I was honored to be chosen as one of ten Patient Voice Contest winners for the DiabetesMine Innovation Summit. During the two day event, I was surrounded by industry leaders, tech gurus, genius creators of diabetes apps, and many fellow advocates. This Summit coalesced the mother lode of advancements in diabetes management, and a few of the brave souls in attendance took time to chat with me. Though our interviews were brief, each guest radiated an optimism and passion for helping to better the lives of those of us living with diabetes, and I hope their energy inspires you as well.
A few months ago, I received a heartfelt video message from a person I’d never met, and it had me and my friends and family in tears. It was exactly the boost I needed to keep going. Dr. Fox is one of the good guys – the doctor who truly cares about his patients and their sense of wellbeing after leaving his office. His holistic mind, body, spirit approach is one you rarely, if ever, see in the endocrine world. He has taken a chance by stepping out of the traditional medical community box and intends to make a much larger impact on the diabetes community with his programming and overall approach to treatment. Continue reading →
This globetrotting T1D just embarked on a 12-month remote year journey with a focus to reach one million people living with diabetes. Her candid approach, charismatic attitude, and ability to touch on hot topics will transform lives and prevent diabetes burnout. With 39 1/2 years of experience and a handful of degrees, Dr. Jody is an expert in all things diabetes making her the perfect guest.
It is always a pleasure to connect with fellow diabetes advocates, Rev Run and Justine Simmons. They radiate positive energy and had me laughing with their ability to call each out when it comes to healthy lifestyle choices. There is no doubt, their passion to rewrite their family history with Type 2 diabetes is contagious and the Simmons kids are teaching them a thing or two.
It was just by chance our paths would cross at a T1D kiddo and parent support group. I rarely attend and Rebecca and her husband James were guests that evening. When we split off into another room, Rebecca shared her heartfelt story to the parents and there was not a dry eye in the room. For many of us who have lived with T1D for decades, sharing the impact this disease has on our state of mind can be difficult to recollect, much less share. Rebecca found the courage and is turning a life altering experience into a philanthropic dream.
Last December, Anne came to the rescue, offering help during my insulin crisis while in San Antonio, Texas. She, like many people in the DOC (diabetes online community) stayed in contact with me while I resolved the problem. She is a leader in the diabetes community and her wealth of knowledge has helped so many T1Ds and their families.
Traveling through multiple time zones with diabetes while being sedentary on the plane can be a lot to handle, but it didn’t keep Drew from his 12 month adventure across the globe. In this episode, he shares his mis-diagnosis, transitioning into life with T1D as a young adult, his love of circus acrobatics and lessons learned while traveling abroad. He is truly an inspiration to all people living with this disease and his laid back personality is warm and welcoming.
Recently, Mayor David Holt declared a pride week in my home town of Oklahoma City. It made me think – do I know any LGBTQ T1Ds? Yep, and not only is she my friend, she is one of the only people I know that has had diabetes as long as I have – hence the title – T1D dinosaurs. We are a rare breed and it was thrilling to sit with Bonnie and share what life was like 35+ years ago growing up with this disease. Bonnie and Jennifer did a fabulous job sharing how managing diabetes is sometimes a group effort.
I’ve been preparing this heartfelt episode for quite some time, and after months of research and polling friends & family, I am thrilled to announce Patreon, a phenomenal and trusted membership platform. All of the Real Life Diabetes podcast episodes will remain free, but members will receive perks. There are five tiers – all of which are affordable so I hope you will take a moment to check it out.
I’m packing up the Subaru and heading to Joplin, Missouri to attend the Stick It To Diabetes fundraiser hosted my the Mercy Foundation. What better way to bring PWD together than a happy hour? Continue reading →
I take pride in being a friendly stalker and scored an impromptu interview with American Idol super star and fellow Type 1, Crystal Bowersox while she was traveling through Oklahoma City. Her show was killer and I shared the evening with dear friends (Erik & Teneka). We sang together, enjoyed pizza and clinked glasses while sharing diabetes hacks. Crystal’s scrappy, no bullshit attitude made her the perfect guest.
