#123: Patricia Daiker | What Are You Willing to Do Today?

Seeing diabetes every day can develop denial and avoidance of the disease. In this episode, Patricia shares her journey to compassion for herself and other people living with this disease. She explains – diabetes should not define our purpose as she reflects on how denial, anger, bargaining, and depression are all connected to unresolved grief. Continue reading

#121: Ermo Egberts | Taking Radical Ownership of Your Health

Real Life Diabetes Podcast

I knew Ermo Egberts would be the perfect guest after reading his post about attending an ecstatic dance party where he connected with others on a spiritual level. Ermo’s story is a testament to the power of self-awareness and self-care, and he encourages others who are living with diabetes to stay positive and hopeful while living life to the fullest.

#119: Naomi Kinnamon | Type 1 of a Kind – A Girl Needs Pockets

You might think fashion is the last thing people living with diabetes have on their mind, but in reality, PWDs could benefit a great deal from clothing that is designed with both utility and style in mind. Naomi Kinnamon, who has lived with Type 1 diabetes since age 11, brings us those solutions that accommodate insulin pumps and injection sites.

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#117: Kalex Williams | You Look Fine, Come Back on Monday

Real Life Diabetes Podcast #117

Isn’t it time to start injecting some much-needed diabetes humor to cut through the doom and gloom we face? Kalex Williams is a master at extracting positivity and he has to be one of the coolest people I’ve met! In this episode, you will get a taste of Kalex’s resilience in the face of his diagnosis and how he didn’t sit on his pity party, but makes light of it and connects to attendees from across the globe. 

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#115: Esi Akyere Mali Arthur Snodgrass | 33 Years in the Making

Demanding better care and not being afraid to ask for it, Esi Akyere Mali Arthur Snodgrass is helping others find their voice and live life knowing they are complete and whole. You got to get to know this dynamic woman! Dive into this action-packed episode and find out Esi’s story, diabetes management, and advocacy for those who aren’t getting the diabetes care they deserve!

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Birthday Wish List and What’s New in 2022

It’s time to PAR-TAY!! Today marks my 40 something birthday living with Type 1 diabetes. I’m grateful to have a platform to share my story and look forward to all 2022 has to offer. Thank you for being part of the journey as I’ve learned so much from your stories! Read on while we take a look back at what we’ve accomplished in 2021, plans for 2022, and birthday wishes for today.

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#114: Insulin Pump Therapy Leaders | Defining Progress in Daily Diabetes Management, Part #2

Imagine a future where diabetes is the last thing on the mind of people living with it – that is progress! In part #1 we got an inside look at how the insulin industry is spurring each other on to make advancements in diabetes management. In part #2 we continue the conversation with the leaders in the insulin pump industry, alongside my well-versed cohost, Mark Carter. As a little refresher, we had the pleasure of hearing from Michael Hill, VP of Global Portfolio Marketing at Medtronic, Dr. Trang Ly, Senior Vice President and Medical Director at Insulet, and Dr. Steph Habif, a behavioral scientist at Tandem.

Let’s jump back into this topic and learn more about how you can define progress in daily diabetes management and what’s on the horizon for insulin pump therapy. 

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#113: Brett Ryan Stewart | What Comes First, the Chicken or the Egg – Diabetes & OCD?

I’ve joked, and/or compared my diabetes management to OCD (obsessive compulsive disorder), but hadn’t met anyone living with both conditions until interviewing Brett Ryan Stewart. Brett is a Nashville based producer who shared – “ultimately what OCD kind of comes down to is this inability to accept what you can’t control and then obsessing about a way to control the uncontrollable.” I’m sure many of you living with T1D can relate to this mentality and Brett’s ability to give us a look into his daily life was eye opening to say the least.

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#112: Insulin Pump Therapy Leaders | Defining Progress in Daily Diabetes Management, Part #1

Real Life Diabetes Podcast 112

The world of diabetes management is growing at an expeditious rate, so how do we define progress in this space? Great question, and one I couldn’t resolve myself so I brought in past podcast guest and fellow T1D, Mark Carter, who has worked within the industry. We had the pleasure of sitting with three insulin pump therapy leaders: Michael Hill, VP of Global Portfolio Marketing at Medtronic; Dr. Trang Ly, Senior Vice President and Medical Director at Insulet; and Dr. Steph Habif, a behavioral scientist at Tandem

Our conversation is packed with insights on how to define progress in daily diabetes management while addressing some of the community’s most burning questions. Stay tuned for part #2.

