes while being sedentary on the plane can be a lot to handle, but it didn’t keep Drew from his 12 month adventure across the globe. In this episode, he shares his mis-diagnosis, transitioning into life with T1D as a young adult, his love of circus acrobatics and lessons learned while traveling abroad. He is truly an inspiration to all people living with this disease and his laid back personality is warm and welcoming.
Recently, Mayor David Holt declared a pride week in my home town of Oklahoma City. It made me think – do I know any LGBTQ T1Ds? Yep, and not only is she my friend, she is one of the only people I know that has had diabetes as long as I have – hence the title – T1D dinosaurs. We are a rare breed and it was thrilling to sit with Bonnie and share what life was like 35+ years ago growing up with this disease. Bonnie and Jennifer did a fabulous job sharing how managing diabetes is sometimes a group effort.
I take pride in being a friendly stalker and scored an impromptu interview with American Idol super star and fellow Type 1, Crystal Bowersox while she was traveling through Oklahoma City. Her show was killer and I shared the evening with dear friends (Erik & Teneka). We sang together, enjoyed pizza and clinked glasses while sharing diabetes hacks. Crystal’s scrappy, no bullshit attitude made her the perfect guest.
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
I’m hitting the road and heading to Arkansas! It has been ages since I’ve hosted a Real Life Diabetes Happy Hour, but after being contacted by a fellow T1D – I’m packing up the Subaru and heading North. This event brings ALL people living with diabetes and their families together to be surrounded by folks who “get it“. Please join me Thursday, April 11th from 5-7:30pm at The Holler located at 801 SE 8th Street in Bentonville, Arkansas.
This fearless forty something T1D does an incredible job of sharing her story. Cynthia is a T1D veteran who has challenged and/or been fired by an endo. or two, faced diabulimia head on, fearlessly experimented with the newest medications on the market and laughed at the thought of being a high risk, geriatric pregnancy. Continue reading →
While on the road with the Real Life Diabetes podcast in Scottsdale, I had the pleasure of having dinner with Paloma Kemak (aka Glitter Glucose). Her story is very different from mine, but her diagnosis and overall mindset is entertaining and up-lifting. Paloma’s energy and ability to laugh while sharing her story is contagious and inspiring to PWDs from across the globe.
I’ve taken the Real Life Diabetes podcast on the road and spent a fabulous, BUT way too short amount of time in Scottsdale, Arizona. What better way to kickoff this epic adventure than attending a Beyond Type 1 meet up? I am thrilled to publish Podcast 60 with one of the Beyond Type 1 hostesses, Lauren Bongiorno; virtual Diabetic Health Coach, Entrepreneur, and Author of the Diabetic Health Journal. Continue reading →
After a tip from my sister and a little friendly stalking, I scored a killer interview with CNN Heroes award recipient, Maria Rose Belding. Above and beyond her work providing food for people in need, she is surpassing her goals while juggling life with Type 1 diabetes. In this episode she shares her passion to serve others while not letting T1D slow her down. Continue reading →
Kate Hall, is like many of us in the diabetes community – unstoppable and she decided early on that Type 1 diabetes won’t keep her from pursuing her dreams. She is an inspiration to us all and does a phenomenal job sharing her story on the road to becoming a 2020 Olympian.
After a long hiatus, I’m back and doing my best to use new technology… I chose to kickoff this new wave of podcasts with a “hot topic“, insulin affordability and accessibility. The DOC (diabetes online community) has been harping on this for ages, but as the topic is now international news after a recent wave of “published” deaths due to insulin rationing, it was time to chat with the author of Insulin’s High Cost Leads To Lethal Rationing, Bram Sables-Smith.
For all of us, this was a new season. In the time away from each other (less than a year), Mark has moved back to Northwest Arkansas, started a new job with Medtronic, and committed to a diabetes life with the new 670G insulin pump. And, as expected, the conversation went off the rails from the anticipated agenda and into even realer subjects: sex, sleep, and chick-fil-a. Continue reading →
Enthusiasm and authenticity are contagious. In just an hour of speaking with Daniele, we caught the wave of passion toward bettering our own diabetes management. Her own transformation–a completely authentic one driven by her own T1D experience–gives her a platform to coach from the heart. She gets the pitfalls. She understands the road to success. She has a balanced approach based upon a Nutritional Science degree, Personal Training certification, and 1000 hours of psychology training. A conversation centered on how to craft an optimal attitude toward new habits, this podcast serves as the perfect launch into 2018. And, as no surprise to anyone, moments of ridiculousness and laughter are plentiful.
