I was honored to be chosen as one of ten Patient Voice Contest winners for the DiabetesMine Innovation Summit. During the two day event, I was surrounded by industry leaders, tech gurus, genius creators of diabetes apps, and many fellow advocates. This Summit coalesced the mother lode of advancements in diabetes management, and a few of the brave souls in attendance took time to chat with me. Though our interviews were brief, each guest radiated an optimism and passion for helping to better the lives of those of us living with diabetes, and I hope their energy inspires you as well.
A few months ago, I received a heartfelt video message from a person I’d never met, and it had me and my friends and family in tears. It was exactly the boost I needed to keep going. Dr. Fox is one of the good guys – the doctor who truly cares about his patients and their sense of wellbeing after leaving his office. His holistic mind, body, spirit approach is one you rarely, if ever, see in the endocrine world. He has taken a chance by stepping out of the traditional medical community box and intends to make a much larger impact on the diabetes community with his programming and overall approach to treatment. Continue reading →
This globetrotting T1D just embarked on a 12-month remote year journey with a focus to reach one million people living with diabetes. Her candid approach, charismatic attitude, and ability to touch on hot topics will transform lives and prevent diabetes burnout. With 39 1/2 years of experience and a handful of degrees, Dr. Jody is an expert in all things diabetes making her the perfect guest.
It is always a pleasure to connect with fellow diabetes advocates, Rev Run and Justine Simmons. They radiate positive energy and had me laughing with their ability to call each out when it comes to healthy lifestyle choices. There is no doubt, their passion to rewrite their family history with Type 2 diabetes is contagious and the Simmons kids are teaching them a thing or two.
It was just by chance our paths would cross at a T1D kiddo and parent support group. I rarely attend and Rebecca and her husband James were guests that evening. When we split off into another room, Rebecca shared her heartfelt story to the parents and there was not a dry eye in the room. For many of us who have lived with T1D for decades, sharing the impact this disease has on our state of mind can be difficult to recollect, much less share. Rebecca found the courage and is turning a life altering experience into a philanthropic dream.
Last December, Anne came to the rescue, offering help during my insulin crisis while in San Antonio, Texas. She, like many people in the DOC (diabetes online community) stayed in contact with me while I resolved the problem. She is a leader in the diabetes community and her wealth of knowledge has helped so many T1Ds and their families.
Traveling through multiple time zones with diabetes while being sedentary on the plane can be a lot to handle, but it didn’t keep Drew from his 12 month adventure across the globe. In this episode, he shares his mis-diagnosis, transitioning into life with T1D as a young adult, his love of circus acrobatics and lessons learned while traveling abroad. He is truly an inspiration to all people living with this disease and his laid back personality is warm and welcoming.
Recently, Mayor David Holt declared a pride week in my home town of Oklahoma City. It made me think – do I know any LGBTQ T1Ds? Yep, and not only is she my friend, she is one of the only people I know that has had diabetes as long as I have – hence the title – T1D dinosaurs. We are a rare breed and it was thrilling to sit with Bonnie and share what life was like 35+ years ago growing up with this disease. Bonnie and Jennifer did a fabulous job sharing how managing diabetes is sometimes a group effort.
I’ve been preparing this heartfelt episode for quite some time, and after months of research and polling friends & family, I am thrilled to announce Patreon, a phenomenal and trusted membership platform. All of the Real Life Diabetes podcast episodes will remain free, but members will receive perks. There are five tiers – all of which are affordable so I hope you will take a moment to check it out.
I’m packing up the Subaru and heading to Joplin, Missouri to attend the Stick It To Diabetes fundraiser hosted my the Mercy Foundation. What better way to bring PWD together than a happy hour? Continue reading →
I take pride in being a friendly stalker and scored an impromptu interview with American Idol super star and fellow Type 1, Crystal Bowersox while she was traveling through Oklahoma City. Her show was killer and I shared the evening with dear friends (Erik & Teneka). We sang together, enjoyed pizza and clinked glasses while sharing diabetes hacks. Crystal’s scrappy, no bullshit attitude made her the perfect guest.
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
I’ve been holding onto this post for awhile, but while geeking out on Netflix documentaries, I stumbled upon Brené Brown’s – A Call to Courage. Damn her! I’ve been a huge fan of Brené and find she pops into my life exactly when I need her. It is time for me to be vulnerable… Continue reading →
I’m hitting the road and heading to Arkansas! It has been ages since I’ve hosted a Real Life Diabetes Happy Hour, but after being contacted by a fellow T1D – I’m packing up the Subaru and heading North. This event brings ALL people living with diabetes and their families together to be surrounded by folks who “get it“. Please join me Thursday, April 11th from 5-7:30pm at The Holler located at 801 SE 8th Street in Bentonville, Arkansas.
