It was just by chance our paths would cross at a T1D kiddo and parent support group. I rarely attend and Rebecca and her husband James were guests that evening. When we split off into another room, Rebecca shared her heartfelt story to the parents and there was not a dry eye in the room. For many of us who have lived with T1D for decades, sharing the impact this disease has on our state of mind can be difficult to recollect, much less share. Rebecca found the courage and is turning a life altering experience into a philanthropic dream.
I’m packing up the Subaru and heading to Joplin, Missouri to attend the Stick It To Diabetes fundraiser hosted my the Mercy Foundation. What better way to bring PWD together than a happy hour? Continue reading →
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
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After a tip from my sister and a little friendly stalking, I scored a killer interview with CNN Heroes award recipient, Maria Rose Belding. Above and beyond her work providing food for people in need, she is surpassing her goals while juggling life with Type 1 diabetes. In this episode she shares her passion to serve others while not letting T1D slow her down. Continue reading →
Kate Hall, is like many of us in the diabetes community – unstoppable and she decided early on that Type 1 diabetes won’t keep her from pursuing her dreams. She is an inspiration to us all and does a phenomenal job sharing her story on the road to becoming a 2020 Olympian.
After a long hiatus, I’m back and doing my best to use new technology… I chose to kickoff this new wave of podcasts with a “hot topic“, insulin affordability and accessibility. The DOC (diabetes online community) has been harping on this for ages, but as the topic is now international news after a recent wave of “published” deaths due to insulin rationing, it was time to chat with the author of Insulin’s High Cost Leads To Lethal Rationing, Bram Sables-Smith.
For all of us, this was a new season. In the time away from each other (less than a year), Mark has moved back to Northwest Arkansas, started a new job with Medtronic, and committed to a diabetes life with the new 670G insulin pump. And, as expected, the conversation went off the rails from the anticipated agenda and into even realer subjects: sex, sleep, and chick-fil-a. Continue reading →
Enthusiasm and authenticity are contagious. In just an hour of speaking with Daniele, we caught the wave of passion toward bettering our own diabetes management. Her own transformation–a completely authentic one driven by her own T1D experience–gives her a platform to coach from the heart. She gets the pitfalls. She understands the road to success. She has a balanced approach based upon a Nutritional Science degree, Personal Training certification, and 1000 hours of psychology training. A conversation centered on how to craft an optimal attitude toward new habits, this podcast serves as the perfect launch into 2018. And, as no surprise to anyone, moments of ridiculousness and laughter are plentiful.
An hour before her emcee duties at the Harold Hamm Diabetes Center’s Connect+Cure Gala in OKC, Nicole Johnson joined us and shared her perspectives since winning Miss America in 1999. From the surprising career trajectory afterward, to dating and diabetes scenarios, we embraced the whole journey. Per the usual flow of the show, many laughs were had, and we all got to know each other. Continue reading →
We’ve all heard it before: wow, how can you do that? You’re so strong. You’re so brave. You’re so courageous, ad nauseam. I have people staring at me while I take insulin injections, like curious little puppies trying to get the best view. We’re hailed as warriors, and that we should strut around like diabetes is a badge of courage on our arms. AND it IS difficult; it’s the most difficult thing I’ve ever done. Continue reading →
You know what takes courage? Looking at your weaknesses, then sketching out a path forward to wellness. Led by her well-intentioned sister Pooche, Belle sat down to chat with Amber (a good friend) about her complicated relationship with type 2 diabetes. As a person with type 1 diabetes, it stands as a fresh look at life with type 2 diabetes, helping us all understand each other a little better. Continue reading →
We’re an analytical bunch. Numbers flow through our brains alongside most thoughts. Numbers can dictate our emotional states–ever been feeling great, get a blood sugar, see it’s at 250, and then start to feel high? That blood sugar number courses through everything we do, everyone we meet, and everything we think. But, does it have to? Continue reading →
One of our favorite podcast guests is back! Back in the fall, he joined us on Podcast 32 where he shared his love of Chick-Fil-A, coffee, Equal and Omnipod. We highly suggest a retrograde listen before hopping into this show.
During this go round, we catch up on life, hear about an epic insulin prescription journey, discuss what diabetes maturity means, and laugh hard.
To the support the show, check out our Paypal link for subscription options.
We love realness. Much of type 1 diabetes marketing revolves around this idea of, “Hey, Nick Jonas is super cool and all people with type 1 can sing and dance!”. Don’t get us wrong, we love Nick Jonas and obviously he has struggles too. But, what about just a couple of normal bros who have diabetes, their journey, and how they’re changing diabetes lives in the real world? That’s the story we tell today, with Chris “Pick” Pickering from the TheBetesBros. (On Instagram or Twitter @TheBetesBros)
Whether it’s education in schools, one-on-one counseling, or challenges with athletes out in the community, Chris is taking his own experience and helping people feel what it’s like to have diabetes. We love that impact, and you’ll love his stories!
