Does Diabetes Phantom Pain Really Exist?

I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me…

Shortly after tapping into life with the Dexcom I started to experience an aching sensation of sorts in the arm that didn’t have the sensor. In fact, it was so profound at times I had to check to make sure what arm had the sensor. I felt crazy and thought it was just my mind adjusting to the foreign device. A few weeks later I changed the sensor to the opposite arm. I went about life until one day in a meeting, I had the same achy feeling in the opposite arm (original arm that had sensor) and couldn’t help but think – is this some type of phantom pain? Was my brain reacting in a weird way to remind my other arm the sensor was attached…?

I’ve had the Dexcom G5 for about two months and with each site change – I experience the same sensation. I’m not one for change and am not mentally prepared to switch to another part of my body just yet, but can’t help from thinking – would the same thing happen in another part of my body? I’ll keep you posted.

I would love to hear from anyone who has experienced a similar sensation. It would be wonderful to know I’m not alone.

Amber Clour was born and raised in Norman, Oklahoma. 21 days after her eighth birthday, she was rushed to Children’s Hospital where she spent two weeks learning how to live life with Type 1 diabetes. She has embraced the thought of being a #walkingscienceproject and hopes to score an A+ for her efforts to maintain a stable BG while living life to the fullest - whatever that means.

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