Traveling through multiple time zones with diabetes while being sedentary on the plane can be a lot to handle, but it didn’t keep Drew from his 12 month adventure across the globe. In this episode, he shares his mis-diagnosis, transitioning into life with T1D as a young adult, his love of circus acrobatics and lessons learned while traveling abroad. He is truly an inspiration to all people living with this disease and his laid back personality is warm and welcoming.
Recently, Mayor David Holt declared a pride week in my home town of Oklahoma City. It made me think – do I know any LGBTQ T1Ds? Yep, and not only is she my friend, she is one of the only people I know that has had diabetes as long as I have – hence the title – T1D dinosaurs. We are a rare breed and it was thrilling to sit with Bonnie and share what life was like 35+ years ago growing up with this disease. Bonnie and Jennifer did a fabulous job sharing how managing diabetes is sometimes a group effort.
I take pride in being a friendly stalker and scored an impromptu interview with American Idol super star and fellow Type 1, Crystal Bowersox while she was traveling through Oklahoma City. Her show was killer and I shared the evening with dear friends (Erik & Teneka). We sang together, enjoyed pizza and clinked glasses while sharing diabetes hacks. Crystal’s scrappy, no bullshit attitude made her the perfect guest.
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
I’ve taken the Real Life Diabetes podcast on the road and spent a fabulous, BUT way too short amount of time in Scottsdale, Arizona. What better way to kickoff this epic adventure than attending a Beyond Type 1 meet up? I am thrilled to publish Podcast 60 with one of the Beyond Type 1 hostesses, Lauren Bongiorno; virtual Diabetic Health Coach, Entrepreneur, and Author of the Diabetic Health Journal. Continue reading →
Kate Hall, is like many of us in the diabetes community – unstoppable and she decided early on that Type 1 diabetes won’t keep her from pursuing her dreams. She is an inspiration to us all and does a phenomenal job sharing her story on the road to becoming a 2020 Olympian.
Enthusiasm and authenticity are contagious. In just an hour of speaking with Daniele, we caught the wave of passion toward bettering our own diabetes management. Her own transformation–a completely authentic one driven by her own T1D experience–gives her a platform to coach from the heart. She gets the pitfalls. She understands the road to success. She has a balanced approach based upon a Nutritional Science degree, Personal Training certification, and 1000 hours of psychology training. A conversation centered on how to craft an optimal attitude toward new habits, this podcast serves as the perfect launch into 2018. And, as no surprise to anyone, moments of ridiculousness and laughter are plentiful.
How does chronic disease inspire me? I love my life, regardless of the type 1 diabetes I’ve shared my life with for the last 46 years. Yet, there are a few things about type 1 diabetes that I do mind: Continue reading →
Honesty and perspective–two traits people with diabetes cherish from those who give us advice about food. Christina has both. Having served with Ryan at Camp Blue Hawk on the medical staff, he was ready to pick her brain about her thoughts on paleo vs vegan, parenting pitfalls in diet, and how she found dietetics. The result? A conversation that stays open-minded and focuses on the big picture: steady blood sugars without compromise to long-term longevity. Oh, and as a show first, Amber arrived midway through the conversation by surprise. Continue reading →
When I was diagnosed with Type 1 diabetes, my first feeling was perhaps different than you might expect: relief.
The months leading up to my diagnosis were some of the worst of my life. I had been flying from Washington DC to the West Coast and back on a weekly basis, and I thought the constant red-eyes had finally gotten the best of me. I was battling fatigue, circulation issues, and weight loss, and I could barely get any sleep. I just felt awful. Continue reading →
In regards to feels, diabetes provides an endless supply to the senses. We become numb to the finger-sticks, with an occasional 1 in 100 resulting in a real sting. To an extent, injections and pump site changes become familiar or at least expected. With respect to the most commonly asked questions of people with diabetes, here’s another addition to the list: does that still hurt? My response usually follows these lines: Well, no. It’s still the same pain I’ve always felt, but now I’m used to it. With most of our emphasis on our acclimation to these not-so-positive sensations, the single best feeling in the diabetes world remains unexplored and never taken for granted. Continue reading →
It’s a little bit after six in the morning, and I find myself, as I do most mornings, at work at Remington Park. The sun is just peeking over the horizon and the racetrack is beginning to come alive. Horses snort and buck on the mechanical walkers, grooms move to and fro saddling and bridling the ones headed to the track for training, farriers and jockey agents and veterinarians begin their morning rounds, while the trainers and assistants organize their days. I sit in my truck sipping coffee, having completed my early morning chores and preparing myself for another busy day. A quick glance at my Pebble watch brings a smile to my face, as I see the impossibly straight line and the reading of 113 mg/dL, which tells me that my daughter is sleeping peacefully in her bed as she has all night, and is safe. Continue reading →
I was diagnosed with type 1 diabetes at age 6 and was told that I took it like a champ. I was not afraid of the injections or the frequent blood tests while I was hospitalized. When the doctors told me to look away I would usually tell them no, I’m not afraid. In fact, my only major problem was I missed being home with my family and toys.