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#110: Ginger Vieira | Avoiding the Self Pity Track

Real Life Diabetes Podcast

Ginger Vieira learned quickly that it turns out there is a whole lot you can still do even while dealing with diabetes when you approach yourself kindly rather than getting stuck in self pity. She is a passionate writer and editor with a mission to turn complex health information into easy-to-read content. Ginger herself navigates not only through T1D, but other autoimmune diseases as well, but not for a moment does she let herself get caught up in self pity. Instead she works tirelessly to bring out content that impacts others going through similar struggles.

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#107: Kristina Loskarjova | Sometimes You Just Have to Step Back

To all those who need to hear this – yes you can! This is the lifelong motto of Kristina Loskarjova, a woman who sets her mind to something and makes it happen while living her best life with T1D. She shares how taking a step back from the pressures of management could be exactly what you need to get back out and start living a fulfilled life. Kristina is an accomplished designer, entrepreneur and author who is sharing her story and those of other people living extraordinary lives with this disease. 

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#106: Tim White | Diabetes Might Have Put Us on the Defensive

While getting the diabetes diagnosis tends to put us on the back foot, we can choose to deal with it and refuse to let it define us. Tim White is a diabetes veteran who has been managing his diabetes for longer than I have. He is a well spring of wisdom and shares his story along with his experience on living his best life with diabetes for decades. Tim is a prime example that diabetes is not a death sentence, and its management is getting better every day.
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#105: Jermaine Hargrove | Type 1 Diabetes is a Family Affair

What does someone who was thrust into the world of diabetes with no preparation do? They make animations of course! Jermaine Hargrove is the co-founder of Small Town Animation Studios, where he and his wife are impacting the diabetes space with the arts, specifically in the 3D animated films arena. His creative expertise and entrepreneurial spirit will help inspire people to better manage their diabetes. Let’s dive into Jermaine’s story and learn more about not all Superheroes wear capes, but some do wear CGMs.
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#104: Bridget McNulty | The Advocacy Sweet Life

I’m fascinated with diabetes care and advocacy efforts in other countries so I was thrilled to connect with Bridget, a fellow T1D making waves in South African healthcare. She goes above and beyond to ensure people living with diabetes have the information and tools they need to live their best life. South Africa has a long way to go and I feel confident Bridget will be leading the movement.
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#102: Kyle Jacques Rose | Raising the Voice of People Living with Diabetes

Kyle is a seasoned traveler and person living with T1D whose career path has been shaped by the bumps and bruises of living with this disease. He currently serves as the Chief Strategy Officer for DiabetesWise who has launched the DiabetesWise Device Finder, a tool created at Stanford University School of Medicine to help PWD easily identify the best technology for their personal diabetes management.
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Real Life Diabetes Virtual Happy Hour Registration

Real Life Diabetes Happy Hour Registration

The Real Life Diabetes Virtual Happy Hour takes place every Thursday from 5 – 6:15pm CST. The event has nothing to do with alcohol, but is for adults living with diabetes or caring for someone living with this disease. Each week is filled with laughter, lame jokes, trivia and live music with people who get it from across the globe. Don’t be shy, pop in and make a new friend. CLICK HERE to register.

#101: Mike Hoskins & OK State Senator, Carri Hicks | Understanding the Executive Order Freeze Concerning Insulin

This impromptu episode was a no brainer when President Biden took office and put a freeze on past executive orders. The diabetes community flipped out so I contacted two friends who can help me and the DOC better understand what this really means. In this episode we discuss the EO freeze on insulin and grassroots advocacy efforts. 

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#99: Manny Hernandez | Changing Paths = Code For You Have To Start Giving Shots

Manny Hernandez is a published author, recognized diabetes advocate, and speaker on the power of community for social impact who reminds us, while we are not on this journey by choice, it’s not a path we need to take alone. What better way to wrap up 2020 than with a brave soul who transformed his professional career to connect with others who understand similar challenges. 

