While on the road with the Real Life Diabetes podcast in Scottsdale, I had the pleasure of having dinner with Paloma Kemak (aka Glitter Glucose). Her story is very different from mine, but her diagnosis and overall mindset is entertaining and up-lifting. Paloma’s energy and ability to laugh while sharing her story is contagious and inspiring to PWDs from across the globe.
I came across a recent article, The Truth About the Ice Bucket Challenge by VOX.com, that sparked a bit of anger. As someone in the non-profit world, charitable gifts are a HUGE component to the success of your organization or cause, and in my industry we have to be transparent as to what the donation will be used for (capital improvements, programming, general operation expenses, etc). The recent ALS challenge and the statistics from this article brought that gut wrenching question to the surface – where is this money going? Will it focus on finding a cure or just advancing methods/medications to treat the disease. Both are very important, but my blood begins to boil knowing that a few companies actually benefit from the focus being on medications instead of a cure. Continue reading →