An hour before her emcee duties at the Harold Hamm Diabetes Center’s Connect+Cure Gala in OKC, Nicole Johnson joined us and shared her perspectives since winning Miss America in 1999. From the surprising career trajectory afterward, to dating and diabetes scenarios, we embraced the whole journey. Per the usual flow of the show, many laughs were had, and we all got to know each other. Continue reading →
How does chronic disease inspire me? I love my life, regardless of the type 1 diabetes I’ve shared my life with for the last 46 years. Yet, there are a few things about type 1 diabetes that I do mind: Continue reading →
We’ve all heard it before: wow, how can you do that? You’re so strong. You’re so brave. You’re so courageous, ad nauseam. I have people staring at me while I take insulin injections, like curious little puppies trying to get the best view. We’re hailed as warriors, and that we should strut around like diabetes is a badge of courage on our arms. AND it IS difficult; it’s the most difficult thing I’ve ever done. Continue reading →
When I was diagnosed with Type 1 diabetes, my first feeling was perhaps different than you might expect: relief.
The months leading up to my diagnosis were some of the worst of my life. I had been flying from Washington DC to the West Coast and back on a weekly basis, and I thought the constant red-eyes had finally gotten the best of me. I was battling fatigue, circulation issues, and weight loss, and I could barely get any sleep. I just felt awful. Continue reading →
One of our favorite podcast guests is back! Back in the fall, he joined us on Podcast 32 where he shared his love of Chick-Fil-A, coffee, Equal and Omnipod. We highly suggest a retrograde listen before hopping into this show.
During this go round, we catch up on life, hear about an epic insulin prescription journey, discuss what diabetes maturity means, and laugh hard.
To the support the show, check out our Paypal link for subscription options.
Lets get something straight – I don’t like you one bit. I wouldn’t wish you on my worst enemy, and my heart breaks every time I hear of a newly diagnosed kid. Most days I really wish you’d just disappear, but it’s been 28 years now… you don’t seem to be going anywhere, and frankly hating you is getting boring.
Since you like to change things up on me ALL THE FREAKING TIME, I thought I’d shake it up a bit and tell you why I love(ish) you. I bet you didn’t see this coming.
It’s a stretch to say, as a person with diabetes, that I’ve always been on top of my health. The truth is that I struggle with diabetes burnout often, and I am not afraid to admit it.
In life, no one ever wants to admit that they are struggling or hitting a rough patch in their lives. No one wants to show weakness or sadness to their peers for the fear of being judged or looked down upon. THAT is the mindset that I have been battling since my diagnosis. Continue reading →
At the age of 21, I was diagnosed with Type 1 Diabetes during my first semester of graduate school. I was a go-getter, an over-achiever, and on track to take the career world by storm. The months leading up to my diagnosis were painful, as my pancreas began to deteriorate, unbeknownst to me. Slowly, my energy levels depleted and I struggled to find an ounce of motivation to complete the simplest tasks. My body had been hijacked. Continue reading →
Riding 800 carbs of fruit to steady glucose control? Huh? Robby Barbaro (a person with type 1 diabetes) joins the podcast from Santa Monica to bust paradigms by introducing the high-carb, low-fat philosophy to revolutionize type 2… and type 1 diabetes management. Currently, Robby is a plant-based diabetes coach: hosting retreats, 1-on-1 coaching sessions, and blogging from MindfulDiabetic.com. If you, like us, have always been curious about the mysteries of insulin resistance, this is the avenue to enlightenment. We laughed, we learned, and we left inspired to push the boundaries of our perceived diabetes knowledge. He walks the walk and talks the talk.
We’re SO excited to participate in our first World Diabetes Day. With so much DOC love, wonderful causes and organizations, we created a short video to show our support. We hope you enjoy this impromptu video – Diabetes Daily Grind style. Cheers to the highs and lows everyone.
Whether you view dating as an enticing, fun experience or there’s nothing more you’d rather run and hide from, diabetes may be one extra thing to consider (and it’s important that you do)! As a young adult who has lived with type one her whole life, albeit minus 4 years, there are many questions I ask myself when it comes to dating:
When/How do I tell them about my diabetes?
What if there’s an emergency and they don’t know I have diabetes?
