Wait for it…
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Dr. Allyson Hughes is a self-proclaimed animal lover, methodology geek and research scientist who collaborates with various industries to develop research projects from beginning to end, and advocates for health policy with the data she collects. Having been diagnosed with T1D herself, she knows all too well the struggles we face. This is what prompted her career path as a health psychologist dedicated to improving the lives of people living with diabetes.
I’m a sucker for witty banter and was thrilled to connect with Jutta Haaramo, co-founder of the Happy Bob app, who has brought a bit of lightheartedness to managing her son’s life with T1D. Her mission is to share the latest diabetes data, without overloading people with information by making it a fun, and rewarding experience. This is just the beginning of an exciting partnership with Jutta and the Happy Bob app team.
I don’t know about you, but in kindergarten I wasn’t considering space exploration as a career path, but April stuck to her guns and achieved this goal even after a T1D diagnosis. Her calm demeanor, passion and journey to become an aerospace engineer is inspiring to say the least. She deserves to be the first person living with diabetes in space and absolutely shares my personal mantra to dream big – diabetes or not.
The Real Life Diabetes Virtual Happy Hour takes place every Thursday from 5 – 6:15pm CST. The theme or activity has attendance growing because we have a TON of fun with folks who “get it”. This event is a great place to meet new people, connect with old friends and hopefully lift your spirits as you roll into the weekend.
Checkout a few fun pics below and be sure to click on the Happy Hour logo to register. Continue reading
Please visit the show notes for more information about peripheral arterial disease and possible treatments.
I’ve hardcore quarantined since March and recently started to feel the impact it has on me mentally. I miss my friends, I miss strolling the aisles of Target, I miss spending too much time looking at fresh produce, I miss brunch and definitely miss happy hour at a local watering hole. As I shed tears writing this post, I thought – why not do something about it. Continue reading
Reverend Bales story was one I could not pass up. While many of us living Type 1 diabetes quarantined, he hit the front line to serve the homeless community on Skid Row. He has lived with T1D for 48 years and hasn’t let this disease keep him from achieving his goals both physically and professionally. He is truly a hero!
Throughout his epic adventure, Mike went from couch potato to dropping around 100 lbs. in order to fulfill his dream of hiking the Appalachian Trail all while adjusting his diabetes management. It takes a lot of courage to completely overhaul your habits! His ability to plan all things hiking for 5+ months AND throwing in all the diabetes supplies traveling cross country blows my mind. This is only the beginning as he soon off to his next adventure. Continue reading
After a recent announcement from Novo Nordisk I cleared my schedule to record this episode with Dr. Todd Hobbs, Chief Medical Officer for North America and Ken Inchausti, Senior Director of Corporate Communications. In this open discussion they share resources and cost saving programs, details about insulin production, insulin trials and what’s on the horizon for insulin therapies. I learned SO much about a drug I’ve been taking for decades!
After being rejected to join an insulin therapy clinical trial, I was determined to find someone who was able to participate. DDG’s newest team member, Cynthia Celt, connected the dots and hooked me up with Craig who shared his recent experience as a participant in a rather intense trial. Thank you Craig for temporarily donating your body to science to help fellow insulin dependent dia-peeps. Keep on trucking… jeeping you brave soul.
With all of us spending more time in kitchen it was time to get cracking on a new recipe, but considering what I’ve been whipping together is ridiculous, I reached out to my friend, Brent Wilson, RD, CDE and Director of Nutrition & Wellness at i2U Culinary Solutions. I had the pleasure of interviewing Brent and co-owner, chef Jonathon Stranger on Mini-podcast #1: Food Is Medicine a few months ago. They know what they’re talking about – I hope you enjoy. Continue reading
I connected with Kyle on social media and like many of my past guests, he shoots it to you straight about diet, exercise and his diabetes hacks. He isn’t shy and shares his opinion on lifestyle and offers HIS take on things without offering up medical advice. I was a little squeamish when Kyle shared details about a current trial he’s participating in, but eager to learn more about the advancements in CGM technology from someone who is walking the walk. Continue reading
This impromptu episode was created to hopefully set your mind at ease. As PWDs are flooded with stories on social media concerning the fear of an insulin shortage or the disruption of diabetes supplies, I felt compelled to act. Even though most companies have issued statements reassuring people living with diabetes that everything would be okay, I wanted to hear it for myself from the company leaders. Continue reading
DreaMed Diabetes, a leader in AI solutions for personalized diabetes management and the company behind the first artificial pancreas technology recently launched Advisor Pro software. This software can analyze glucose and insulin data in seconds and advise on an optimal treatment plan including basal rate, carb ratio, insulin sensitivity factor, and personal management tips. The Advisor Pro also allows remote clinic visits and frequent titration changes.