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#98: Dr. Allyson Hughes | Research Is Me Search

Dr. Allyson Hughes is a self-proclaimed animal lover, methodology geek and research scientist who collaborates with various industries to develop research projects from beginning to end, and advocates for health policy with the data she collects. Having been diagnosed with T1D herself, she knows all too well the struggles we face. This is what prompted her career path as a health psychologist dedicated to improving the lives of people living with diabetes.

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#97: Jutta Haaramo | A Snarky Comment Helps Lessen the T1D Burden

Real Life Diabetes Podcast 97

I’m a sucker for witty banter and was thrilled to connect with Jutta Haaramo, co-founder of the Happy Bob app, who has brought a bit of lightheartedness to managing her son’s life with T1D. Her mission is to share the latest diabetes data, without overloading people with information by making it a fun, and rewarding experience. This is just the beginning of an exciting partnership with Jutta and the Happy Bob app team.
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#94: Sean Saint & John Sjolund | Who Forgets if They’ve Given an Insulin Shot?

With a little friendly stalking I had the pleasure of chatting with two incredibly inspirational industry leaders, and self proclaimed friendemies, Sean Saint and John Sjolund. Their drive to succeed and multiple success stories mirror my mission to help improve quality of life for all people living with diabetes. They are entertaining to say the least and had me laughing throughout the interview while giving me hope for the future of diabetes management.  Continue reading

#93: Ozzy England | Let’s Be Honest – We’re 21st Century Vampires

Can you imagine being diagnosed with T1D and five years later stating you’re in the best health of your life? In this episode, we’ll be learning more about my new friend from the land down unda’, Astra-Lia ‘Ozzy’ England.  Several years ago, Ozzy would receive news from the doctor that would shake her world; a T1D diagnosis. In a matter of weeks, she went from living a relatively normal life (albeit with Celiac disease) to being put on insulin therapy. Her fiery personality and unapologetic curiosity about life with diabetes made her the perfect guest.

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#91: Diabuddies App Founders | The Importance of Connectivity

The battle against diabetes doesn’t have to be done alone, we need community. That is the mindset of today’s guests (yes plural!) the Diabuddies App Founders, Amy, Sarah and Charlene. As we dive in, you’ll learn how these ladies’ experience with diabetes led them to create something ALL people living with diabetes can support. Continue reading

#90: Mark Carter | Back to the T1D Basics

Who says an old dog can’t learn new tricks?! Repeat guest and dear friend, Mark Carter joins the show and shares how and why he has created a T1D backup plan. He has re-assessed and found better strategies that have left him feeling freer and refreshed. Let’s dive into Mark’s story and learn how finding the right physician and going back to the basics (MDI) got his diabetes back on track. Continue reading

#88: Reverend Andy Bales | T1D Drives Me to Serve the Underdog

Reverend Bales story was one I could not pass up. While many of us living Type 1 diabetes quarantined, he hit the front line to serve the homeless community on Skid Row. He has lived with T1D for 48 years and hasn’t let this disease keep him from achieving his goals both physically and professionally. He is truly a hero!
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#86: Sarah MacLeod | The Highs & Lows of Diabetes and Cannabis

Sarah is a breath of fresh air. Her ability to be honest, vulnerable and willing to discuss all aspects of her T1D journey is the perfect combination to connect the diabetes online masses. In this first ever episode for the DDG, we discuss medicinal cannabis and what it has done for Sarah in addition to daily practices of yoga, meditation and online connectivity.
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#85: Dr. Todd Hobbs & Ken Inchausti | An Open Conversation about Insulin with Novo Nordisk

After a recent announcement from Novo Nordisk I cleared my schedule to record this episode with Dr. Todd Hobbs, Chief Medical Officer for North America and Ken Inchausti, Senior Director of Corporate Communications. In this open discussion they share resources and cost saving programs, details about insulin production, insulin trials and what’s on the horizon for insulin therapies. I learned SO much about a drug I’ve been taking for decades!

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#84: Craig Le Fevre | Temporarily Donating My Body To Science

After being rejected to join an insulin therapy clinical trial, I was determined to find someone who was able to participate. DDG’s newest team member, Cynthia Celt, connected the dots and hooked me up with Craig who shared his recent experience as a participant in a rather intense trial. Thank you Craig for temporarily donating your body to science to help fellow insulin dependent dia-peeps. Keep on trucking… jeeping you brave soul.