You never know when you’ll run into someone who shares a similar life philosophy, but after a chance meeting in college, Mark Carter resurfaces on Okie soil. He’s real and doesn’t hold back about his love of Equal and Chik-Fil-A. In this episode, our longest one yet, he shares his journey of being an ambassador for people with diabetes who don’t have a voice. If you’re brave enough to listen to the whole thing, we hope you’ll leave with the thought – is diabetes a blessing or a curse?Continue reading →
I’ve read a lot about the word “no” this year. It all started with Shonda Rhyme’s Year of Yes in which she actually wrote an entire chapter about saying no. She explained how learning to say no fortified her yeses. She says, “No is a complete sentence. I’ve heard that cliché over and over. So I decided to treat no in the same way I treat saying thank you. Say no and then don’t say anything else.”
Amber loves to travel so she hit the road and ventured to Texas (one state away from our OKC home). What better way to meet fellow PWDs than traveling the southwestern countryside? Before heading out she contacted the American Diabetes Association to see if anyone in their part of town had a story to share. They totally hooked her up with Deirdre Murphy, a lovely woman who went from an original Type 2 diagnosis to eventually being re-diagnosed with Type 1. In the 30th show, Deirdre shares her 12+ year journey and reflects on living life with T2D… and now T1D, eventually coming to a place of relief at the type 1 prognosis (a rare event).
When I received my invitation to serve as a Peace Corps volunteer in Ukraine, it included a primer on life in Ukraine, with general information on history, geography, transportation, culture and a small section on food. It should come as no surprise to other PWD, but I have a sometimes wonderful and sometimes dangerous relationship with food. The information shared they’re heavy on meat and vegetables, with seasonal access to produce, and the majority of grocery shopping is done in open air bazaars and small shops. This was helpful, but didn’t minimize my anxiety when it came to carbohydrate counting or questions about glucose tab availability. Continue reading →
Imagine putting your child with type one diabetes (T1D) to bed with less fear of a dangerously low blood sugar. If you have T1D, imagine doing a triathlon or a belly dancing class your friend keeps bugging you about with confidence your blood sugar will remain stable along with your energy levels. The process I used to achieve near normal blood sugar took some time, commitment, experimentation, and sacrifice. All people with T1D have unique physiologies and my experience may not extrapolate to anyone else. However, the process I used is inexpensive and has no side effects, but the benefits could be priceless. Continue reading →
Remember doing those paint-by-number sheets when you were a kid? It seemed magical when a confusing canvas of intersecting lines and random numbers transformed into a circus elephant or something equally amazing. I remember the joy I experienced when I produced my first masterpiece and the new found love I had for being an “artist.” Continue reading →
Amber and Ryan sweet talked past guest, fellow T1D, and long-time diabetes camp enthusiast, Kelly McKeever, into joining a summer edition of the show. Kelly’s had 13+ years at camp and shares what keeps him coming back, now in a medical personnel role. In this episode they catch up on life with diabetes, cutting edge developments in diabetes tech, the camp life experience, what we learned about ourselves, and the value of having “a diabetes community in person”. Continue reading →
I arrived in Ukraine with my life packed into two suitcases (one of which was half filled with medical supplies). My first stop as a Peace Corps trainee was an old sanitarium just outside the capital city of Kyiv. There, my group of volunteers had a few buffer days in which Peace Corps became real: we learned which language we would study, where our 10-week language and job training would take place, which other volunteers would be in our 4-5 person training ‘cluster’, and we filled out a lot of paperwork. This is also where I had to decide how and to whom I would tell about my diabetes. Continue reading →
What started as a mini pod quickly blossomed into a full blown podcast once Amber began diving into the nitty gritty as to how Tara Layman (T1D Exposed co-founder) scored a new pancreas and kidney. The question of the hour – Will two pancreases and three kidneys reverse her Type 1 diabetes diagnosis? Well, in this episode they chat openly about the pre surgery process, switching from insulin shots to a handful of pills, how important it is to have a support team and what the future holds for someone who no longer “technically” has Type 1 diabetes. Continue reading →
Several years ago I set off for an insurance appointment about 60 miles from my home in Carlsbad, CA. I had eaten lunch and felt pretty good so I hit the road. It was a rainy day in Southern California and when I was finished with the appointment I headed home. After a few miles I started to feel a little light headed began to sweat a little, but I didn’t think anything of it. I kept driving. Continue reading →
What’s the recipe for innovation? Funny you ask, we were thinking it went a little like this: timing, drive, wit, guts, luck, and a type 1 diabetes diagnosis. At least in Amy Tenderich’s story, all of those factors came together magically when she received her diagnosis in 2003. Continue reading →
I was diagnosed with type 1 when I was thirteen. Shortly after, a fellow traveler broke it down for me: you can either control your diabetes or you can let it control you. A rabble rouser froma young age, I decided quickly that if those were my choices, I’d choose option A. At the time, I didn’t realize how difficult it would be to make that decision each day, but gradually it helped me develop a personality trait I see in a lot of folks with type 1: we love a challenge, and we love to prove people wrong. When I decided to be a Peace Corps Volunteer, I went into it with that same bullheaded mentality that had been an almost constant companion since diagnosis. Continue reading →
I have a friend who had her first baby a week before I had my Lily. She announced her pregnancy one week after taking an over-the-counter test. She posted an emotionally ecstatic, over-the-moon announcement on Facebook, posted pictures of her dog with baby shoes on Instagram, and from that day forward used social media daily to share ultrasounds, belly photos, pregnancy workout selfies, baby clothes, and so much more.