At that age I was pretty open with the fact I had diabetes. I would often inject or test in front of family and friends and they would be in awe at my bravery. When I returned to school, my classmates and teachers were informed about my health issues and they all looked out for me. Anytime I the opportunity arose, I would show off my needles and other diabetes gear. Continue reading →
It’s great connecting with past podcast guests (see episode 19). I got word that Amy McKinnon was traveling the world again, motivating me to get in touch. Amy was kind enough to give us insight into her recent completion of the Boston Marathon (no small feat).
Q: What adjustments in your game plan did you make for this marathon, compared to past races?
A: Leading up to Boston I had a couple of injuries that took me off my feet completely for a few months, so I wasn’t where I wanted to be with my fitness level prior to a race. Because of this, my pace would be a lot slower, so I changed my race plan completely. I decided to focus on keeping my BGLs in range the entire race while enjoying the atmosphere of the crowds and running the prestigious Boston Marathon. I went into the marathon with a very light-hearted approach, compared to my usual competitive self.
Finally, the long-promised, definitely under-delivered Ask Us Anything podcast is back. The questions rolled in from Oregon, LA, NYC, and a suspected location below the Mason-Dixon line. Of note, we looked back at those practices we loved from our parents… and those we would advise against, kindly. As it turns out, low blood sugar symptoms change over time, and we covered our own evolution. Par for the course in most episodes, we politely disagreed about the distinction between type 1 and type 2 diabetes. Continue reading →
Over the past three years of binge reading other PWD’s posts and interviewing people who live with diabetes, the common theme has been our ability to recognize low BGs changes over time. In my adolescent years, my nose would feel numb and I would get shaky. At that point in my life I was checking my BG every once in awhile so my body took the reigns and made sure I knew something wasn’t right. It was all about trial and error – I feel woozy and am shaking so I would down a packet of honey or four and start to feel better. Continue reading →
I was born in Vancouver, BC and at 18 months old I was diagnosed with Type 1 Diabetes. I consider myself lucky to have grown up in Canada where majority of medical supplies are covered and you don’t have to beg your insurance company on your hands and knees for equipment, like insulin pumps and CGMs. I think I’m even luckier to have parents who were not afraid of my diabetes and let me join numerous dance classes at a young age. I’ve always had a passion for dancing and performing and I knew that I wanted to make it my career as I got older. I also knew that NYC was the place with the most opportunity to make it happen and that is why I moved to the Big Apple. Continue reading →
Living with diabetes is far from easy–checking BGs multiple times a day, giving yourself insulin injections, and changing pump sites every three days (at least you’re supposed to…). I was diagnosed with T1D at the age of two. Luckily, I was raised by wonderful parents who taught me very early on to be independent, giving my first injection at the age of four and learning the carb vs. insulin ratios at six. Continue reading →
I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me… Continue reading →
Pregnancy’s intimidating. Your body changes. There’s another thing in there stealing the food you eat. You crave things like pickles and peanut butter. But, with all this normal stuff aside, what if you have type 1 diabetes and you’re pregnant? Sarah Swanberg walks us through both of her pregnancies–the blood sugar challenges, perilous diet decisions, and lessons learned. Per the norm, we held nothing back, and explored every pregnancy/diabetes-related question known to man. After the interview, Amber and Ryan looked at each other and said, “She’s freakin’ awesome” (give or take a few adjectives). Continue reading →
Type 1 diabetes is one of the few diseases that needs to be micromanaged on a daily basis, 24 hours, 7 days a week. There is no holiday, time away, or opportunity to hand over control to someone else for a while.