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#83: Tracey D. Brown | A Positive Poster Child for the Type 2 Diabetes Community

For newly diagnosed T2D, it might be overwhelming and many fall into diabetes denial. In an effort to change this mentality, Tracey shares an authentic story of how a question from her daughter was the “aha” moment to take things seriously. In this episode, Tracey unapologetically shares her story because there is no shame in the game! Diabetes is a family affair and her energy, lifestyle choices and overall mentality is hopefully contagious – in a good way.

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#82: Kyle Kondoff | I’ve Found What Works Best For Me

I connected with Kyle on social media and like many of my past guests, he shoots it to you straight about diet, exercise and his diabetes hacks. He isn’t shy and shares his opinion on lifestyle and offers HIS take on things without offering up medical advice. I was a little squeamish when Kyle shared details about a current trial he’s participating in, but eager to learn more about the advancements in CGM technology from someone who is walking the walk. Continue reading

Mini-Podcast 3: DreaMed Diabetes – Turning Patient Data into Human Insight

DreaMed Diabetes, a leader in AI solutions for personalized diabetes management and the company behind the first artificial pancreas technology recently launched Advisor Pro software. This software can analyze glucose and insulin data in seconds and advise on an optimal treatment plan including basal rate, carb ratio, insulin sensitivity factor, and personal management tips. The Advisor Pro also allows remote clinic visits and frequent titration changes.

Mini-Podcast 2: Steady Health – “You Deserve More Than a Quarterly Check-Up”

Steady Health is the first full-service digital diabetes clinic in the US. Their services combine the power of continuous glucose monitors and the convenience of telemedicine to deliver a new type of care to patients. You can see an endocrinologist from home and get ongoing care and support from a team of diabetes specialists.

#77: Monica Storozyszyn | Knowing the Difference Between a Constant and a Pest

I am wrapping up this decade with one last long episode, but I promise, it is worth listening to the very end and entertaining if nothing else. The theme of this episode is knowing the difference between being a constant, and being a pest. Monica backs this motto by providing actionable items and tips to help us relinquish fear and get involved. Her demeanor is calm and her voice is soft, but her words are powerful and changing lives for all people living with diabetes. Continue reading

#76: Chris & Candace Clement | The Importance of a Supportive Partner

Chris and his wife Candace are honest, vulnerable and a little sappy at times, but are the perfect reminder there are still good ones out there. You know, the ones who support you and your diabetes through the good, the bad and a serious hypo while educating their three kiddos along the way. Together, they resonate love, compassion and a supportive partnership and are role models for us all – diabetes or not. Continue reading

#74: The Future of Diabetes Management | DiabetesMine Innovation Summit Mini Pods

I was honored to be chosen as one of ten Patient Voice Contest winners for the DiabetesMine Innovation Summit. During the two day event, I was surrounded by industry leaders, tech gurus, genius creators of diabetes apps, and many fellow advocates. This Summit coalesced the mother lode of advancements in diabetes management, and a few of the brave souls in attendance took time to chat with me. Though our interviews were brief, each guest radiated an optimism and passion for helping to better the lives of those of us living with diabetes, and I hope their energy inspires you as well.

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Does Diabetes Phantom Pain Really Exist?

I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me… Continue reading

#37: Amber & Ryan | 3rd Annual New Years Show (Gleaning Wisdom from the Pricks)

Just getting back to our DDG roots: reflecting on 2016, making fun of each other, and catching up. Continue reading

#36: Clayton McCook | Sure, I’ll Close the Loop Too

In less than a week from our last podcast conversation with Clayton McCook, he managed to “close the loop”, by himself, with the help of many (including the NightScout Community). His focus is singular: restore as many childhood moments to his daughter’s life as possible, without diabetes hovering in the background. He walks us through the “closing the loop” steps and his bigger motivations. As a parent of a person with diabetes, if you’ve ever thought about tinkering with your gear to allow the CGM and pump talk, Clayton stands as proof that it’s possible to pull it off with determination, love, and a small desk somewhere. Continue reading

#34: Robby Barbaro | Disrupting Diet Philosophy and Reversing Chronic Disease

Real Life Diabetes Podcast

Riding 800 carbs of fruit to steady glucose control? Huh? Robby Barbaro (a person with type 1 diabetes) joins the podcast from Santa Monica to bust paradigms by introducing the high-carb, low-fat philosophy to revolutionize type 2… and type 1 diabetes management. Currently, Robby is a plant-based diabetes coach: hosting retreats, 1-on-1 coaching sessions, and blogging from MindfulDiabetic.com. If you, like us, have always been curious about the mysteries of insulin resistance, this is the avenue to enlightenment. We laughed, we learned, and we left inspired to push the boundaries of our perceived diabetes knowledge. He walks the walk and talks the talk.