We got the green light to interview IndyCar driver and fellow guy with type 1 diabetes, Charlie Kimball. He not only keeps his car on the track, he stays out of the low BG pits. In this episode he shares his father’s in-car orange juice invention, his daily attitude, and how he became the (sort of) first T1D IndyCar driver. Continue reading →
Everyday I work with people with diabetes who struggle to lower their A1C on their own, with losing weight, with insulin resistance, with achieving stable and predictable blood sugar levels, with getting into an exercise/nutrition routine, and with controlling food cravings. Continue reading →
When I was ten years old, my doctor told my mom I would never have children. I didn’t hear these words; I was laying in a diabetic coma that lasted for 4 days. When I woke up, I woke up to a new life, a diagnosed life that included injections, meal planning, and glucometers. When my mom finally broke the news to me a few months later, the last thing on my mind was having kids someday.
I’m settling into my life with diabetes and ultimately, the whole experience has been a lot easier than I thought it would be. However, there are a few pretty annoying aspects of everything. I’ve decided to make a list:
The Bag: I left the hospital with the most hideous bag I’ve ever seen to carry my supplies. It was a smushed cheap camouflage lunch box. Seriously. I had to be seen at Panera with that thing. Short-term, I bought a black make-up bag from CVS. I was surprised when I found some great bags online made specifically for carrying diabetes supplies. I got mine from this SITE and love it.
As a freshman in high school, if someone had asked me what type 1 diabetes was about two months ago, I would have been clueless. I kind of knew about Type 2 and I might’ve had a sense that there was a second type of diabetes, but… that was about it.
A few weeks before my diagnosis, I hadn’t been feeling like myself and was thirsty all of the time. My mom and I decided that should it persist throughout the next week or so, I would go to the doctor. On Thursday morning I felt fine, except for this new usual thirstiness. About mid-morning my stomach started hurting a little. It wasn’t that bad, so I figured it was just something I ate. I had biology class right before lunch, and we were doing a lab on yeast fermentation. While my teacher was explaining part of the procedure, I started feeling dizzy. It got worse and worse, and by the time I realized something was actually wrong, I couldn’t really do anything. Out.Continue reading →
Routine–we love to hate it, especially with a demanding disease like diabetes, which requires hyper-vigilance. No sane person would set their alarm to wake up during the night to check their blood sugar, diligently count carbs before a meal, or force themselves on the treadmill at 9 pm. But we do it, because without the effort, where would we be? The science speaks for itself.
So, how can we turn a ‘have to’ into a ‘want to’. This is where the sister science of Yoga and Ayurveda take center stage. The word Ayurveda means the science of life. As a traditional Indian method of healing, it uses the natural world to help us understand what creates balance and imbalance. Continue reading →
Nearly 15 years ago in September, my 10 year-old brain and body was forced to comprehend an absurd and sudden diagnosis that has subsequently shaped my life as an adult. Type 1 diabetes (T1D) in my eyes then, was something I had never heard of, and surely I’d end up blind like my aunt, taking several shots a day for the rest of my life.