When you have a personality like mine, this means becoming almost obsessed with the daily management tasks of living with type 1 diabetes. This has many benefits, no doubt: great control, predictable BGLs, and a HbA1c below 6%. Continue reading →
The Magical Effects of Walking – for the past two years, my husband and I have been living in an apartment on the Hudson River in Midtown Manhattan. During those years, I’ve walked to and from my office (about 25 minutes each way) almost every day, rain or shine! I cannot say strongly enough how much this helps with my daily diabetes management. Of course, I still exercise, but I think my calming, refreshing walks each morning and night benefit my mind, soul, and diabetic body equally as much as my full hour of intense cardio! Continue reading →
It’s Saturday. I look around my kitchen like, “How many nutrients can I pack into one meal?” The kitchen counter holds the answer: fruit. A meal based on the classics: oranges, apples, and bananas. The excitement mounts… but simultaneously, the anxiety builds–how can I balance that many carbs? Instead of running in fear from the carb-load, I decide to embrace it, count it, and ride the wave of a high-carb, plant-based diabetes meal. Continue reading →
I have Type 1 Diabetes. Ugh, that still doesn’t sound like something that should be coming out of my mouth. I am young (ish), I am healthy (ish), and why the *&$# do I have T1D?!?!
I was diagnosed at 32 years old after I had my second son. I was told that it was gestational and would go away (blah blah blah…) Well, here came the shock of a lifetime: it did not go away. So, here I am, 33 years old, with a pump and a Dexcom attached to me at all times. Talk about a major bummer, but the bigger question remains: now what? Continue reading →
Sparked by our conversation with Robby Barbaro on the last podcast, I tallied each bite of food entering my esophagus, for an entire day. This was a new experience. I do not actively count carbs, but go by feel alone. Inherently, some people are thinking, “WHAT?!?! How can you possibly do this and have type 1 diabetes?” Yet, some people are thinking, “Makes sense to me.” Regardless, Robby lit a spark and I embarked on a one-day journey to reexamine lifelong habits. Continue reading →
‘Tis the season to begin all things with ’tis the season. Colder temperatures inspire big lifestyle changes. Our diet shifts, time in the sun drops, and daily movement declines. We tend to think of these change as burdens on our healthy lifestyles (and diabetes management), but really, it’s all natural. We’re supposed to slow down, go inside, and be by a fire. Continue reading →
Riding 800 carbs of fruit to steady glucose control? Huh? Robby Barbaro (a person with type 1 diabetes) joins the podcast from Santa Monica to bust paradigms by introducing the high-carb, low-fat philosophy to revolutionize type 2… and type 1 diabetes management. Currently, Robby is a plant-based diabetes coach: hosting retreats, 1-on-1 coaching sessions, and blogging from MindfulDiabetic.com. If you, like us, have always been curious about the mysteries of insulin resistance, this is the avenue to enlightenment. We laughed, we learned, and we left inspired to push the boundaries of our perceived diabetes knowledge. He walks the walk and talks the talk.
I had a vision in my head of how it was going to be when I brought my beautiful baby girl home. I would be wheeled out of the warm and fuzzy maternity ward with Lily in my arms and balloons on my chair. My husband would be waiting with the car. I would be all consumed in my happiness and joy, oblivious to anyone and everything else.