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
I’m hitting the road and heading to Arkansas! It has been ages since I’ve hosted a Real Life Diabetes Happy Hour, but after being contacted by a fellow T1D – I’m packing up the Subaru and heading North. This event brings ALL people living with diabetes and their families together to be surrounded by folks who “get it“. Please join me Thursday, April 11th from 5-7:30pm at The Holler located at 801 SE 8th Street in Bentonville, Arkansas.
This fearless forty something T1D does an incredible job of sharing her story. Cynthia is a T1D veteran who has challenged and/or been fired by an endo. or two, faced diabulimia head on, fearlessly experimented with the newest medications on the market and laughed at the thought of being a high risk, geriatric pregnancy. Continue reading →
While on the road with the Real Life Diabetes podcast in Scottsdale, I had the pleasure of having dinner with Paloma Kemak (aka Glitter Glucose). Her story is very different from mine, but her diagnosis and overall mindset is entertaining and up-lifting. Paloma’s energy and ability to laugh while sharing her story is contagious and inspiring to PWDs from across the globe.
The Diabetes Daily Grind and Real Life Diabetes podcast is growing and in order to do so, we need help. We’re pursuing every avenue possible and hope you will take time each day to vote until April 1, 2019. CLICK on the link below to vote and please share with the world!
I’ve taken the Real Life Diabetes podcast on the road and spent a fabulous, BUT way too short amount of time in Scottsdale, Arizona. What better way to kickoff this epic adventure than attending a Beyond Type 1 meet up? I am thrilled to publish Podcast 60 with one of the Beyond Type 1 hostesses, Lauren Bongiorno; virtual Diabetic Health Coach, Entrepreneur, and Author of the Diabetic Health Journal. Continue reading →
After a tip from my sister and a little friendly stalking, I scored a killer interview with CNN Heroes award recipient, Maria Rose Belding. Above and beyond her work providing food for people in need, she is surpassing her goals while juggling life with Type 1 diabetes. In this episode she shares her passion to serve others while not letting T1D slow her down. Continue reading →
It has been over a year since I last shared a post, but with two snow days I had plenty of time to reflect on what the past year has taught me. 2018 was full of new challenges, many of which were diabetes related. After 35+ years of living with T1D, you would think I’ve dealt with it all, but that is not the case. Below are a few highlights, lessons learned and things to ponder.
I became a Dexcom Warrior and had the privilege of trying the new G6 before it was released to the public.
I shared my T1D story, per the request of the Oklahoma Diabetes Legislative Caucus, to insurance providers in an effort to change future coverage for people living with the disease. It worked. Report to follow in a future post with my testimony.
Kate Hall, is like many of us in the diabetes community – unstoppable and she decided early on that Type 1 diabetes won’t keep her from pursuing her dreams. She is an inspiration to us all and does a phenomenal job sharing her story on the road to becoming a 2020 Olympian.
After a long hiatus, I’m back and doing my best to use new technology… I chose to kickoff this new wave of podcasts with a “hot topic“, insulin affordability and accessibility. The DOC (diabetes online community) has been harping on this for ages, but as the topic is now international news after a recent wave of “published” deaths due to insulin rationing, it was time to chat with the author of Insulin’s High Cost Leads To Lethal Rationing, Bram Sables-Smith.
Oklahoma is thankful to have an upcoming state senate candidate who in not only a second generation educator, but the parent of a child recently diagnosed with Type 1 diabetes. In this episode we touch on her son’s diagnosis, insulin affordability & accessibility, and Carri’s day to day life on the campaign trail with three kids. Please note – this is not a political plug, but just an opportunity to have someone in her shoes share life with managing the real world and a child with Type 1 diabetes.
