While on the road with the Real Life Diabetes podcast in Scottsdale, I had the pleasure of having dinner with Paloma Kemak (aka Glitter Glucose). Her story is very different from mine, but her diagnosis and overall mindset is entertaining and up-lifting. Paloma’s energy and ability to laugh while sharing her story is contagious and inspiring to PWDs from across the globe.
You never know when you’ll run into someone who shares a similar life philosophy, but after a chance meeting in college, Mark Carter resurfaces on Okie soil. He’s real and doesn’t hold back about his love of Equal and Chik-Fil-A. In this episode, our longest one yet, he shares his journey of being an ambassador for people with diabetes who don’t have a voice. If you’re brave enough to listen to the whole thing, we hope you’ll leave with the thought – is diabetes a blessing or a curse?Continue reading →
At the JDRF Summit last January in Oklahoma City, we struck up a conversation with the father of Lily, an adorable, youngster who lives with T1D. She had on this awesome-looking watch with her blood sugar. So did her Dad. We had to explore further. In this episode, Clayton shares his family’s philosophies on parenting and empowering the T1D life. While not a “techie guy”, he managed to discover and use Night Scout… while continuing to develop an artificial pancreas in his basement. There’s some wisdom in this one folks. Continue reading →
While Ryan was studying for the boards, Amber gathered a few shoe lovers from across the country to discuss the “dream” shoe for PWDs. Maybe they didn’t find that “dream” shoe, but she enjoyed a lively discussion with guest, Shelene Kinsley, Tales From A Type 1 blogger, T1D and upcoming shoe designer. This episode was recorded in Oklahoma City’s own Betsy King Boutique. Betsy is a seasoned buyer and Amber appreciates her attention to detail when looking for the perfect high heel. Who knew that heels are better for your feet than flats? Seriously though. Continue reading →
Don’t they always say that Instagram brings people together? Actually, no, we’ve never heard anybody say that, but the rule applies when you’re vegan and have type 1 diabetes. Amy McKinnon, an Aussie originally, quit her job a few months back to explore the world, traveling the likes of Cuba, Peru, Mexico, and Ecuador. She and Ryan “met” on Instagram, probably while admiring each other’s photos of papaya or something strange of the sort. She too has felt the transformative power of a plant-based diet and joined us to share her own experiences with a vegan lifestyle. For fun—and honestly we mean this—she loves to go for casual 10 mile jogs. If you’ve ever been intrigued with the marathon running life but aren’t sure how to get started, she’ll tell us how to make it happen. Continue reading →
The DDG team is honored to be advisory board members for OU Harold Hamm Diabetes Center’s Camp Blue Hawk, a 5-day residential camp for children with type 1 diabetes that focuses on improving camper’s quality of life. In this podcast we chatted with high school student, twin, cello/bass playing and volleyball champion, Paul and his mother. He shares his honest reflection on what camp was like with stories of clean latrines, good food and forgetting he had diabetes. Continue reading →
The Winters family strive to live in the now, while grinding with two children with type 1 diabetes under the age of 7. They were the perfect guests as they’re honest and open about the daily diabetes struggles; highlighting the daily battles force-feeding when low or having to pull out the Glucagon pen. If a black light were involved, their home might resemble a CSI crime scene, but they choose to use laughter as their number one form of medicine. We chat low BG manipulation, misdiagnosis, trusting your gut, donut Fridays, rolling with the punches and doing everything in your power to provide a “normal” life with two boys living with diabetes. This isn’t your parenting “how to guide”, it’s real life and they’re learning along the way. Continue reading →
In the midst of a VIP cocktail hour LIVE from the Connect+Cure Gala in Oklahoma City, leaders on the diabetes research and treatment frontier were kind enough to converse with us. We didn’t focus on run of the mill research questions. We got to the heart of their individual diabetes motivations. We covered the importance of a physician’s own A1C, the equal importance of cowboy boots, favorite Toby Keith (he played a full concert that night) songs, and why both Amber and Ryan haven’t been dropped as patients for non-compliance… yet. As the night’s feature ceremony, the Hamm Prize–$250,000 for research advances toward a cure–was awarded to Dr. Ronald Kahn, and he joined us to share his enlightening perspectives (that’s not hyperbole, it’s truth).
After we wrapped up our interviews, we were honored to join 900+ people who support the Harold Hamm Oklahoma Diabetes Center’s (HHODC) future and groundbreaking strides toward eradicating diabetes. As Oklahomans, where 1 out of every 3 people is affected by diabetes, it was a meaningful night filled with promise. We are so grateful for the opportunity provided by the Harold Hamm Diabetes Center and appreciative of our guests to supply insights for all of us with diabetes. Thank you everyone! Continue reading →
Well, 2016 is officially here and the DDG crew has survived yet another eventful holiday season. With another year under our belts with all things that diabetes entails (using 4 total lancets, troubleshooting 129 high blood sugars for unknown causes, and Instagramming sunsets with insulin pumps in the foreground), we want to reflect on what all transpired in 2015 – lessons learned (some multiple times), blood sugar mysteries solved, and new adventures that sparked enlightenment. Continue reading →
In the next month full of holiday occasions, the focus is on family, friends, and in reality, FOOD! When turning down pumpkin pie, fudge, and or a hottie tottie, we can sacrifice long-standing family relations. What’s the pancreas-deficient to do? We got your back, dishing out the best advice we’ve got built on the back of a few hangovers, highs, lows, and good times. Kelly McKeever Registered Nurse, making his 2nd appearance today, dropped by to lend some professional and personal advice as a guy with a type 1 diagnosis.
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As Amber and Ryan have poured their collective souls into the Internet (a slightly terrifying thought) over the past two years, they’ve noticed a few themes when it comes to living life with this disease. That’s what today’s all about: realness in the form of personal experience. With 40+ years of experience between the two, they widdled down the advice into 8 simple, everyday lessons.
At the age of 13, did an event define your career path? For Kelly, it happened. A PWD–the importance of using this term instead of a diabetic was discussed, too–he now counsels patients with diabetes on a daily basis as part of a diabetes clinic. His real perspective for patients is invaluable. He relates to the ineffectiveness of the 15–wait–15 rule. He understands what it’s like to do something you regret when low or high. He’s been in that spot, where no matter how much insulin you dial up, your blood just won’t come down. He can empathize.
We discussed how he became a diabetes health professional, his top advice, his approach to patients, the importance of the diabetes online community, and the story behind how he received his diabetes diagnosis, from a football coach. Kelly joined the DDG team over in Amber’s living room, on a sweltering Oklahoma summer day. Continue reading →