Looking back now at the initial diagnosis, T1D has ultimately shaped my goals and dreams. Although, I will say it took me a time or six to get that through my head, especially during college, and to stop putting my diabetes on the back burner, ignoring the fact I had to deal with this disease on a daily basis. That was the toughest issue I’ve had to face and overcome with T1D to date. Ignoring my diabetes and trying to live the life all of my friends were living during college did nothing but land me in the hospital on several occasions and leave me with hospital bills to pay at 22 years old. Continue reading →
“Just remember – life is like a sine graph”, my mother always touted, long before I was diagnosed with type 1 diabetes (at the “adult” age of 18). Growing up with a dad who was a math professor ensured that I knew from a very early age what the sine function was. It goes up, and then down. And then back up. She always said it to make me feel better – after losing a tennis match, getting a lousy grade on an exam or fighting with my high school boyfriend. “Head up Maria – remember – life is like a sine graph.” Continue reading →
A Little History About How We Met… Liam and I met during our first year at Trent University in Peterborough, Canada as we lived in the same residence building and were part of a pretty tight knit group of friends. The very first time I spoke to Liam was during our frosh week. He was about to run a bouncy castle obstacle course race and I was behind him in the lineup. He jumped into the obstacle course and had been gone for a couple minutes. Our crew began to question why he was gone so long because the obstacle was only supposed to last about 30 seconds. Just then, Liam walked around from the back of the obstacle course (the end of the course was actually at the front) and looked very disoriented and upset. His upper lip was incredibly swollen and cut up and he was complaining of neck pain. He had jumped out of the back of the bouncy castle and landed face first onto the ground.
An Introduction To Diabetes: The next morning in the cafeteria, the first words I EVER said to Liam were “merry Christmas fat lip” because his lip was still swollen from face planting the night before and was wearing a red and green outfit. He was embarrassed, but loved the silliness of my comment and we became very close after that. From the beginning, I had no idea Liam had diabetes. He hid his pump under his shirt and never tested his blood or changed his pump sites around me. Diabetes never held him back from being athletic and energetic so I never suspected this young crazy teenage boy actually had an autoimmune disease.
A couple weeks into university I asked Liam what he was allergic to, after noticing he was wearing a medic alert bracelet. He laughed and said he was allergic to sugar, or a type 1 diabetic. I wasn’t really sure what this meant. I only knew one other PWD, my aunt who was recently diagnosed. I didn’t know Liam all that well at that point and wasn’t comfortable asking him tons of questions about diabetes. I was nervous, didn’t want to sound dumb, worried I would embarrass or upset him. I never thought any less of Liam or that he was fragile or weak because of diabetes. It didn’t change my view on him whatsoever. He was still silly, loud and had an endless amount of energy so I didn’t think diabetes could be that serious of an illness. His explanation was so brief and nonchalant, which helped to show me that it wasn’t something that would stop him from living properly in any way. Discovering Liam has T1D encouraged me to learn more about diabetes and how I could help him. I did most of my learning through asking questions and he was very open about it.
This is something I believe no type 1 should be afraid to do. Asking questions and being open to answering questions spreads knowledge and curbs incorrect and therefore annoying assumptions about type 1.
I was obese, ill, tired, suffering from major depression and diagnosed with Type 2 diabetes. My blood sugar was out of control… no wonder I was feeling so unwell!
Back in September of 2014 I was diagnosed with Type 2 diabetes. I had been feeling poorly for quite some time, was overweight and out of shape. At 35 years old and 5′ 8″, I weighed in at almost 20 stone (280 lbs.). I drank a lot of alcohol and smoked roughly 20 cigarettes a day. The alcohol was a big problem and it had been for years. This was more than likely contributing to my depression, but I didn’t want to admit it. The alcohol helped me block out the negative thoughts – and this is the “vicious circle“. Continue reading →
Over drinks with T1D friends one night, we (Kat and Tara) were talking about fundraising ideas to support our beloved diabetes camp (where we had met the summer before), and other amazing diabetes non-profits. It can be so hard to ask friends and family for money all the time when there are so many worthy causes. We laughed about how ridiculous it would be to start a T1D nude calendar. We kept joking about it, then seriously talking about it, and decided we had to make it happen.
What started off as a joke between friends turned into something beautiful as we recruited people to participate in the project. It is interesting to us that diabetes is often called an invisible disease. Sometimes it feels anything but invisible with the bumps and bruises, scar tissue and patches of sticky adhesive residue, gadgets and tubing, and constant beeping. And that’s only the tip of the iceberg. Diabetes can definitely leave its mark on your body, and we feel this is especially apparent when naked. During their photo shoots, T1Ds shared stories of struggle and acceptance, of eating disorders and complications, and also of finding peace.
There was a lot of laughing and a lot of crying. The love for bodies and all their amazing abilities, and the exasperation of living with a chronically ill body that requires so much mental attention to keep alive really resonated with us. It’s about acknowledging the struggle and changes to your life and body while celebrating your existence and abilities. The calendar reminds us to practice gratitude for all the amazing things are bodies are able to accomplish each day with insulin.