As a person with Type 1 diabetes, I’ve been frustrated in years past with the lack of advancement for the treatment of this disease. It wasn’t until about five years ago that I decided to stop complaining and seek action. I asked myself the question – why aren’t things chaining and what can I do to help? I did a bit of research and with the help of my regular physician, I signed up to participate in diabetes related trials. I had no idea what I was in for, but knew it was something I had to do. Continue reading →
It’s almost insulting, right? There you are, an adult, being asked to take your shoes off for a foot exam. This was always puzzling as a kid, leaving me thinking, “Yo Doc, if I had a foot ulcer or something, don’t you think I’d know?” But nevertheless, I always take my shoes off–hoping I have on matching socks and my feet are tolerable in scent–and let the endo do his or her cursory 3 second glance, eventually sliding my socks back on to a good report. Continue reading →
You never know when you’ll run into someone who shares a similar life philosophy, but after a chance meeting in college, Mark Carter resurfaces on Okie soil. He’s real and doesn’t hold back about his love of Equal and Chik-Fil-A. In this episode, our longest one yet, he shares his journey of being an ambassador for people with diabetes who don’t have a voice. If you’re brave enough to listen to the whole thing, we hope you’ll leave with the thought – is diabetes a blessing or a curse?Continue reading →
So I don’t have diabetes anymore, I think. Or at least for now I am on a diabetes vacation. After twenty two years living with type one diabetes, I am having somewhat of an identity crisis.
As people with diabetes, we are thinking constantly about our health. We are so in tune with how we feel throughout the day. From symptoms of high and low blood sugars, to fatigue, to nausea, to blurry vision, to cloudy thinking, we feel it all on most days of our lives. Continue reading →
In 2010, I joined 29 other folks to take part in Leadership Norman, a nine month training for business professionals. We met every other week and participated in a variety of sessions focused on community history, current community issues, leadership, and self-discovery. One of the sessions involved a physical, trust building experience of sorts – a ropes course. At this point, no one really knew I had Type 1 diabetes unless they happen to notice my tattoo, but this particular session brought attention to the disease. Continue reading →
Never fails. The thought enters, I love my pump, never had better control, and so thankful for it. Then, subtly the morning sugars are a little off. Then, I find myself chasing blood sugars. Then, I start doubting the pump and begin thinking about insulin resistance in pump site locations. Then, I switch back to the ol’ long-term/short-term game. Every couple of years this sneaky process plays its way out. Continue reading →
Welcome to the dog days… and the unofficial closing summer ceremony, with Labor Day less than a week away. In this window of time, I usually remember that baseball exists still. To the baseball purist, my following of the sport is somewhat reprehensible, as most of my interest peaks in October (after neglecting the first 5 months of the season). We sit roughly 1 month out from the beginning of playoff baseball, meaning this is where I start to tune-in. Continue reading →
Flashback to my diagnosis date which centered on the doom and gloom of my new life with Type 1 diabetes. I recall a lofty list of what I “should or should not” do in order to live a healthy life without complications. I listened and followed the rules for the most part, but rotating my injection sites didn’t seem to stick. It was just easier to give my injections in my thighs because I was usually sitting on the toilet. No brainer, right? Continue reading →
What started as a mini pod quickly blossomed into a full blown podcast once Amber began diving into the nitty gritty as to how Tara Layman (T1D Exposed co-founder) scored a new pancreas and kidney. The question of the hour – Will two pancreases and three kidneys reverse her Type 1 diabetes diagnosis? Well, in this episode they chat openly about the pre surgery process, switching from insulin shots to a handful of pills, how important it is to have a support team and what the future holds for someone who no longer “technically” has Type 1 diabetes. Continue reading →
Time to borrow from the game of golf. It’s on the mind, as I watched the PGA Championship over the weekend. Diabetes makes for an interesting viewing companion, always finding a way to relate anything back to itself.
I like golf. Haven’t found another activity that reflects the inner state of mind better. Much like diabetes management in that aspect. Getting to the point now, playing golf in Oklahoma means playing with the wind. The song doesn’t lie, the wind sweeps down the plains.
I was diagnosed with type 1 when I was thirteen. Shortly after, a fellow traveler broke it down for me: you can either control your diabetes or you can let it control you. A rabble rouser froma young age, I decided quickly that if those were my choices, I’d choose option A. At the time, I didn’t realize how difficult it would be to make that decision each day, but gradually it helped me develop a personality trait I see in a lot of folks with type 1: we love a challenge, and we love to prove people wrong. When I decided to be a Peace Corps Volunteer, I went into it with that same bullheaded mentality that had been an almost constant companion since diagnosis. Continue reading →
My own definition of insanity: doing the same thing, over and over, getting the same result, while simultaneously knowing the definition of insanity. Over the past two weeks, I’ve been on loop mode. I knew I was on loop mode, but history kept repeating itself. Until… a recent lunch with Amber and our friend Trish (and podcast 17 guest) said, “Ya know, you could just stop eating so many carbs in the mornings.” Let’s backtrack, mainly because I feel the need to justify why I needed to be told this essential truth in diabetes management after 18 years.