It’s funny how the thing you set out to do ends up being done to you. We had one goal when launching Diabetes Daily Grind back in 2014–give real support for the diabetes life (it was once ‘diabetic life’, but we got with the times, thanks to Kelly McKeever). I had it all figured out, the whole living with diabetes thing. I’d write articles for the website about how to run marathons or how to go vegan, dispelling all this great wisdom to help others, and it would be a fun, creative outlet. Turns out, I didn’t even know what real support was, because I’d been missing it all along: community. Turns out I needed the real support. Continue reading →
As promised, the Diabetes Daily Grind is happy to share what’s on the horizon for the blog and the Real Life Diabetes podcast while catching up with one of our favorite guests. Over a few glasses of wine, Amber has a heartfelt discussion with Trish, T1D parenting badass to two sons with T1D whose fighting the good fight on Capitol Hill as a diabetes advocate. Continue reading →
For all of us, this was a new season. In the time away from each other (less than a year), Mark has moved back to Northwest Arkansas, started a new job with Medtronic, and committed to a diabetes life with the new 670G insulin pump. And, as expected, the conversation went off the rails from the anticipated agenda and into even realer subjects: sex, sleep, and chick-fil-a. Continue reading →
In life, we meet people who leave us feeling lighter and rejuvenated–Tonya’s one of those people. Every word she speaks is embodied in her own life. She’s curious and open-minded, a professional student in healthy living. As a nurse at Wellness and Longevity (an functional medicine clinic in Oklahoma City), she works with patients daily on optimizing their foundations for health. In her second episode (refresh with episode 10), we focus on the foundations of a vital life and how to reengage with meaningful resolutions. Diabetes can be a reflection of how we’re eating, moving, sleeping, and managing the mind. Tonya helps us get back to those basics, letting diabetes management reflect back out.
Enthusiasm and authenticity are contagious. In just an hour of speaking with Daniele, we caught the wave of passion toward bettering our own diabetes management. Her own transformation–a completely authentic one driven by her own T1D experience–gives her a platform to coach from the heart. She gets the pitfalls. She understands the road to success. She has a balanced approach based upon a Nutritional Science degree, Personal Training certification, and 1000 hours of psychology training. A conversation centered on how to craft an optimal attitude toward new habits, this podcast serves as the perfect launch into 2018. And, as no surprise to anyone, moments of ridiculousness and laughter are plentiful.
An hour before her emcee duties at the Harold Hamm Diabetes Center’s Connect+Cure Gala in OKC, Nicole Johnson joined us and shared her perspectives since winning Miss America in 1999. From the surprising career trajectory afterward, to dating and diabetes scenarios, we embraced the whole journey. Per the usual flow of the show, many laughs were had, and we all got to know each other. Continue reading →
With such busy lives these days it has been almost two months since team DDG crafted time to catch up. As everyone in the diabetes community knows, we all need our T1D bestie time chatting about life with the disease SO… after a long day at work we penciled in this episode to review life, recap breaking diabetes news, and discuss listener questions. We talk allergies, food choices, fight or flight response, T2D compassion, defense mechanisms, T1D anxiety and an honest conversation about how our diabetes management is constantly changing.
If you’re one for free-flowing conversation, sit on back with a beverage of choice (if not driving) and enjoy.
Honesty and perspective–two traits people with diabetes cherish from those who give us advice about food. Christina has both. Having served with Ryan at Camp Blue Hawk on the medical staff, he was ready to pick her brain about her thoughts on paleo vs vegan, parenting pitfalls in diet, and how she found dietetics. The result? A conversation that stays open-minded and focuses on the big picture: steady blood sugars without compromise to long-term longevity. Oh, and as a show first, Amber arrived midway through the conversation by surprise. Continue reading →
Finally, the most welcoming force in all of the Diabetes Online Community joined the show: Scott Johnson. If you’ve ever composed an article about diabetes, odds are, Scott has given you praise. As one of the founding members of the diabetes blogging world, Scott has watched the DOC bloom into a world that hosts 1000s of posts per year, and he couldn’t be more proud. He’s honest, approachable, and has done a lot of diabetes introspection over the years. Amber labeled him the “most huggable” person of the DOC. You’ll soon understand after listening. Continue reading →
You know what takes courage? Looking at your weaknesses, then sketching out a path forward to wellness. Led by her well-intentioned sister Pooche, Belle sat down to chat with Amber (a good friend) about her complicated relationship with type 2 diabetes. As a person with type 1 diabetes, it stands as a fresh look at life with type 2 diabetes, helping us all understand each other a little better. Continue reading →
One of our favorite podcast guests is back! Back in the fall, he joined us on Podcast 32 where he shared his love of Chick-Fil-A, coffee, Equal and Omnipod. We highly suggest a retrograde listen before hopping into this show.
During this go round, we catch up on life, hear about an epic insulin prescription journey, discuss what diabetes maturity means, and laugh hard.
