It’s time to PAR-TAY!! Today marks my 40 something birthday living with Type 1 diabetes. I’m grateful to have a platform to share my story and look forward to all 2022 has to offer. Thank you for being part of the journey as I’ve learned so much from your stories! Read on while we take a look back at what we’ve accomplished in 2021, plans for 2022, and birthday wishes for today.
Imagine a future where diabetes is the last thing on the mind of people living with it – that is progress! In part #1 we got an inside look at how the insulin industry is spurring each other on to make advancements in diabetes management. In part #2 we continue the conversation with the leaders in the insulin pump industry, alongside my well-versed cohost, Mark Carter. As a little refresher, we had the pleasure of hearing from Michael Hill, VP of Global Portfolio Marketing at Medtronic, Dr. Trang Ly, Senior Vice President and Medical Director at Insulet, and Dr. Steph Habif, a behavioral scientist at Tandem.
Let’s jump back into this topic and learn more about how you can define progress in daily diabetes management and what’s on the horizon for insulin pump therapy.
I’ve joked, and/or compared my diabetes management to OCD (obsessive compulsive disorder), but hadn’t met anyone living with both conditions until interviewing Brett Ryan Stewart. Brett is a Nashville based producer who shared – “ultimately what OCD kind of comes down to is this inability to accept what you can’t control and then obsessing about a way to control the uncontrollable.” I’m sure many of you living with T1D can relate to this mentality and Brett’s ability to give us a look into his daily life was eye opening to say the least.
The world of diabetes management is growing at an expeditious rate, so how do we define progress in this space? Great question, and one I couldn’t resolve myself so I brought in past podcast guest and fellow T1D, Mark Carter, who has worked within the industry. We had the pleasure of sitting with three insulin pump therapy leaders: Michael Hill, VP of Global Portfolio Marketing at Medtronic; Dr. Trang Ly, Senior Vice President and Medical Director at Insulet; and Dr. Steph Habif, a behavioral scientist at Tandem.
Our conversation is packed with insights on how to define progress in daily diabetes management while addressing some of the community’s most burning questions. Stay tuned for part #2.
It’s time to get rid of the word ‘weak’ when talking about people navigating chronic illnesses. In reality, we are some of the strong, unique and resilient people in the world, and Madison Thorn is spreading that very message. She was fueled by a nasty protest sign and turned that energy into a thought provoking project highlighting other high risk humans like ourselves, a story that needs to be told.
People living with diabetes don’t just need the latest and greatest tech, they need real solutions to unique problems! Kayla Mattingly always knew she wanted 3-4 kids from thestart, but never imagined two of her four sons would be diagnosed with Type 1 diabetes. She rolled with the autoimmune punches, but an insulin allergy has her family and medical team scrambling for solutions. Type IV Hypersensitivity to insulin is rare, but she has found a handful of other parents who are looking for answers.
What does someone who was thrust into the world of diabetes with no preparation do? They make animations of course! Jermaine Hargrove is the co-founder of Small Town Animation Studios, where he and his wife are impacting the diabetes space with the arts, specifically in the 3D animated films arena. His creative expertise and entrepreneurial spirit will help inspire people to better manage their diabetes. Let’s dive into Jermaine’s story and learn more about not all Superheroes wear capes, but some do wear CGMs. Continue reading →
This impromptu episode was a no brainer when President Biden took office and put a freeze on past executive orders. The diabetes community flipped out so I contacted two friends who can help me and the DOC better understand what this really means. In this episode we discuss the EO freeze on insulin and grassroots advocacy efforts.
Manny Hernandez is a published author, recognized diabetes advocate, and speaker on the power of community for social impact who reminds us, while we are not on this journey by choice, it’s not a path we need to take alone. What better way to wrap up 2020 than with a brave soul who transformed his professional career to connect with others who understand similar challenges.
Dr. Allyson Hughes is a self-proclaimed animal lover, methodology geek and research scientist who collaborates with various industries to develop research projects from beginning to end, and advocates for health policy with the data she collects. Having been diagnosed with T1D herself, she knows all too well the struggles we face. This is what prompted her career path as a health psychologist dedicated to improving the lives of people living with diabetes.