The dust has settled and the Real Life Diabetes Consulting team is back at home and taken a moment to reflect on our visit to the JDRF TypeOneNation summit in St. Louis. I love chatting with this crew and thought it was time to recap our roller coaster of events in Missouri. We aren’t shy and touch on personal take aways, connecting with new diapeeps of all ages, and how we battled our own diabetes debacles on this trip. Real life! Continue reading
Steady Health is the first full-service digital diabetes clinic in the US. Their services combine the power of continuous glucose monitors and the convenience of telemedicine to deliver a new type of care to patients. You can see an endocrinologist from home and get ongoing care and support from a team of diabetes specialists.
As my Diaversary soon approaches, I take time to sit in silence and reflect on what I’ve learned, more specifically, in my diabetes world. New technology & pump therapies, apps, partnerships, #insulin4all campaigns, etc. have me a bit exhausted, but hopeful for the future. Below are a few 2019 highlights I would like to share.
The i2U Culinary Solutions motto is “Food is Medicine” and is comprised of a team of registered dietitians, certified personal trainers, and award-winning chefs all dedicated to bridging the gap between food and medicine. Use promo code, DIABETESGRIND, at checkout to receive a 10% discount on your first order.
Yesterday, in a bit of a panic, I reached out to friends and family because I was scared, really scared. The ugly cry kept me from sharing my real fears – was it just a gallbladder episode or something worse? Within an hour, I was headed to the ER, but not before packing a bag – insulin, needles, pen needles, extra sensor, skin tac, tester, test strips, healthy snacks, low BG snacks, journal, phone charger and head phones. Continue reading
It was just by chance our paths would cross at a T1D kiddo and parent support group. I rarely attend and Rebecca and her husband James were guests that evening. When we split off into another room, Rebecca shared her heartfelt story to the parents and there was not a dry eye in the room. For many of us who have lived with T1D for decades, sharing the impact this disease has on our state of mind can be difficult to recollect, much less share. Rebecca found the courage and is turning a life altering experience into a philanthropic dream.
My adventure to Arkansas, as one of the first Real Life Diabetes “taking the show on the road”, was a smashing success. This couple had me tearing up within the first hour and laughing out loud at the same time. They were welcoming, kind, a ton of fun and not scared to share very personal stories of living, as a couple, with Type 1 diabetes.
The Diabetes Daily Grind and Real Life Diabetes podcast is growing and in order to do so, we need help. We’re pursuing every avenue possible and hope you will take time each day to vote until April 1, 2019. CLICK on the link below to vote and please share with the world!
Kate T. Parker Photography/Special K
After a tip from my sister and a little friendly stalking, I scored a killer interview with CNN Heroes award recipient, Maria Rose Belding. Above and beyond her work providing food for people in need, she is surpassing her goals while juggling life with Type 1 diabetes. In this episode she shares her passion to serve others while not letting T1D slow her down. Continue reading
For all of us, this was a new season. In the time away from each other (less than a year), Mark has moved back to Northwest Arkansas, started a new job with Medtronic, and committed to a diabetes life with the new 670G insulin pump. And, as expected, the conversation went off the rails from the anticipated agenda and into even realer subjects: sex, sleep, and chick-fil-a.
Enthusiasm and authenticity are contagious. In just an hour of speaking with Daniele, we caught the wave of passion toward bettering our own diabetes management. Her own transformation–a completely authentic one driven by her own T1D experience–gives her a platform to coach from the heart. She gets the pitfalls. She understands the road to success. She has a balanced approach based upon a Nutritional Science degree, Personal Training certification, and 1000 hours of psychology training. A conversation centered on how to craft an optimal attitude toward new habits, this podcast serves as the perfect launch into 2018. And, as no surprise to anyone, moments of ridiculousness and laughter are plentiful.