To the support the show, check out our Paypal link for subscription options.
Finally, the long-promised, definitely under-delivered Ask Us Anything podcast is back. The questions rolled in from Oregon, LA, NYC, and a suspected location below the Mason-Dixon line. Of note, we looked back at those practices we loved from our parents… and those we would advise against, kindly. As it turns out, low blood sugar symptoms change over time, and we covered our own evolution. Par for the course in most episodes, we politely disagreed about the distinction between type 1 and type 2 diabetes. Continue reading →
Listening to someone give advice, you can usually tell the level of authenticity behind the statements. When chatting with Dr. Stephen Ponder, there’s no question about authenticity–this sugar surfing wisdom is a part of his being. Growing up with type 1 diabetes (for 50 years), becoming a CDE (certified diabetes educator) and then a pediatric endocrinologist, passion fuels a life committed to inspiring people with diabetes to live a normal, possibly extraordinary life. Continue reading →
Pregnancy’s intimidating. Your body changes. There’s another thing in there stealing the food you eat. You crave things like pickles and peanut butter. But, with all this normal stuff aside, what if you have type 1 diabetes and you’re pregnant? Sarah Swanberg walks us through both of her pregnancies–the blood sugar challenges, perilous diet decisions, and lessons learned. Per the norm, we held nothing back, and explored every pregnancy/diabetes-related question known to man. After the interview, Amber and Ryan looked at each other and said, “She’s freakin’ awesome” (give or take a few adjectives). Continue reading →
Diabetes is the best thing that ever happened to us. This guy, Ideen Tabatabai, lives out that mantra, and diabetes continues to shape his path as he exits medical school. Alongside Ryan, they explore the subtle, and not so subtle, ways that diabetes shaped their medical school experience, oftentimes in absurd, hilarious ways. Ideen is a 4th year medical student at the University of Oklahoma College of Medicine in Oklahoma City. He’s been living with T1D for 18 years, with Dad and brother as fellow folks with diabetes. He plans to specialize in pediatrics, and to further sub-specialize in pediatric endocrinology (takes one to know one). We can’t wait to follow his path.
In less than a week from our last podcast conversation with Clayton McCook, he managed to “close the loop”, by himself, with the help of many (including the NightScout Community). His focus is singular: restore as many childhood moments to his daughter’s life as possible, without diabetes hovering in the background. He walks us through the “closing the loop” steps and his bigger motivations. As a parent of a person with diabetes, if you’ve ever thought about tinkering with your gear to allow the CGM and pump talk, Clayton stands as proof that it’s possible to pull it off with determination, love, and a small desk somewhere. Continue reading →
Diabetes is rough right? Even with a CGM and around the clock basal insulin from a pump, most days are still a grind! But staggeringly, across the globe insulin prices are accounting for up to 40% of monthly expenses, and people are walking 100 miles to get a prescription. Elizabeth Rowley, founder of T1International, is digging deep to gain awareness to the disparities in care and often inadequate access to standards in daily management, like strips and insulin. They campaign for systemic change that not only meets daily needs, but aims to solve the underlying issues in healthcare. If you’d ever like more information on the subject of diabetes across the globe, they are the knowledge hub.
We enjoyed the conversation with Elizabeth, challenging us to open our eyes to the diabetes experience outside of the US.
Riding 800 carbs of fruit to steady glucose control? Huh? Robby Barbaro (a person with type 1 diabetes) joins the podcast from Santa Monica to bust paradigms by introducing the high-carb, low-fat philosophy to revolutionize type 2… and type 1 diabetes management. Currently, Robby is a plant-based diabetes coach: hosting retreats, 1-on-1 coaching sessions, and blogging from MindfulDiabetic.com. If you, like us, have always been curious about the mysteries of insulin resistance, this is the avenue to enlightenment. We laughed, we learned, and we left inspired to push the boundaries of our perceived diabetes knowledge. He walks the walk and talks the talk.