This fearless forty something T1D does an incredible job of sharing her story. Cynthia is a T1D veteran who has challenged and/or been fired by an endo. or two, faced diabulimia head on, fearlessly experimented with the newest medications on the market and laughed at the thought of being a high risk, geriatric pregnancy. Continue reading →
While on the road with the Real Life Diabetes podcast in Scottsdale, I had the pleasure of having dinner with Paloma Kemak (aka Glitter Glucose). Her story is very different from mine, but her diagnosis and overall mindset is entertaining and up-lifting. Paloma’s energy and ability to laugh while sharing her story is contagious and inspiring to PWDs from across the globe.
The Diabetes Daily Grind and Real Life Diabetes podcast is growing and in order to do so, we need help. We’re pursuing every avenue possible and hope you will take time each day to vote until April 1, 2019. CLICK on the link below to vote and please share with the world!
I’ve taken the Real Life Diabetes podcast on the road and spent a fabulous, BUT way too short amount of time in Scottsdale, Arizona. What better way to kickoff this epic adventure than attending a Beyond Type 1 meet up? I am thrilled to publish Podcast 60 with one of the Beyond Type 1 hostesses, Lauren Bongiorno; virtual Diabetic Health Coach, Entrepreneur, and Author of the Diabetic Health Journal. Continue reading →
After a tip from my sister and a little friendly stalking, I scored a killer interview with CNN Heroes award recipient, Maria Rose Belding. Above and beyond her work providing food for people in need, she is surpassing her goals while juggling life with Type 1 diabetes. In this episode she shares her passion to serve others while not letting T1D slow her down. Continue reading →
It has been over a year since I last shared a post, but with two snow days I had plenty of time to reflect on what the past year has taught me. 2018 was full of new challenges, many of which were diabetes related. After 35+ years of living with T1D, you would think I’ve dealt with it all, but that is not the case. Below are a few highlights, lessons learned and things to ponder.
I became a Dexcom Warrior and had the privilege of trying the new G6 before it was released to the public.
I shared my T1D story, per the request of the Oklahoma Diabetes Legislative Caucus, to insurance providers in an effort to change future coverage for people living with the disease. It worked. Report to follow in a future post with my testimony.
Kate Hall, is like many of us in the diabetes community – unstoppable and she decided early on that Type 1 diabetes won’t keep her from pursuing her dreams. She is an inspiration to us all and does a phenomenal job sharing her story on the road to becoming a 2020 Olympian.
After a long hiatus, I’m back and doing my best to use new technology… I chose to kickoff this new wave of podcasts with a “hot topic“, insulin affordability and accessibility. The DOC (diabetes online community) has been harping on this for ages, but as the topic is now international news after a recent wave of “published” deaths due to insulin rationing, it was time to chat with the author of Insulin’s High Cost Leads To Lethal Rationing, Bram Sables-Smith.
Oklahoma is thankful to have an upcoming state senate candidate who in not only a second generation educator, but the parent of a child recently diagnosed with Type 1 diabetes. In this episode we touch on her son’s diagnosis, insulin affordability & accessibility, and Carri’s day to day life on the campaign trail with three kids. Please note – this is not a political plug, but just an opportunity to have someone in her shoes share life with managing the real world and a child with Type 1 diabetes.
As promised, the Diabetes Daily Grind is happy to share what’s on the horizon for the blog and the Real Life Diabetes podcast while catching up with one of our favorite guests. Over a few glasses of wine, Amber has a heartfelt discussion with Trish, T1D parenting badass to two sons with T1D whose fighting the good fight on Capitol Hill as a diabetes advocate. Continue reading →
For all of us, this was a new season. In the time away from each other (less than a year), Mark has moved back to Northwest Arkansas, started a new job with Medtronic, and committed to a diabetes life with the new 670G insulin pump. And, as expected, the conversation went off the rails from the anticipated agenda and into even realer subjects: sex, sleep, and chick-fil-a. Continue reading →
In life, we meet people who leave us feeling lighter and rejuvenated–Tonya’s one of those people. Every word she speaks is embodied in her own life. She’s curious and open-minded, a professional student in healthy living. As a nurse at Wellness and Longevity (an functional medicine clinic in Oklahoma City), she works with patients daily on optimizing their foundations for health. In her second episode (refresh with episode 10), we focus on the foundations of a vital life and how to reengage with meaningful resolutions. Diabetes can be a reflection of how we’re eating, moving, sleeping, and managing the mind. Tonya helps us get back to those basics, letting diabetes management reflect back out.