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Life As A #WalkingScienceProject In Hope Of Helping Others

clinical-trial

As a person with Type 1 diabetes, I’ve been frustrated in years past with the lack of advancement for the treatment of this disease. It wasn’t until about five years ago that I decided to stop complaining and take action. I asked myself the question – why aren’t things changing and what can I do to help? I did a bit of research and with the help of my regular physician, I was added to a list of diabetes related trials. I had no idea what I was in for, but knew it was something I had to do. Continue reading

#31: Clayton McCook | A Non-Techie Father Finds NightScout

nightscout-type-1-diabetes

At the JDRF Summit last January in Oklahoma City, we struck up a conversation with the father of Lily, an adorable, youngster who lives with T1D. She had on this awesome-looking watch with her blood sugar. So did her Dad. We had to explore further. In this episode, Clayton shares his family’s philosophies on parenting and empowering the T1D life. While not a “techie guy”, he managed to discover and use Night Scout… while continuing to develop an artificial pancreas in his basement. There’s some wisdom in this one folks.
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#28: Kelly McKeever, RN, CDE | The Proof’s in the Sugar-Free Pudding

Photo Courtesy Of The Harold Hamm Diabetes Center

Photo Courtesy Of The Harold Hamm Diabetes Center

Amber and Ryan sweet talked past guest, fellow T1D, and long-time diabetes camp enthusiast, Kelly McKeever, into joining a summer edition of the show. Kelly’s had 13+ years at camp and shares what keeps him coming back, now in a medical personnel role. In this episode they catch up on life with diabetes, cutting edge developments in diabetes tech, the camp life experience, what we learned about ourselves, and the value of having “a diabetes community in person”. Continue reading

#26: Amy Tenderich, DiabetesMine Founder | Inspiring the Next Wave of Diabetes Innovation

 Amy Tenderich - DiabetesMine.com and Real Life Diabetes Podcast

What’s the recipe for innovation? Funny you ask, we were thinking it went a little like this: timing, drive, wit, guts, luck, and a type 1 diabetes diagnosis. At least in Amy Tenderich’s story, all of those factors came together magically when she received her diagnosis in 2003. Continue reading

#25: Amber & Ryan | Dispelling (And Encouraging) The Hot Tub Urban Legend

Hot Tubs And Type 1 Diabetes Effects

The DDG invested a weekend afternoon to dispel a diabetes urban legend… HOT TUBS, and their effect on blood sugar. In this episode, they do scientific research, or something resembling the scientific method, while rambling about everyday life, social media and all things diabetes. Why hasn’t there been an experiment like this before? Well, maybe there has been, but the evidence was nowhere to be found. Leave it to the DDG to get to the bottom of this T1D fear. Bear witness folks, this is diabetes research history. Continue reading

#17: The Winters Family | Straight Up CSI Crime Scene: What It’s Like To Raise Two Boys with T1D

Real Life Diabetes Podcast 17

The Winters family strive to live in the now, while grinding with two children with type 1 diabetes under the age of 7. They were the perfect guests as they’re honest and open about the daily diabetes struggles; highlighting the daily battles force-feeding when low or having to pull out the Glucagon pen. If a black light were involved, their home might resemble a CSI crime scene, but they choose to use laughter as their number one form of medicine. We chat low BG manipulation, misdiagnosis, trusting your gut, donut Fridays, rolling with the punches and doing everything in your power to provide a “normal” life with two boys living with diabetes. This isn’t your parenting “how to guide”, it’s real life and they’re learning along the way. Continue reading