Happy listening everyone!
An hour before her emcee duties at the Harold Hamm Diabetes Center’s Connect+Cure Gala in OKC, Nicole Johnson joined us and shared her perspectives since winning Miss America in 1999. From the surprising career trajectory afterward, to dating and diabetes scenarios, we embraced the whole journey. Per the usual flow of the show, many laughs were had, and we all got to know each other. Continue reading
We’ve all heard it before: wow, how can you do that? You’re so strong. You’re so brave. You’re so courageous, ad nauseam. I have people staring at me while I take insulin injections, like curious little puppies trying to get the best view. We’re hailed as warriors, and that we should strut around like diabetes is a badge of courage on our arms. AND it IS difficult; it’s the most difficult thing I’ve ever done. Continue reading
You know what takes courage? Looking at your weaknesses, then sketching out a path forward to wellness. Led by her well-intentioned sister Pooche, Belle sat down to chat with Amber (a good friend) about her complicated relationship with type 2 diabetes. As a person with type 1 diabetes, it stands as a fresh look at life with type 2 diabetes, helping us all understand each other a little better. Continue reading
We’re an analytical bunch. Numbers flow through our brains alongside most thoughts. Numbers can dictate our emotional states–ever been feeling great, get a blood sugar, see it’s at 250, and then start to feel high? That blood sugar number courses through everything we do, everyone we meet, and everything we think. But, does it have to? Continue reading
One of our favorite podcast guests is back! Back in the fall, he joined us on Podcast 32 where he shared his love of Chick-Fil-A, coffee, Equal and Omnipod. We highly suggest a retrograde listen before hopping into this show.
During this go round, we catch up on life, hear about an epic insulin prescription journey, discuss what diabetes maturity means, and laugh hard.
To the support the show, check out our Paypal link for subscription options.
We love realness. Much of type 1 diabetes marketing revolves around this idea of, “Hey, Nick Jonas is super cool and all people with type 1 can sing and dance!”. Don’t get us wrong, we love Nick Jonas and obviously he has struggles too. But, what about just a couple of normal bros who have diabetes, their journey, and how they’re changing diabetes lives in the real world? That’s the story we tell today, with Chris “Pick” Pickering from the TheBetesBros. (On Instagram or Twitter @TheBetesBros)
Whether it’s education in schools, one-on-one counseling, or challenges with athletes out in the community, Chris is taking his own experience and helping people feel what it’s like to have diabetes. We love that impact, and you’ll love his stories!
My sister convinced me to sign up for a 24-hour relay swim to raise awareness for Multiple Sclerosis (MS).
Swimming I like, raising awareness for charity I enjoy, and a new challenge beckoned. Doing this 24-hours after flying back from a Boston marathon trip – this would be fun. Continue reading
Imagine you’re at work. It’s 10AM. You search through your belongings for your meter, maybe you need to calibrate the CGM. But… you left the meter on your kitchen table. If you’re Elliot Gatt, you simply walk down the hallway and open up a new box of Good Glucos strips, a company he developed after years of frustration with test strip price gouging. Without insurance, they offer accurate strips at an affordable price while giving strips back to someone in need. Ever heard of anything like this? We hadn’t either, and that’s why we’re breaking down his journey, including his involvement in the Bike Beyond adventure across the US starting June 3rd. Continue reading
Over the past three years of binge reading other PWD’s posts and interviewing people who live with diabetes, the common theme has been our ability to recognize low BGs changes over time. In my adolescent years, my nose would feel numb and I would get shaky. At that point in my life I was checking my BG every once in awhile so my body took the reigns and made sure I knew something wasn’t right. It was all about trial and error – I feel woozy and am shaking so I would down a packet of honey or four and start to feel better. Continue reading
I was born in Vancouver, BC and at 18 months old I was diagnosed with Type 1 Diabetes. I consider myself lucky to have grown up in Canada where majority of medical supplies are covered and you don’t have to beg your insurance company on your hands and knees for equipment, like insulin pumps and CGMs. I think I’m even luckier to have parents who were not afraid of my diabetes and let me join numerous dance classes at a young age. I’ve always had a passion for dancing and performing and I knew that I wanted to make it my career as I got older. I also knew that NYC was the place with the most opportunity to make it happen and that is why I moved to the Big Apple. Continue reading
Living with diabetes is far from easy–checking BGs multiple times a day, giving yourself insulin injections, and changing pump sites every three days (at least you’re supposed to…). I was diagnosed with T1D at the age of two. Luckily, I was raised by wonderful parents who taught me very early on to be independent, giving my first injection at the age of four and learning the carb vs. insulin ratios at six. Continue reading
Universal truths are hard to come by with this disease, but here’s my attempt at diabetes dharma:
It’s a stretch to say, as a person with diabetes, that I’ve always been on top of my health. The truth is that I struggle with diabetes burnout often, and I am not afraid to admit it.