Enthusiasm and authenticity are contagious. In just an hour of speaking with Daniele, we caught the wave of passion toward bettering our own diabetes management. Her own transformation–a completely authentic one driven by her own T1D experience–gives her a platform to coach from the heart. She gets the pitfalls. She understands the road to success. She has a balanced approach based upon a Nutritional Science degree, Personal Training certification, and 1000 hours of psychology training. A conversation centered on how to craft an optimal attitude toward new habits, this podcast serves as the perfect launch into 2018. And, as no surprise to anyone, moments of ridiculousness and laughter are plentiful.
An hour before her emcee duties at the Harold Hamm Diabetes Center’s Connect+Cure Gala in OKC, Nicole Johnson joined us and shared her perspectives since winning Miss America in 1999. From the surprising career trajectory afterward, to dating and diabetes scenarios, we embraced the whole journey. Per the usual flow of the show, many laughs were had, and we all got to know each other. Continue reading →
With such busy lives these days it has been almost two months since team DDG crafted time to catch up. As everyone in the diabetes community knows, we all need our T1D bestie time chatting about life with the disease SO… after a long day at work we penciled in this episode to review life, recap breaking diabetes news, and discuss listener questions. We talk allergies, food choices, fight or flight response, T2D compassion, defense mechanisms, T1D anxiety and an honest conversation about how our diabetes management is constantly changing.
If you’re one for free-flowing conversation, sit on back with a beverage of choice (if not driving) and enjoy.
Honesty and perspective–two traits people with diabetes cherish from those who give us advice about food. Christina has both. Having served with Ryan at Camp Blue Hawk on the medical staff, he was ready to pick her brain about her thoughts on paleo vs vegan, parenting pitfalls in diet, and how she found dietetics. The result? A conversation that stays open-minded and focuses on the big picture: steady blood sugars without compromise to long-term longevity. Oh, and as a show first, Amber arrived midway through the conversation by surprise. Continue reading →
We’ve all heard it before: wow, how can you do that? You’re so strong. You’re so brave. You’re so courageous, ad nauseam. I have people staring at me while I take insulin injections, like curious little puppies trying to get the best view. We’re hailed as warriors, and that we should strut around like diabetes is a badge of courage on our arms. AND it IS difficult; it’s the most difficult thing I’ve ever done. Continue reading →
When I was diagnosed with Type 1 diabetes, my first feeling was perhaps different than you might expect: relief.
The months leading up to my diagnosis were some of the worst of my life. I had been flying from Washington DC to the West Coast and back on a weekly basis, and I thought the constant red-eyes had finally gotten the best of me. I was battling fatigue, circulation issues, and weight loss, and I could barely get any sleep. I just felt awful. Continue reading →
In regards to feels, diabetes provides an endless supply to the senses. We become numb to the finger-sticks, with an occasional 1 in 100 resulting in a real sting. To an extent, injections and pump site changes become familiar or at least expected. With respect to the most commonly asked questions of people with diabetes, here’s another addition to the list: does that still hurt? My response usually follows these lines: Well, no. It’s still the same pain I’ve always felt, but now I’m used to it. With most of our emphasis on our acclimation to these not-so-positive sensations, the single best feeling in the diabetes world remains unexplored and never taken for granted. Continue reading →
We’re an analytical bunch. Numbers flow through our brains alongside most thoughts. Numbers can dictate our emotional states–ever been feeling great, get a blood sugar, see it’s at 250, and then start to feel high? That blood sugar number courses through everything we do, everyone we meet, and everything we think. But, does it have to? Continue reading →
One of our favorite podcast guests is back! Back in the fall, he joined us on Podcast 32 where he shared his love of Chick-Fil-A, coffee, Equal and Omnipod. We highly suggest a retrograde listen before hopping into this show.
During this go round, we catch up on life, hear about an epic insulin prescription journey, discuss what diabetes maturity means, and laugh hard.
To the support the show, check out our Paypal link for subscription options.
