You might think fashion is the last thing people living with diabetes have on their mind, but in reality, PWDs could benefit a great deal from clothing that is designed with both utility and style in mind. Naomi Kinnamon, who has lived with Type 1 diabetes since age 11, brings us those solutions that accommodate insulin pumps and injection sites.
People living with diabetes are tired of waiting for a cure, but it’s not time to throw in the towel. Sean Kramer knows about this all too well. Sean is the fourth generation in his family to be living with diabetes. Today, he serves as the Chief Executive Officer of the Diabetes Research Institute Foundation in Florida, the only national organization solely dedicated to finding a cure for diabetes with expert sources and human interest stories. In this episode, we learn more about Sean and confront the notion of hope-fatigue; it’s not time to give up!
Demanding better care and not being afraid to ask for it, Esi Akyere Mali Arthur Snodgrass is helping others find their voice and live life knowing they are complete and whole. You got to get to know this dynamic woman! Dive into this action-packed episode and find out Esi’s story, diabetes management, and advocacy for those who aren’t getting the diabetes care they deserve!
It’s time to PAR-TAY!! Today marks my 40 something birthday living with Type 1 diabetes. I’m grateful to have a platform to share my story and look forward to all 2022 has to offer. Thank you for being part of the journey as I’ve learned so much from your stories! Read on while we take a look back at what we’ve accomplished in 2021, plans for 2022, and birthday wishes for today.
Imagine a future where diabetes is the last thing on the mind of people living with it – that is progress! In part #1 we got an inside look at how the insulin industry is spurring each other on to make advancements in diabetes management. In part #2 we continue the conversation with the leaders in the insulin pump industry, alongside my well-versed cohost, Mark Carter. As a little refresher, we had the pleasure of hearing from Michael Hill, VP of Global Portfolio Marketing at Medtronic, Dr. Trang Ly, Senior Vice President and Medical Director at Insulet, and Dr. Steph Habif, a behavioral scientist at Tandem.
Let’s jump back into this topic and learn more about how you can define progress in daily diabetes management and what’s on the horizon for insulin pump therapy.
I’ve joked, and/or compared my diabetes management to OCD (obsessive compulsive disorder), but hadn’t met anyone living with both conditions until interviewing Brett Ryan Stewart. Brett is a Nashville based producer who shared – “ultimately what OCD kind of comes down to is this inability to accept what you can’t control and then obsessing about a way to control the uncontrollable.” I’m sure many of you living with T1D can relate to this mentality and Brett’s ability to give us a look into his daily life was eye opening to say the least.
The world of diabetes management is growing at an expeditious rate, so how do we define progress in this space? Great question, and one I couldn’t resolve myself so I brought in past podcast guest and fellow T1D, Mark Carter, who has worked within the industry. We had the pleasure of sitting with three insulin pump therapy leaders: Michael Hill, VP of Global Portfolio Marketing at Medtronic; Dr. Trang Ly, Senior Vice President and Medical Director at Insulet; and Dr. Steph Habif, a behavioral scientist at Tandem.
Our conversation is packed with insights on how to define progress in daily diabetes management while addressing some of the community’s most burning questions. Stay tuned for part #2.
It’s time to get rid of the word ‘weak’ when talking about people navigating chronic illnesses. In reality, we are some of the strong, unique and resilient people in the world, and Madison Thorn is spreading that very message. She was fueled by a nasty protest sign and turned that energy into a thought provoking project highlighting other high risk humans like ourselves, a story that needs to be told.
Ginger Vieira learned quickly that it turns out there is a whole lot you can still do even while dealing with diabetes when you approach yourself kindly rather than getting stuck in self pity. She is a passionate writer and editor with a mission to turn complex health information into easy-to-read content. Ginger herself navigates not only through T1D, but other autoimmune diseases as well, but not for a moment does she let herself get caught up in self pity. Instead she works tirelessly to bring out content that impacts others going through similar struggles.
People living with diabetes don’t just need the latest and greatest tech, they need real solutions to unique problems! Kayla Mattingly always knew she wanted 3-4 kids from thestart, but never imagined two of her four sons would be diagnosed with Type 1 diabetes. She rolled with the autoimmune punches, but an insulin allergy has her family and medical team scrambling for solutions. Type IV Hypersensitivity to insulin is rare, but she has found a handful of other parents who are looking for answers.
To all those who need to hear this – yes you can! This is the lifelong motto of Kristina Loskarjova, a woman who sets her mind to something and makes it happen while living her best life with T1D. She shares how taking a step back from the pressures of management could be exactly what you need to get back out and start living a fulfilled life. Kristina is an accomplished designer, entrepreneur and author who is sharing her story and those of other people living extraordinary lives with this disease.