In life, no one ever wants to admit that they are struggling or hitting a rough patch in their lives. No one wants to show weakness or sadness to their peers for the fear of being judged or looked down upon. THAT is the mindset that I have been battling since my diagnosis. Continue reading
I’m completely aware I sound crazy, but I’ve experienced a new diabetes scenario since jumping on board with the Dexcom G5. I want to be clear as I stated in a recent post, Losing My T1D Technology Virginity, the insertion of the device did not/does not hurt so this recent discovery had me questioning how my mind is processing a foreign object/device being attached to me… Continue reading
Michael Bliss wrote a book called The Discovery of Insulin in the early eighties – I read it just before I left for Ukraine. It was terrifying and heartbreaking to learn the stories of T1Ds before insulin, and it was fascinating and enraging to learn about diabetes research, past and present. I have always wondered about the world, and knowing Peace Corps’ medical rules, I wondered about how T1Ds in Ukraine and elsewhere lived. Continue reading
I penned this gory article because I can guarantee that we’ve all transformed into otherworldly creatures at some point in our diabetes lives. Many are embarrassed about the other faces our ‘invisible disease’ has. Why should we be ashamed? Let them roam free! Continue reading
Diabetes is the best thing that ever happened to us. This guy, Ideen Tabatabai, lives out that mantra, and diabetes continues to shape his path as he exits medical school. Alongside Ryan, they explore the subtle, and not so subtle, ways that diabetes shaped their medical school experience, oftentimes in absurd, hilarious ways. Ideen is a 4th year medical student at the University of Oklahoma College of Medicine in Oklahoma City. He’s been living with T1D for 18 years, with Dad and brother as fellow folks with diabetes. He plans to specialize in pediatrics, and to further sub-specialize in pediatric endocrinology (takes one to know one). We can’t wait to follow his path.
The Magical Effects of Walking – for the past two years, my husband and I have been living in an apartment on the Hudson River in Midtown Manhattan. During those years, I’ve walked to and from my office (about 25 minutes each way) almost every day, rain or shine! I cannot say strongly enough how much this helps with my daily diabetes management. Of course, I still exercise, but I think my calming, refreshing walks each morning and night benefit my mind, soul, and diabetic body equally as much as my full hour of intense cardio! Continue reading
I have Type 1 Diabetes. Ugh, that still doesn’t sound like something that should be coming out of my mouth. I am young (ish), I am healthy (ish), and why the *&$# do I have T1D?!?!
I was diagnosed at 32 years old after I had my second son. I was told that it was gestational and would go away (blah blah blah…) Well, here came the shock of a lifetime: it did not go away. So, here I am, 33 years old, with a pump and a Dexcom attached to me at all times. Talk about a major bummer, but the bigger question remains: now what? Continue reading
We’re more ridiculous than ever and can’t wait for the wave of new content featuring writers from across the globe.
In less than a week from our last podcast conversation with Clayton McCook, he managed to “close the loop”, by himself, with the help of many (including the NightScout Community). His focus is singular: restore as many childhood moments to his daughter’s life as possible, without diabetes hovering in the background. He walks us through the “closing the loop” steps and his bigger motivations. As a parent of a person with diabetes, if you’ve ever thought about tinkering with your gear to allow the CGM and pump talk, Clayton stands as proof that it’s possible to pull it off with determination, love, and a small desk somewhere. Continue reading