You never know when you’ll run into someone who shares a similar life philosophy, but after a chance meeting in college, Mark Carter resurfaces on Okie soil. He’s real and doesn’t hold back about his love of Equal and Chik-Fil-A. In this episode, our longest one yet, he shares his journey of being an ambassador for people with diabetes who don’t have a voice. If you’re brave enough to listen to the whole thing, we hope you’ll leave with the thought – is diabetes a blessing or a curse?Continue reading →
At the JDRF Summit last January in Oklahoma City, we struck up a conversation with the father of Lily, an adorable, youngster who lives with T1D. She had on this awesome-looking watch with her blood sugar. So did her Dad. We had to explore further. In this episode, Clayton shares his family’s philosophies on parenting and empowering the T1D life. While not a “techie guy”, he managed to discover and use Night Scout… while continuing to develop an artificial pancreas in his basement. There’s some wisdom in this one folks. Continue reading →
Amber loves to travel so she hit the road and ventured to Texas (one state away from our OKC home). What better way to meet fellow PWDs than traveling the southwestern countryside? Before heading out she contacted the American Diabetes Association to see if anyone in their part of town had a story to share. They totally hooked her up with Deirdre Murphy, a lovely woman who went from an original Type 2 diagnosis to eventually being re-diagnosed with Type 1. In the 30th show, Deirdre shares her 12+ year journey and reflects on living life with T2D… and now T1D, eventually coming to a place of relief at the type 1 prognosis (a rare event).
One can only talk oneself for so long, right? Wrong, Amber and Ryan dedicated an entire show to each other (we thought they talked plenty already about themselves in ordinary episodes). In conversation a week prior, they realized much of life had passed by since they had a good sit-down chat. It was time t0 “catch-up” on life, diabetes, and pick-up strategies (Ryan heads to the trail and Amber heads to Whole Foods). Amber elaborates on a DDG post about her recent extraordinarily ignorant endocrinologist visit, while Ryan updates on his new, old-school approach to diabetes management.
The DDG invested a weekend afternoon to dispel a diabetes urban legend… HOT TUBS, and their effect on blood sugar. In this episode, they do scientific research, or something resembling the scientific method, while rambling about everyday life, social media and all things diabetes. Why hasn’t there been an experiment like this before? Well, maybe there has been, but the evidence was nowhere to be found. Leave it to the DDG to get to the bottom of this T1D fear. Bear witness folks, this is diabetes research history. Continue reading →
After a few months of friendly stalking, we scored the opportunity to chat with hip hop legend and diabetes advocate, Rev Run and his wife Justine Simmons. With 1 in 3 adult Americans being at risk of Type 2 diabetes, they’re spreading the word about T2D prevention with the help of Ask.Screen.Know™. In this episode, we’re swapping recipes, avoiding the food police (while simultaneously encouraging them) and sharing how to lead by example in hopes of changing their family’s history. The message is clear – Do it for the ones you love. Continue reading →
While Ryan was studying for the boards, Amber gathered a few shoe lovers from across the country to discuss the “dream” shoe for PWDs. Maybe they didn’t find that “dream” shoe, but she enjoyed a lively discussion with guest, Shelene Kinsley, Tales From A Type 1 blogger, T1D and upcoming shoe designer. This episode was recorded in Oklahoma City’s own Betsy King Boutique. Betsy is a seasoned buyer and Amber appreciates her attention to detail when looking for the perfect high heel. Who knew that heels are better for your feet than flats? Seriously though. Continue reading →
Amber scored a once in a lifetime interview with the “Human Highlight Film”, NBA legend and Hall of Fame Inductee, Dominique Wilkins (imagine his name radiating within in an arena). Wilkins is no stranger to diabetes as his father and grandfather both died from diabetes related complications. When diagnosed with Type 2 diabetes post retirement – he knew it was time get back in the game. In this unique glimpse into his personal life, they discuss his childhood diet, diagnosis day BG numbers and changing his diabetes regimen from pills to injections. This man is honest, entertaining and inspirational.
Props to us for exceptional long-term planning in the coordination of Dominique’s episode being the 21st (it was his number!!!!! We just put this together.)
Well, we warned you and now it’s time to share another episode of “Ask Us Anything“. In this episode, we received stellar questions from #DOC royalty and some brave souls who were kind enough to leave us a SpeakPipe message. Amber & Ryan share their deepest thoughts, not advice on diabetes complications, drinking bourbon, carb guessing in uncharted territory and how to encourage a “friend” to make healthier food choices. We’re keeping it real and sharing some laughs. Hope you enjoy the show.