TheReal Life Diabetes Virtual Happy Hour takes place every Thursday from 5 – 6:15pm CST. The theme or activity has attendance growing because we have a TON of fun with folks who “get it”. This event is a great place to meet new people, connect with old friends and hopefully lift your spirits as you roll into the weekend.
Checkout a few fun pics below and be sure to click on the Happy Hour logo to register. Continue reading →
After decades of frustrating results and fed up with the type 1 diabetes roller coaster, Allison completely changed her life and diabetes management by switching to a low carb lifestyle. She took her new way of eating seriously and lost 55+ pounds and was able to get off all medications with the exception of insulin. This journey fueled her desire to learn more about how her own T1D body worked and to then share her message with others. Allison jumped head first into a series of nursing degrees and coaching certifications including pregnancy and pre-diabetes coaching. She is the real deal exemplifying how to both live well and support others in their journey with diabetes and achieving normalized blood sugars! Continue reading →
After being rejected to join an insulin therapy clinical trial, I was determined to find someone who was able to participate. DDG’s newest team member, Cynthia Celt, connected the dots and hooked me up with Craig who shared his recent experience as a participant in a rather intense trial. Thank you Craig for temporarily donating your body to science to help fellow insulin dependent dia-peeps. Keep on trucking… jeeping you brave soul.
I connected with Kyle on social media and like many of my past guests, he shoots it to you straight about diet, exercise and his diabetes hacks. He isn’t shy and shares his opinion on lifestyle and offers HIS take on things without offering up medical advice. I was a little squeamish when Kyle shared details about a current trial he’s participating in, but eager to learn more about the advancements in CGM technology from someone who is walking the walk. Continue reading →
The dust has settled and the Real Life Diabetes Consulting team is back at home and taken a moment to reflect on our visit to the JDRF TypeOneNation summit in St. Louis. I love chatting with this crew and thought it was time to recap our roller coaster of events in Missouri. We aren’t shy and touch on personal take aways, connecting with new diapeeps of all ages, and how we battled our own diabetes debacles on this trip. Real life! Continue reading →
Dr. Clayton McCook is back and shares what’s new in his diabetes advocacy game. He’s not pointing fingers, but using his voice and grassroots efforts to make a difference. Everyone has a voice and he uses his kind demeanor to help others find theirs. Not only does he share tech advancements and grassroots efforts, he entertains my ridiculous questions about diabetes management for pets.
The i2U Culinary Solutions motto is “Food is Medicine” and is comprised of a team of registered dietitians, certified personal trainers, and award-winning chefs all dedicated to bridging the gap between food and medicine. Use promo code, DIABETESGRIND, at checkout to receive a 10% discount on your first order.
I am wrapping up this decade with one last longepisode, but I promise, it is worth listening to the very end and entertaining if nothing else. The theme of this episode is knowing the difference between being a constant, and being a pest. Monica backs this motto by providing actionable items and tips to help us relinquish fear and get involved. Her demeanor is calm and her voice is soft, but her words are powerful and changing lives for all people living with diabetes. Continue reading →
It has been over a year since I last shared a post, but with two snow days I had plenty of time to reflect on what the past year has taught me. 2018 was full of new challenges, many of which were diabetes related. After 35+ years of living with T1D, you would think I’ve dealt with it all, but that is not the case. Below are a few highlights, lessons learned and things to ponder.
I became a Dexcom Warrior and had the privilege of trying the new G6 before it was released to the public.
I shared my T1D story, per the request of the Oklahoma Diabetes Legislative Caucus, to insurance providers in an effort to change future coverage for people living with the disease. It worked. Report to follow in a future post with my testimony.
Oklahoma is thankful to have an upcoming state senate candidate who in not only a second generation educator, but the parent of a child recently diagnosed with Type 1 diabetes. In this episode we touch on her son’s diagnosis, insulin affordability & accessibility, and Carri’s day to day life on the campaign trail with three kids. Please note – this is not a political plug, but just an opportunity to have someone in her shoes share life with managing the real world and a child with Type 1 diabetes.
With such busy lives these days it has been almost two months since team DDG crafted time to catch up. As everyone in the diabetes community knows, we all need our T1D bestie time chatting about life with the disease SO… after a long day at work we penciled in this episode to review life, recap breaking diabetes news, and discuss listener questions. We talk allergies, food choices, fight or flight response, T2D compassion, defense mechanisms, T1D anxiety and an honest conversation about how our diabetes management is constantly changing.