Imagine you’re at work. It’s 10AM. You search through your belongings for your meter, maybe you need to calibrate the CGM. But… you left the meter on your kitchen table. If you’re Elliot Gatt, you simply walk down the hallway and open up a new box of Good Glucos strips, a company he developed after years of frustration with test strip price gouging. Without insurance, they offer accurate strips at an affordable price while giving strips back to someone in need. Ever heard of anything like this? We hadn’t either, and that’s why we’re breaking down his journey, including his involvement in the Bike Beyond adventure across the US starting June 3rd. Continue reading →
Over the past three years of binge reading other PWD’s posts and interviewing people who live with diabetes, the common theme has been our ability to recognize low BGs changes over time. In my adolescent years, my nose would feel numb and I would get shaky. At that point in my life I was checking my BG every once in awhile so my body took the reigns and made sure I knew something wasn’t right. It was all about trial and error – I feel woozy and am shaking so I would down a packet of honey or four and start to feel better. Continue reading →
I was born in Vancouver, BC and at 18 months old I was diagnosed with Type 1 Diabetes. I consider myself lucky to have grown up in Canada where majority of medical supplies are covered and you don’t have to beg your insurance company on your hands and knees for equipment, like insulin pumps and CGMs. I think I’m even luckier to have parents who were not afraid of my diabetes and let me join numerous dance classes at a young age. I’ve always had a passion for dancing and performing and I knew that I wanted to make it my career as I got older. I also knew that NYC was the place with the most opportunity to make it happen and that is why I moved to the Big Apple. Continue reading →
Living with diabetes is far from easy–checking BGs multiple times a day, giving yourself insulin injections, and changing pump sites every three days (at least you’re supposed to…). I was diagnosed with T1D at the age of two. Luckily, I was raised by wonderful parents who taught me very early on to be independent, giving my first injection at the age of four and learning the carb vs. insulin ratios at six. Continue reading →
It’s a stretch to say, as a person with diabetes, that I’ve always been on top of my health. The truth is that I struggle with diabetes burnout often, and I am not afraid to admit it.
In life, no one ever wants to admit that they are struggling or hitting a rough patch in their lives. No one wants to show weakness or sadness to their peers for the fear of being judged or looked down upon. THAT is the mindset that I have been battling since my diagnosis. Continue reading →
I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me… Continue reading →
Michael Bliss wrote a book calledThe Discovery of Insulin in the early eighties – I read it just before I left for Ukraine. It was terrifying and heartbreaking to learn the stories of T1Ds before insulin, and it was fascinating and enraging to learn about diabetes research, past and present. I have always wondered about the world, and knowing Peace Corps’ medical rules, I wondered about how T1Ds in Ukraine and elsewhere lived. Continue reading →
I penned this gory article because I can guarantee that we’ve all transformed into otherworldly creatures at some point in our diabetes lives. Many are embarrassed about the other faces our ‘invisible disease’ has. Why should we be ashamed? Let them roam free! Continue reading →
Diabetes is the best thing that ever happened to us. This guy, Ideen Tabatabai, lives out that mantra, and diabetes continues to shape his path as he exits medical school. Alongside Ryan, they explore the subtle, and not so subtle, ways that diabetes shaped their medical school experience, oftentimes in absurd, hilarious ways. Ideen is a 4th year medical student at the University of Oklahoma College of Medicine in Oklahoma City. He’s been living with T1D for 18 years, with Dad and brother as fellow folks with diabetes. He plans to specialize in pediatrics, and to further sub-specialize in pediatric endocrinology (takes one to know one). We can’t wait to follow his path.
The Magical Effects of Walking – for the past two years, my husband and I have been living in an apartment on the Hudson River in Midtown Manhattan. During those years, I’ve walked to and from my office (about 25 minutes each way) almost every day, rain or shine! I cannot say strongly enough how much this helps with my daily diabetes management. Of course, I still exercise, but I think my calming, refreshing walks each morning and night benefit my mind, soul, and diabetic body equally as much as my full hour of intense cardio! Continue reading →
I have Type 1 Diabetes. Ugh, that still doesn’t sound like something that should be coming out of my mouth. I am young (ish), I am healthy (ish), and why the *&$# do I have T1D?!?!