It’s a little bit after six in the morning, and I find myself, as I do most mornings, at work at Remington Park. The sun is just peeking over the horizon and the racetrack is beginning to come alive. Horses snort and buck on the mechanical walkers, grooms move to and fro saddling and bridling the ones headed to the track for training, farriers and jockey agents and veterinarians begin their morning rounds, while the trainers and assistants organize their days. I sit in my truck sipping coffee, having completed my early morning chores and preparing myself for another busy day. A quick glance at my Pebble watch brings a smile to my face, as I see the impossibly straight line and the reading of 113 mg/dL, which tells me that my daughter is sleeping peacefully in her bed as she has all night, and is safe. Continue reading →
We love realness. Much of type 1 diabetes marketing revolves around this idea of, “Hey, Nick Jonas is super cool and all people with type 1 can sing and dance!”. Don’t get us wrong, we love Nick Jonas and obviously he has struggles too. But, what about just a couple of normal bros who have diabetes, their journey, and how they’re changing diabetes lives in the real world? That’s the story we tell today, with Chris “Pick” Pickering from the TheBetesBros. (On Instagram or Twitter @TheBetesBros)
Whether it’s education in schools, one-on-one counseling, or challenges with athletes out in the community, Chris is taking his own experience and helping people feel what it’s like to have diabetes. We love that impact, and you’ll love his stories!
Lets get something straight – I don’t like you one bit. I wouldn’t wish you on my worst enemy, and my heart breaks every time I hear of a newly diagnosed kid. Most days I really wish you’d just disappear, but it’s been 28 years now… you don’t seem to be going anywhere, and frankly hating you is getting boring.
Since you like to change things up on me ALL THE FREAKING TIME, I thought I’d shake it up a bit and tell you why I love(ish) you. I bet you didn’t see this coming.
Rolling into the second half of my 34th year of living with Type 1 diabetes, I can’t help but reflect on what has led me to my current state of T1D affairs. It wasn’t until meeting fellow Diabetes Daily Grind co-founder, Ryan, that I began talking about my life with the disease. This journey has brought on an incredible number of “ah-ha” moments, recognition of suppressed anger and “moving on” milestones. Continue reading →
It’s great connecting with past podcast guests (see episode 19). I got word that Amy McKinnon was traveling the world again, motivating me to get in touch. Amy was kind enough to give us insight into her recent completion of the Boston Marathon (no small feat).
Q: What adjustments in your game plan did you make for this marathon, compared to past races?
A: Leading up to Boston I had a couple of injuries that took me off my feet completely for a few months, so I wasn’t where I wanted to be with my fitness level prior to a race. Because of this, my pace would be a lot slower, so I changed my race plan completely. I decided to focus on keeping my BGLs in range the entire race while enjoying the atmosphere of the crowds and running the prestigious Boston Marathon. I went into the marathon with a very light-hearted approach, compared to my usual competitive self.
Finally, the long-promised, definitely under-delivered Ask Us Anything podcast is back. The questions rolled in from Oregon, LA, NYC, and a suspected location below the Mason-Dixon line. Of note, we looked back at those practices we loved from our parents… and those we would advise against, kindly. As it turns out, low blood sugar symptoms change over time, and we covered our own evolution. Par for the course in most episodes, we politely disagreed about the distinction between type 1 and type 2 diabetes. Continue reading →
Over the past three years of binge reading other PWD’s posts and interviewing people who live with diabetes, the common theme has been our ability to recognize low BGs changes over time. In my adolescent years, my nose would feel numb and I would get shaky. At that point in my life I was checking my BG every once in awhile so my body took the reigns and made sure I knew something wasn’t right. It was all about trial and error – I feel woozy and am shaking so I would down a packet of honey or four and start to feel better. Continue reading →
Listening to someone give advice, you can usually tell the level of authenticity behind the statements. When chatting with Dr. Stephen Ponder, there’s no question about authenticity–this sugar surfing wisdom is a part of his being. Growing up with type 1 diabetes (for 50 years), becoming a CDE (certified diabetes educator) and then a pediatric endocrinologist, passion fuels a life committed to inspiring people with diabetes to live a normal, possibly extraordinary life. Continue reading →
Living with diabetes is far from easy–checking BGs multiple times a day, giving yourself insulin injections, and changing pump sites every three days (at least you’re supposed to…). I was diagnosed with T1D at the age of two. Luckily, I was raised by wonderful parents who taught me very early on to be independent, giving my first injection at the age of four and learning the carb vs. insulin ratios at six. Continue reading →
It started three weeks ago. I was sitting at my desk at work and was overcome with a feeling of dizziness, lightheadedness, and a terrible headache. I know what you’re thinking but no, it was not low blood sugar. My symptoms continued and progressed for the next few days. Continue reading →
It’s a stretch to say, as a person with diabetes, that I’ve always been on top of my health. The truth is that I struggle with diabetes burnout often, and I am not afraid to admit it.
In life, no one ever wants to admit that they are struggling or hitting a rough patch in their lives. No one wants to show weakness or sadness to their peers for the fear of being judged or looked down upon. THAT is the mindset that I have been battling since my diagnosis. Continue reading →
I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me… Continue reading →