If you’re one for free-flowing conversation, sit on back with a beverage of choice (if not driving) and enjoy.
Diabetes is rough right? Even with a CGM and around the clock basal insulin from a pump, most days are still a grind! But staggeringly, across the globe insulin prices are accounting for up to 40% of monthly expenses, and people are walking 100 miles to get a prescription. Elizabeth Rowley, founder of T1International, is digging deep to gain awareness to the disparities in care and often inadequate access to standards in daily management, like strips and insulin. They campaign for systemic change that not only meets daily needs, but aims to solve the underlying issues in healthcare. If you’d ever like more information on the subject of diabetes across the globe, they are the knowledge hub.
We enjoyed the conversation with Elizabeth, challenging us to open our eyes to the diabetes experience outside of the US.
For the first time in DDG history – we’re taking a quick break from content. Before you start cursing us and wonder what you’re going to read this week, please note = Ryan started his first day/third year of medical school (YAY Ryan) and Amber is attending the Friends For Life conference in Orlando, Florida. We can’t wait to share future posts as to what’s going down in the diabetes advocacy world. We’ve linked a few sites to check out as a sneak peak into what’s down the pipe line.
Here are a few stellar folks, sites and organizations you need to check out:
The DDG team is honored to be advisory board members for OU Harold Hamm Diabetes Center’s Camp Blue Hawk, a 5-day residential camp for children with type 1 diabetes that focuses on improving camper’s quality of life. In this podcast we chatted with high school student, twin, cello/bass playing and volleyball champion, Paul and his mother. He shares his honest reflection on what camp was like with stories of clean latrines, good food and forgetting he had diabetes. Continue reading →
In the midst of a VIP cocktail hour LIVE from the Connect+Cure Gala in Oklahoma City, leaders on the diabetes research and treatment frontier were kind enough to converse with us. We didn’t focus on run of the mill research questions. We got to the heart of their individual diabetes motivations. We covered the importance of a physician’s own A1C, the equal importance of cowboy boots, favorite Toby Keith (he played a full concert that night) songs, and why both Amber and Ryan haven’t been dropped as patients for non-compliance… yet. As the night’s feature ceremony, the Hamm Prize–$250,000 for research advances toward a cure–was awarded to Dr. Ronald Kahn, and he joined us to share his enlightening perspectives (that’s not hyperbole, it’s truth).
After we wrapped up our interviews, we were honored to join 900+ people who support the Harold Hamm Oklahoma Diabetes Center’s (HHODC) future and groundbreaking strides toward eradicating diabetes. As Oklahomans, where 1 out of every 3 people is affected by diabetes, it was a meaningful night filled with promise. We are so grateful for the opportunity provided by the Harold Hamm Diabetes Center and appreciative of our guests to supply insights for all of us with diabetes. Thank you everyone! Continue reading →
Well, 2016 is officially here and the DDG crew has survived yet another eventful holiday season. With another year under our belts with all things that diabetes entails (using 4 total lancets, troubleshooting 129 high blood sugars for unknown causes, and Instagramming sunsets with insulin pumps in the foreground), we want to reflect on what all transpired in 2015 – lessons learned (some multiple times), blood sugar mysteries solved, and new adventures that sparked enlightenment. Continue reading →
We love this guy! Mike Hoskins, in our mind, is one of the bonafide leaders of the diabetes online community and was the perfect guest to launch the show into 2016. His perspectives over at DiabetesMine.com have always caught our eye, especially his honest takes on real life. Most recently, he published some high quality, scientific method driven (okay, it’s not perfect research) on the effect of varying beers on his blood sugar. We delved into the state of the DOC and his takes on Medtronic’s new Enlite system. As always, we kept it casual and laughed a lot.
Diabetes and driving – race car driving that is… is the topic today as Amber recently won the Lilly Diabetes My Diabetes Pit Crew Sweepstakes! She’s officially an honorary member of Ryan Reed’s pit crew and was given the opportunity to interview the Nascar driver about life on the road with diabetes. In this first ever MiniPod, we talk real life – Amber style (no filter). Ryan Reed indulges her “non-traditional” questions, shares his go-to recipes, and who has access to giving him a shot. Continue reading →