I was diagnosed at 32 years old after I had my second son. I was told that it was gestational and would go away (blah blah blah…) Well, here came the shock of a lifetime: it did not go away. So, here I am, 33 years old, with a pump and a Dexcom attached to me at all times. Talk about a major bummer, but the bigger question remains: now what? Continue reading →
In less than a week from our last podcast conversation with Clayton McCook, he managed to “close the loop”, by himself, with the help of many (including the NightScout Community). His focus is singular: restore as many childhood moments to his daughter’s life as possible, without diabetes hovering in the background. He walks us through the “closing the loop” steps and his bigger motivations. As a parent of a person with diabetes, if you’ve ever thought about tinkering with your gear to allow the CGM and pump talk, Clayton stands as proof that it’s possible to pull it off with determination, love, and a small desk somewhere. Continue reading →
As many of us do as the holidays approach, we reflect on what we were forced to learn, or turned a blind eye to. I’m not just focusing on everyday stuff, but on my diabetes management or lack there of. I ask myself – Did I diligently count carbs? Did I do my best to stay on top of my numbers? Was I honest at the doctor’s office? At the end of the day it doesn’t matter, the past is behind me and it’s time to focus on the future and how I can hopefully stay off of Santa’s diabetes naughty list for next year. Continue reading →
It was about this time last year when I wrote, Battle To The Death.. My Death That Is, about the countless hours/days/weeks I spent dealing with insurance companies. I want to start by saying that I’m incredibly grateful to finally have medical insurance as someone who has been self-employed most of my adult life, but this recent round(s) of phone calls has me questioning a few things. Continue reading →
We all aim for that flat, consistent beam of blood sugars shooting straight across the horizon, right? Well, my mine are that shooting star, then the shooting star rising back from the dead, then to fall out of the sky again… before lunch. I’m in one of those strange spirals, where the true etiology remains unknown, but more than likely a combination of my daily choices and changes in circumstances underlies the imbalance. Continue reading →
It’s almost insulting, right? There you are, an adult, being asked to take your shoes off for a foot exam. This was always puzzling as a kid, leaving me thinking, “Yo Doc, if I had a foot ulcer or something, don’t you think I’d know?” But nevertheless, I always take my shoes off–hoping I have on matching socks and my feet are tolerable in scent–and let the endo do his or her cursory 3 second glance, eventually sliding my socks back on to a good report. Continue reading →
I believe I’ve made it quite clear that I’m creature of habit, especially when it comes to my diabetes regimen. If I had to be brutally honest, I can’t fathom changing things because my numbers are good. At the same time, I look at my T1D peers and feel as if I’ve been left behind. What’s holding me back? This thought process led me to a recent decision to shake things up. Continue reading →
So I don’t have diabetes anymore, I think. Or at least for now I am on a diabetes vacation. After twenty two years living with type one diabetes, I am having somewhat of an identity crisis.
As people with diabetes, we are thinking constantly about our health. We are so in tune with how we feel throughout the day. From symptoms of high and low blood sugars, to fatigue, to nausea, to blurry vision, to cloudy thinking, we feel it all on most days of our lives. Continue reading →
In 2010, I joined 29 other folks to take part in Leadership Norman, a nine month training for business professionals. We met every other week and participated in a variety of sessions focused on community history, current community issues, leadership, and self-discovery. One of the sessions involved a physical, trust building experience of sorts – a ropes course. At this point, no one really knew I had Type 1 diabetes unless they happen to notice my tattoo, but this particular session brought attention to the disease. Continue reading →
One can only talk oneself for so long, right? Wrong, Amber and Ryan dedicated an entire show to each other (we thought they talked plenty already about themselves in ordinary episodes). In conversation a week prior, they realized much of life had passed by since they had a good sit-down chat. It was time t0 “catch-up” on life, diabetes, and pick-up strategies (Ryan heads to the trail and Amber heads to Whole Foods). Amber elaborates on a DDG post about her recent extraordinarily ignorant endocrinologist visit, while Ryan updates on his new, old-school approach to diabetes management.