#16: Tara Layman | Shedding the Shame of a T1D Body with Nudity… Tastefully

T1D Exposed - Real Life Diabetes Podcast 16

Over drinks with T1D friends one night, T1D Exposed founders, Kat and Tara, discussed fundraising ideas to support their beloved diabetes camp (where they had met the summer before), and other amazing diabetes non-profits. They laughed about how ridiculous it would be to start a T1D nude calendar… Well, in the time since its inception, The Nude Diabetes Advocacy Project has blown up! Tara allowed the DDG crew to probe her on the awkwardness of the shots, the beauty in the scars, and… the possibility of Ryan and Amber flying out to San Francisco for a shoot! Continue reading

It’s Time To Curb The Push Notifications… I Mean CGM Alerts

A CGM Break

 

Research indicates that the more a patient wears the CGM, the lower the a1c travels. This makes sense. If you see your blood sugar rising, you’re probably going to take action to stop it. If you don’t see your blood sugar risking, you’re probably not going to take action until you feel high, or test again. That’s a good 30  minutes to 2 hours saved from having a high blood sugar. Like I said, all of this makes sense. Every CDE will share this advice, as they should.

I need to backtrack first. Technology is taking considerable chunks out of our lives. I get an urgent “request” from an app, website, or social media site to install a new push notification just about daily. I know I’m not alone in this sentiment, sometimes it feels that way, but I do not like getting notifications. I do not want to be told what the score of the Thunder game is at the end of the 1st quarter. If I want to know the score of the Thunder game, I will check the score. In my experience, the conveniences offered through push notifications are rather inconvenient. Continue reading

4 Rules For Better Boundaries With Your CGM (Continuous Glucose Monitor)

Yes, I know it's a phone but for our purposes they might as well be the same.

Yes, I know it’s a phone but for our purposes they might as well be the same.

I knew what I was getting when I signed up for this CGM thing. I knew full well what could happen to myself when given the chance to know my blood sugar, all the time. The consequences of that gift have been two-sided. First, it’s drastically reduced really high highs and really low lows. Secondly, it’s created another distraction in a world full of attention grabbing things. I cherish the ability to be present, let things unfold, and react accordingly. At times, the CGM has challenged that mantra. With each alarm or urge to check it, that takes away undivided attention from studying, conversations, and work projects. With a set of rules developed through experience, I am now apt to deal with the CGM with balance, well, at least sometimes.

Here are those rules for diabetes management with a CGM:

1. Employ multiple ranges.

Most continuous glucose monitoring devices allow for flexibility in your CGM alarm ranges. At night, I prefer to loosen up the reins. Instead of being buzzed and beeped when I approach 200, I prefer to buzzed and beeped when I approach 250. Sleep is the priority. During the day, I take the opposite approach with the goal of being below 200, to optimize brain function. Continue reading

My Counterintuitive Advice From 6 Months Of CGM Life

(Photo Credit: Red Dirt Ruminations)

(Photo Credit: Red Dirt Ruminations)

First, I must say that I love the thing. Okay, that’s not entirely true. I really enjoy my CGM 90% of the time. That 90% reflects, from my own experience, the everyday accuracy of the numbers. During that 90%, it’s incredible.

For those who have the CGM, be patient with me. For those who do not, I’d like to paint the picture of what it’s like.

You know exactly where your blood sugar is at, all the time. Continue reading

Let’s Geek Out: 3 Reasons You Should Care About The DreaMed and Medtronic Partnership

Closing The Diabetes Loop - DreaMed, Medtronic

A diabetes development hits the news every five minutes. Our job at the DDG, is to showcase to you which of these really matter. We think this DreaMed and Medtronic partnership matters. Why? We’ll get there, but first, let’s define the agreement.

Basically, Medtronic bought DreaMed’s CGM algorithm technology. Here’s a excerpt from the previously linked article by news-medical.net, describing the algorithm:

DreaMed Diabetes’s CE approved GlucoSitter™, which is based on the MD-Logic Artificial Pancreas algorithm, is a fully-automated, artificial-pancreas system for controlling glucose levels. The system links the glucose sensor with the insulin pump through computerized control algorithms. It uses data of glucose levels from a continuous glucose sensor, analyzes them and directs the insulin pump to deliver the correct dose of insulin that should be released to the body in order to maintain balanced blood glucose. In effect, the software continuously monitors glucose levels, and defines precisely when and how to adjust insulin levels.

Now, let’s talk importance: Continue reading