It’s been hot here (Oklahoma) and everywhere else. Especially hot for this early in the year. 100° is normal in August, not June. Plus, the humidity been’s flirting with Amazonian levels. Nonetheless, despite the warnings from weather people and health officials, I’ve been out on the trails (not recommending anyone try this out per se, please exercise extreme caution). A justified decision based primarily on an irrational personal desire to be outside, I’ve survived by consuming liters on liters of water out of the Camelbak, keeping Clif Bars in the pocket, searching for shade, and pounding back bananas every 30 minutes. Gotta be careful. Continue reading →
We like to consider ourselves experts. On the spot, we can spew carb counts for all things edible. We alter our insulin rates and corrections on intuition. Always a step ahead of our endocrinologists, we people with type 1 diabetes appear to have a superiority complex, the by-product of years of acting as the human, oftentimes inaccurate form of a beta cell.
Coming from this background as I started medical school, I was shocked by many things subsequently presented over the last two years–more or less on a daily basis–that were completely off my limited radar. Really though, almost every day I found out something new about diabetes. There was no waiting until the endocrinology class started. Diabetes complicates every disease process. Diabetes knows no bounds: immunology, genetics, neurology, nephrology, dermatology, cardiology, and any other -ology (sorry, forgot ophthalmology). Continue reading →
We got the green light to interview IndyCar driver and fellow guy with type 1 diabetes, Charlie Kimball. He not only keeps his car on the track, he stays out of the low BG pits. In this episode he shares his father’s in-car orange juice invention, his daily attitude, and how he became the (sort of) first T1D IndyCar driver. Continue reading →
Last February I was sucker punched by my worst fear – retinopathy. This dark cloud has hovered over me for 30 years and I knew it would inevitably make it’s way to the surface. Ryan was actually with me at the appointment and I think we were both a little shocked when Dr. Smith of Classic Vision noticed numerous hemorrhages in my right eye. After having time to process the bad news, I gathered the courage to write about it in, Diabetic Retinopathy Is Finally On The Radar. When it was clear three months later my eyes were not getting better, he referred me to a specialist. After a series of additional tests at the Dean McGee Eye Institute, I was given the green light to live life and return in 12 months for a follow-up. Hemorrhages had been detected, but they could have been caused by other factors like stress, blood pressure in addition to diabetes.
The day had come and it was time to schedule my follow-up exam. Was retinopathy still on the radar? Continue reading →
A few days back, I took the first medical school board exam (Step 1 USMLE). As always, diabetes did its thing, always in the background, making subtle moves, maybe influencing things, maybe not, but nonetheless, it was there. In itself, the whole day is its own marathon–7 separate 40 question exams spaced out over 8 hours. Having the knowledge is one thing, but putting yourself a place to access that knowledge is another (the test results arrive in 3 weeks, so it’s hard to ascertain whether I truly accessed said knowledge). Continue reading →
While Ryan was studying for the boards, Amber gathered a few shoe lovers from across the country to discuss the “dream” shoe for PWDs. Maybe they didn’t find that “dream” shoe, but she enjoyed a lively discussion with guest, Shelene Kinsley, Tales From A Type 1 blogger, T1D and upcoming shoe designer. This episode was recorded in Oklahoma City’s own Betsy King Boutique. Betsy is a seasoned buyer and Amber appreciates her attention to detail when looking for the perfect high heel. Who knew that heels are better for your feet than flats? Seriously though. Continue reading →
When I was ten years old, my doctor told my mom I would never have children. I didn’t hear these words; I was laying in a diabetic coma that lasted for 4 days. When I woke up, I woke up to a new life, a diagnosed life that included injections, meal planning, and glucometers. When my mom finally broke the news to me a few months later, the last thing on my mind was having kids someday.
Live readings of serum glucose, tracking along on a touch screen panel–essentially a bigger, more accurate version of a continuous glucose monitor. A vial of straight glucose ready to put into the IV line. The ability to keep the glucose levels in perfect range. Insulin ready to infuse. Continue reading →