In my opinion, having a good rapport with your endocrinologist is vital to living a fulfilled and happy life with diabetes. Over the past 33 years, I’ve had three, maybe four folks who guided me on my T1D journey. As a creature of habit, change is hard so when I was contacted by my current endocrinologist’s office and informed he was ill and no longer seeing patients, I braced myself. I was sad he was not doing well and a bit trepidatious about having to cultivate a new relationship from scratch. Continue reading →
Remember doing those paint-by-number sheets when you were a kid? It seemed magical when a confusing canvas of intersecting lines and random numbers transformed into a circus elephant or something equally amazing. I remember the joy I experienced when I produced my first masterpiece and the new found love I had for being an “artist.” Continue reading →
I arrived in Ukraine with my life packed into two suitcases (one of which was half filled with medical supplies). My first stop as a Peace Corps trainee was an old sanitarium just outside the capital city of Kyiv. There, my group of volunteers had a few buffer days in which Peace Corps became real: we learned which language we would study, where our 10-week language and job training would take place, which other volunteers would be in our 4-5 person training ‘cluster’, and we filled out a lot of paperwork. This is also where I had to decide how and to whom I would tell about my diabetes. Continue reading →
What started as a mini pod quickly blossomed into a full blown podcast once Amber began diving into the nitty gritty as to how Tara Layman (T1D Exposed co-founder) scored a new pancreas and kidney. The question of the hour – Will two pancreases and three kidneys reverse her Type 1 diabetes diagnosis? Well, in this episode they chat openly about the pre surgery process, switching from insulin shots to a handful of pills, how important it is to have a support team and what the future holds for someone who no longer “technically” has Type 1 diabetes. Continue reading →
I’m a creature of habit with my diabetes regimen and most definitely when it comes to my 5:41am Lantus injection, but last week things did not go according to plan. It was just like any other night, I headed to bed and by the time my head hit the pillow, I was dreaming of hosting my own reality TV series. I usually get up around 3am to pee and feel pretty awake as I navigate my way to the restroom. This particular morning, my “Give Your Shot” alarm went off, but when I stumbled into the restroom – I knew something was off. Continue reading →
Time to borrow from the game of golf. It’s on the mind, as I watched the PGA Championship over the weekend. Diabetes makes for an interesting viewing companion, always finding a way to relate anything back to itself.
I like golf. Haven’t found another activity that reflects the inner state of mind better. Much like diabetes management in that aspect. Getting to the point now, playing golf in Oklahoma means playing with the wind. The song doesn’t lie, the wind sweeps down the plains.
What’s the recipe for innovation? Funny you ask, we were thinking it went a little like this: timing, drive, wit, guts, luck, and a type 1 diabetes diagnosis. At least in Amy Tenderich’s story, all of those factors came together magically when she received her diagnosis in 2003. Continue reading →
The DDG set out for their very FIRST diabetes camp adventure (despite only being 24 hours in duration, it still felt like an adventure). Really, with over 50 years of diabetes experience under their belts, what more was left to learn at camp? As Advisory Board Members for Camp Blue Hawk in Oklahoma City, Amber and Ryan went to school… well, summer school for a few more diabetes enlightenments.
I was diagnosed with type 1 when I was thirteen. Shortly after, a fellow traveler broke it down for me: you can either control your diabetes or you can let it control you. A rabble rouser froma young age, I decided quickly that if those were my choices, I’d choose option A. At the time, I didn’t realize how difficult it would be to make that decision each day, but gradually it helped me develop a personality trait I see in a lot of folks with type 1: we love a challenge, and we love to prove people wrong. When I decided to be a Peace Corps Volunteer, I went into it with that same bullheaded mentality that had been an almost constant companion since diagnosis. Continue reading →
My own definition of insanity: doing the same thing, over and over, getting the same result, while simultaneously knowing the definition of insanity. Over the past two weeks, I’ve been on loop mode. I knew I was on loop mode, but history kept repeating itself. Until… a recent lunch with Amber and our friend Trish (and podcast 17 guest) said, “Ya know, you could just stop eating so many carbs in the mornings.” Let’s backtrack, mainly because I feel the need to justify why I needed to be told this essential truth in diabetes management after 18 years.
The DDG invested a weekend afternoon to dispel a diabetes urban legend… HOT TUBS, and their effect on blood sugar. In this episode, they do scientific research, or something resembling the scientific method, while rambling about everyday life, social media and all things diabetes. Why hasn’t there been an experiment like this before? Well, maybe there has been, but the evidence was nowhere to be found. Leave it to the DDG to get to the bottom of this T1D fear. Bear witness folks, this is diabetes research history. Continue reading →
Ryan trying to figure out how that whole lancet changing thing works.
I just returned home from the largest diabetes gathering I’ve attended to date, the Friends For Life conference. I had no idea what to expect and felt overwhelmed at times because I was surrounded by SO many PWDs. I laughed and cried during my interactions with folks who understand the path I’m on. While in such great company, I gathered data (sipping wine and sharing stories) on commonalities and lifestyle hacks to make life with T1D easier. I’ll share a few of them in a future post – BUT there was one thing that was very clear – NO ONE changes their lancet. Why is this? Are we stubborn, lazy or just gluttons for punishment? Well, I’ve developed a plan I hope you will participate in… Continue reading →