While getting the diabetes diagnosis tends to put us on the back foot, we can choose to deal with it and refuse to let it define us. Tim White is a diabetes veteran who has been managing his diabetes for longer than I have. He is a well spring of wisdom and shares his story along with his experience on living his best life with diabetes for decades. Tim is a prime example that diabetes is not a death sentence, and its management is getting better every day. Continue reading →
Kyle is a seasoned traveler and person living with T1D whose career path has been shaped by the bumps and bruises of living with this disease. He currently serves as the Chief Strategy Officer for DiabetesWise who has launched the DiabetesWise Device Finder, a tool created at Stanford University School of Medicine to help PWD easily identify the best technology for their personal diabetes management. Continue reading →
In gearing up for this epic unicorn episode I sincerely reflected on the impact becoming a diabetes advocate has had on my life. Two of the first people I discovered were Kerri Sparling and Scott Johnson. I had found my people! Reading their stories and watching them present at various conferences gave me the courage to “really” find my voice. The podcast and blog posts have lifted a huge weight, one I didn’t realize was there. I am truly blessed.
Dr. Allyson Hughes is a self-proclaimed animal lover, methodology geek and research scientist who collaborates with various industries to develop research projects from beginning to end, and advocates for health policy with the data she collects. Having been diagnosed with T1D herself, she knows all too well the struggles we face. This is what prompted her career path as a health psychologist dedicated to improving the lives of people living with diabetes.
Thankfully, many of us living with Type 1 diabetes have a supportive parent(s), but have we really taken time to think about how our diagnosis affected our loved ones. When Janet’s media kit fell on my desk, I knew I wanted to connect. Their story of strength and partnership as they navigated through this disease, both highs and lows, is a reminder – we are not alone. Continue reading →
I don’t know about you, but in kindergarten I wasn’t considering space exploration as a career path, but April stuck to her guns and achieved this goal even after a T1D diagnosis. Her calm demeanor, passion and journey to become an aerospace engineer is inspiring to say the least. She deserves to be the first person living with diabetes in space and absolutely shares my personal mantra to dream big – diabetes or not.
With a little friendly stalking I had the pleasure of chatting with two incredibly inspirational industry leaders, and self proclaimed friendemies, Sean Saint and John Sjolund. Their drive to succeed and multiple success stories mirror my mission to help improve quality of life for all people living with diabetes. They are entertaining to say the least and had me laughing throughout the interview while giving me hope for the future of diabetes management. Continue reading →
Who says an old dog can’t learn new tricks?! Repeat guest and dear friend, Mark Carter joins the show and shares how and why he has created a T1D backup plan. He has re-assessed and found better strategies that have left him feeling freer and refreshed. Let’s dive into Mark’s story and learn how finding the right physician and going back to the basics (MDI) got his diabetes back on track. Continue reading →
After being rejected to join an insulin therapy clinical trial, I was determined to find someone who was able to participate. DDG’s newest team member, Cynthia Celt, connected the dots and hooked me up with Craig who shared his recent experience as a participant in a rather intense trial. Thank you Craig for temporarily donating your body to science to help fellow insulin dependent dia-peeps. Keep on trucking… jeeping you brave soul.
I stumbled upon a YouTube channel, Between Two Lines, that was informative and hilarious at the same time. In each episode, Levi shares his down to earth thoughts on a particular Type 1 diabetes related subject using a real talk, no sugar coating, approach. His dry wit and ability to make light of what living with this disease is like had me laughing and saying – man this guy gets it. Continue reading →
DreaMed Diabetes, a leader in AI solutions for personalized diabetes management and the company behind the first artificial pancreas technology recently launched Advisor Pro software. This software can analyze glucose and insulin data in seconds and advise on an optimal treatment plan including basal rate, carb ratio, insulin sensitivity factor, and personal management tips. The Advisor Pro also allows remote clinic visits and frequent titration changes.
The dust has settled and the Real Life Diabetes Consulting team is back at home and taken a moment to reflect on our visit to the JDRF TypeOneNation summit in St. Louis. I love chatting with this crew and thought it was time to recap our roller coaster of events in Missouri. We aren’t shy and touch on personal take aways, connecting with new diapeeps of all ages, and how we battled our own diabetes debacles on this trip. Real life! Continue reading →
I just finished reading Ryan’s post, The Enlightenment: Why Did I Wait So Damn Long To Return To The Stomach?, about forgetting to use his stomach as an effective pump site location. It made me think about my own system that I’ve wanted to share for quite some time. After 29 years with T1 and 10 years pumping, I’ve come up with a simple, effective rotation. When I was diagnosed, I initially received a site rotation card from one of the hospitals or doctor’s offices I had visited and it illustrated the various sites, but I still felt that it was a little complicated, so I made adjustments.
This is a great method for busy people who don’t always remember their last site, pill, dose or whatever repetitive action you have done day after day. That is me in a nutshell. So, here is the visual aid I created and I’ll walk you through it with a few tips. Continue reading →